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Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 10/24/2009 12:20 PM (GMT -7)   
Does anyone ever wake up with pain in a different spot as if the pain just relocated?
I woke up today with terrible pain/tightness in my right calf.

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/24/2009 6:37 PM (GMT -7)   
wake up pain. yes. And yes, it moves around or is all over. It is also tricky because it tries to convince you to stay in bed because you hurt. But being in bed all night is what is making you hurt so bad. One person on here posted that she feels less pain in the morning on nights she has to get up several times to pee. Only trouble with that is we need our sleep.
Sue

fibrofella
New Member


Date Joined Oct 2008
Total Posts : 3
   Posted 10/24/2009 8:54 PM (GMT -7)   
Oh how well I know about wake up pain,whether I fall asleep in my armchair or in bed,this pain,usually across my shoulders,it is what wakes me up.I have developed the habit at bedtime of first dozing off in my very comfortable armchair,then about three or so hours later the pain wakes me.This could be abuot 3am and I then make a cuppa,go to my computer and surf for about an hour by which time the pain has eased.Then its off to bed for another 3 hours or so and again wake due to pain.Aah what a"friend"we have in Fibro,faithfully keeping us company day in and day out.Btw,feel free to substitute your own word for friend,I'm sure you can think of a few unprintable ones.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/24/2009 9:55 PM (GMT -7)   
Oh YES! It's like a guessing game each night when you go to bed. Hmmm, I wonder where the screaming pain will be when I wake up this time??? rolleyes sad It's one of those wonders of Fibro...you are always wondering where it will be, how bad can it get before you get some relief, or wondering what it was like before fibro.

But, hard as it is to try to look on the bright side of life... it's not life threatening. Yes, it totally changes your life but with good medical support we can make a good life for ourselves. And with the understanding and compassion that abounds in this Fibro Family we all know that whenever we need someone to hold us up or just listen to us when we are miserable, that goal of a good life is much easier to accomplish. Nope, it's not easy to know where the pain will be when you wake up, but one thing you can always count on is we will be here to help you and each other through the pain. Mine has been awful in my ribs, neck and shoulders the past few days so may I join you?

Oh, keep that leg nice and warm and use a heat pack if you have one, or a heating pad. Warm muscles most always hurt less.

And...FIBROFELLA! Hi and Welcome to the family. I'd like to invite you to start a new sugject and introduce yourself to the family if you would, please. That way others will be able to greet you and especially some of the other guys. We don't have many men so we are mighty happy when one comes to join us. If you need any help maneuvering around the forum just speak up. And btw, I'm an armchair sleeper too. Some nights I spend the entire night in my recliner, other times only the last hour or so in the morning... but I've spent a lot of hours in that over stuffed buddy...and no, I'm not talking about my hubby...lol

Take care!
Chutzie
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 10/24/2009 10:43 PM (GMT -7)   
Thank you for the replies.I also was wondering if when people have trouble sleeping at night, is it ever because you feel wide awake,not tired enough to go to sleep? I know all too well about trying to sleep when you can't get comfortable, because of the body aches.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/24/2009 11:03 PM (GMT -7)   
Hi again...

I'm not sure what causes this in people with fibromyalgia, but it's just part of the disorder. Sleep disturbance and interrupted sleep patterns...all about the same stuff. I suppose if there was an answer to why this happens to us then there just might be hope for a cure. But as of now it's all still a deep mystery.

From what I've read and experienced, the trouble with sleeping is rarely from not being tired but some of us can't fall asleep while others have more problems staying asleep...the latter being the most common. It's the disturbed sleep pattern that gives us so much trouble. During sleep our bodies heal and rest but we have to stay asleep long enough to get the deep sleep for the restoration to happen. If we only sleep for 3-4 hours and then wake up our bodies didn't have enough time to refresh and restore us. Some wake up from the pain while others don't know why they wake up. I wake several times a night. Sometimes I will be awake for a couple of hours and I have no idea why. But if I were to sleep more than 3-4 hours the pain when I get up is so much worse that it's not worth the extra sleep. That's why I declined the Ambien my doc suggested. Imagine the pain from laying in bed for 8 hours when 3-4 hours of sleep and I can barely get out of bed and move.

Hope this clears up some of your question.

Chutz
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)


Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 10/24/2009 11:42 PM (GMT -7)   
Thanks Chutz, for your response! Have you ever injured/sprained an ankle or something,like stub your toe,where it didn't heal for over the ususal amount of time? I sprained my ankle in early September and after all these weeks,the pain just changed locations on my foot until it finally left this week! When I "stepped" on my foot the wrong way,whatever that means!,it hurt for a couple of minutes. But it didn't become a real pain for another few days. I'm just trying to make some sense out of things that are happening. This is still kind of new to me.I occasionally lose my balance when walking. My fingernails/toenails have become ridged and kind of bumpy. Do you know anyone who has extremely sensivite skin?

Sometimes when I'm reading the skin under my eyeglasses starts to burn,where I have to take them off! My eyes feel irritated ,then I rub them and it feels like there are tiny sand particles there. And of course the "hot flashes" don't help either! I really believe if men suffered from a hormonal dysregulation,the episodes would have a definate clinical name... thanks for listening.!

SadSickTired
Regular Member


Date Joined May 2009
Total Posts : 99
   Posted 10/25/2009 2:37 AM (GMT -7)   
Hey Spicey!
     I have the fingernail and sensitive skin stuff.  It got worse when I went on Neurontin for the Fibro.  I also get the eye thing and I can tell you- don't rub it!  It took me many a swollen irritated eye to figure out that there wasn't actually anything in my eye!  Now when it happens I actually just close my eye and relax (sometimes it takes a while) and it does go away.  Also for the nail thing I get manicures and pedicures often!  It gives me some time to be pampered and relax.  It helps me feel normal (whatever that is!) and pretty!  Its my new thing and I really like it!  Living with Fibro is something I am still learning- most days I am not so good at it- but this place and these people give me great role models and friends to help me along the path to whatever normal may become for me.  Come here often and don't be afraid to share.  It has helped me get to this point and hopefully farther.  Good luck and keep the faith.
Thanks!
   Trish
 
Dx'd with Fibromyalgia, High Blood Pressure, TMJ & Migraines
Meds & Supplements are Vicodin (as needed), Neurontin (300mgs 2/day), Cymbalta (60/day), Atenelol (50 mg/day) Biotin (5,000mcgs/day) & Yasmin (continuously).  Oh and a LOVELY retainer for the TMJ! 
 


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/25/2009 8:28 PM (GMT -7)   
I sprained my thumb and it took foooorrrrreeeevvveer to heal. I didn't go to the doctor, so of course, that is probably part of the problem. Some foot injuries take a long time. My friend broke her foot and it took several weeks to heal. The doc said it was not her age or any other reason except the location of the break.
Sue

Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 10/25/2009 8:58 PM (GMT -7)   
I know what you mean,I said the same thing about not going to the doctor.
But, really what is he going to do? Tell me to apply ice...blah..blah..blah.
And what is it about kids when they are as active as they are and bump
or sprain something,it goes away in a few days!

jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 10/26/2009 5:40 PM (GMT -7)   
Sleep - sigh, I remember that! I am hoping that now that I have a diagnosis this new med (elavil) will help me sleep better. Some nights, for me, it was the pain or just general discomfort and stiffness that kept me awake. It seemed that no matter how I lay, I was pulling something. Either my neck was being strained, or a shoulder seemed out of joint, then my legs. Other nights it was the restless legs - not just a twitch, they were leaping off the bed. Other nights I seemed comfy enough, but my brain would not settle down. And no matter how long it took to get to sleep, the nighttime trips to the bathroom would get me up twice a night too. On a few occasions, I would be half asleep and realize that I had a terrible pain in my shoulder area. It felt just like my bra strap was digging into me way too much, so I would try to loosen it before realizing I wasn't wearing one. Many times, I will be comfy, and a random muscle will start aching really bad for no reason for about one minute, then it just goes away. I don't get it at all. Yesterday, for no reason, the arch in my left foot started hurting really bad, like I hurt it somehow, and as I was limping around for a few hours I though to myself "How many days will it take for this to heal?" and about an hour later I realized it had just disappeared.
As for the fingernail stuff, I do have ridges in mine, and they are pretty hard. But I also have splinter hemmorhages in them. Does anyone else get this?
fibromyalgia, microscopic colitis, restless legs, polycystic ovarian syndrome.


tjbab4
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/26/2009 9:13 PM (GMT -7)   
I wake up with pain every morning. It never seems to amaze me when it pops up somewhere new. It can be crazy places, like the veins in my hands up to my elbow or the joints by the glands in my neck. I totally feel for you. You are not crazy.

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/26/2009 9:52 PM (GMT -7)   
That's funny.  My fingertips hurt today for no good reason, except maybe fibro.  They hurt all day while I typed. 
 

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 10/27/2009 5:38 PM (GMT -7)   
Spicey and others,
   I don't know if this will help you but it does wonders for me. My waterbed was the godsend but it ruptured
last winter and ever  since I've had an air mattress (don't like it). Over the mattress I use an electric blanket
for the heat that I'm missing from the waterbed. It doesn't get as warm as my bed used to so I wear
(gasp) winter PJ's along with it. I've found from experience that the heat under you is absorbed by the
body while you sleep and it makes for better sleep. Hope to be able to afford a new mattress before
winter sets in as I've had the bed since 87.
           Nana Monster

corky21
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 10/28/2009 9:41 AM (GMT -7)   
I'm new to this board and I've not been diagnosed with fibro, but I believe I have it. I've had pain issues now for several years. I can't walk or stand for very long before my low back/hips and legs ache as if I was walking 50 miles. That is the main one.

As for the sleep part of this thread I believe that everyone suffering from fibro has weak adrenals. Weak adrenals are what cause a person to not be able to fall asleep at night, or wake up around 3 and have trouble falling back. The weak adrenals also make you feel tired when you wake up even if you have slept pretty well.

The adrenals will get weak when there is stress in the body, hence the fibro. Also many fibro sufferers are found to have a thyroid hormone resistance and conversion problem. I found out 4 months ago I had high Reverse T3 so my body wasn't converting my thyroid hormone properly. THis can can happen from low cortisol or high cortisol or because of stress in the body, hence the fibro again. I have been taking Cytomel for the last 5 months and I have to say some pains are much better and I do sleep most nights. I also have to take Cortef for the adrenals but in low doses to help with the thyroid hormone.

For those of you having trouble sleeping, have your doctor check your cortisol levels, saliva tests seem to be the most valid.
And in the meantime, take a lot of Vitamin C as that is what makes up a lot of the adrenal glands. You can also try OTC adrenal support herbs like licorice, american ginseng, and adrenal cortex extracts.

And check you Reverse T3 as well. If it's high, taking Cytomel will decrease it. Also, I've read on some other boards where people with fibro pain got almost 100% relief when taking adequate Cortef and thyroid hormone.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 10/28/2009 11:37 AM (GMT -7)   
Hi Corky,
    I've had the problems with thyroid, my T7 was off so they put me on synthriod. I gained 26 pounds in 2
weeks.....reverse polarity!!!! I even tried herbal thyroid stuff and started gaining weight on it so I chucked
that too. I'm looking for an herbal birth control and so far haven't found it. I was on birth control many years
ago and lost 75 pounds on it. Again, reverse polarity. To this day I wonder if that is why my Mom weighed so
much....she was 350 and didn't eat much. She was on thyriod meds.
   Nana Monster

corky21
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 10/28/2009 2:24 PM (GMT -7)   
If you gained that much that fast on synthroid, it's most likely that you don't convert the T4. You need T3 or Cytomel with it, or Armour or Natural Thyroid.
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