Hi, Debbi, and welcome! It is so hard when our children are sick. I'm glad your family is being this thorough about this. Fibromyalgia has many of the same symptoms as other illnesses and doctors need to rule out the other illnesses before fibro is diagnosed. Also, you can have several of these illnesses at the same time. Your granddaughter could have fibromyalgia and lupus. We do have several members with both.
Be sure to check out the Fibro 101 thread...the first thread on the forum. There are links to good information about fibro and you can learn a lot there. Especially check out the link called What else could it be. You will see why it's difficult to diagnose these illnesses. Many are similar.
Exercise is good for both lupus and fibromyalgia. Here is a link from the Lupus Foundation of America that states that. But, it does look like she should watch how much exposure to sunlight she should get. Here is the link.
In the Fibro 101 thread you will find some good stretching exercises that really do help with pain. Also, gentle exercises are good, too. I walk and swim as my exercise. Many times I will hurt but, as soon as I start moving and exercising, the pain will lessen. If you sit or lay too much with fibro, you will be stiff as a board. That's why we are so stiff upon waking up in the morning...at least most of us are.
I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 to help with pain and fatigue. Many with fibro are deficient in these vitamins and nutrients. There are links about them in the Fibro 101 thread and it also shows how they work in the body. Since your granddaughter needs to stay out of a lot of sunlight, she probably is deficient in Vitamin D3. A simple blood test can tell you.
I hope gentle exercises help your granddaughter. I know they help me a lot. When I started walking, I could only go about four houses down and had to come back. Now, I start my day by walking my dog a least a mile before breakfast. Some days I don't feel like doing it but I always feel much better by the time I get back home. Also, she should learn to pace herself. She can still do much of what she did before fibro but she can't do it in the same time frame.
Perhaps your granddaughter would like to come on this forum and ask questions and we could help her out. We have had teenagers in the past that ended up doing quite nicely once they found what meds helped them control the pain and we always have helpful hints.
Lastly, tell your granddaughter to keep a positive attitude towards life. It's not fair what life has dished out to her...especially at this young age....but looking forward to each new day with hope and anticipation sure beats worrying and being miserable and thinking about illness all of the time. With help with her medications and learning how to work around these illnesses, she will have a full and enjoyable life in spite of her health. I know I have! Please let us know how things go for her. We really do care.
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Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7