Or is that fibromyalgic?
I had my 6 mth follow up appointment with my rheumy last week. My symptoms are still pretty much the same, except I am having a harder time with the fall weather so I tested positive on the tender points this time. My blood work is of course all normal. So he dictated a letter to my NP stating his findings right in front of me, which I thought was awesome. He confirmed my NP's suspicions of fibro, told him that my meds were helping, but that I may find more relief with Cymbalta or Lyrica, although he added that sometimes the cost outweigh the benefits. I also see no reason to change since my amitriptyline is working fine... for the most part that is.
My facial pain is still there, but I am not surprised at all. The rheumy also recommended getting an EMG done in my face. That I'm not looking forward to! weirdest thing though, most of my acute pain was on the right side, with bilateral bg pain in the cheekbones and ears. A week after I got that troublesome right tooth pulled, the exact same tooth on the left has been hyper sensitive. Today I got a pretty bad pain day, and on the left for the first time ever.
I'm sorry I haven't been around much again. Like I said, I've been having a hard time lately. My pressure points in my back are so sensitive it hurts just brushing my hand over my shoulders. I have been going to tons of appointments, shopping, kids' activities etc, ... like today. I said I had a bad facial pain day? At least it wasn't to the point I couldn't talk this time b/c I had already made a commitment to driving part of the kids for their field trip... 1 1/2 hours away. In the cold, hiking some pretty hard trails, carrying my 2 y/o b/c some parts were very rocky and wet as she is fighting to get down b/c she is at the independent age. Oh! and my filling that was next to the tooth that got pulled fell out! So I have another appointment for that next week, if i can tolerate
opening my mouth that is.
I also have a massage, my first ever since I got fibro, booked for the second week in November. It will either help or put me in even more pain, I'm hoping it will feel good.
Halloween is coming up, and I went easy this year. The boys are wearing the same costumes as last year. I bought oldest dd a new costume b/c she already wore her old one twice, and youngest dd's was bought at the end of season last year. It's a little cutesy, not really what I had wanted for her anymore, after all she isn't a baby anymore, but I am not making anything this year. It will be difficult enough, as ds is having his b-day party Halloween day. 10 y/o boys hopped up on sugar for a sleepover, yikes!!!
But that Monday, dh is leaving for yet another business trip (his 3rd in 2 mths) and we woudln't be able to celebrate ds's b-day two weeks past his date then. Sooo, you gotta do what you gotta do!
Here is a pic of the costume I made for him last year. It's in a digital scrapbook page, my hobby when I feel well enough to sit :)
I had bought a Clone Trooper costume from Sears last year, but 2 weeks before Halloween I called, and they were backed ordered! So I came up with this, and I think it looks better than any bought costume... other than I had to buy the helmet of course.
If you are interested, here is a scrap page I made after someone from here pointed out Rob Thomas's Her Diamonds song.
Around the same time, I got my first bad facial pain attack. Dh stood at the bottom of the stairs, watching me helplessly as I paced around, trying to outrun the pain. He later learned it on his guitar, he is just the sweetest man.
the long post, I tend to ramble! I am going to try and catch up here soon. But for right now, that is my update, and now I am going to go have a hot bath.
But I almost forgot the point of my post. I am happy to finally have a firm dx. I feel validated, somehow :)
((((HUGS)))), I wish you all a good day doing what makes you happy.
possible fibro and trigeminal neuralgia
50 mgs amitriptyline