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sunset34
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 10/25/2009 1:14 AM (GMT -7)   
Hi all,
Wondering if anyone can help me with some advice. I haven't logged on since a long time. Basically i started taking Lyrica 150 back in April i had alot of ups and downs,then in August i started physiothearpy twice a week and in September i went up to 200 on Lyrica as i was getting symptoms back. I have spent most of the last 3 weeks in bed and feel so low, Lyrica stopped working either after i had a chest infection or when i started hormone tablets to regulate period problems. The pain has been chronic my neck all the way up my head, the muscle pain,lose of feelings in legs,thighs,arms you know what its like-and the lose of memory frightening. I seen my nurologist thursday he told me to stop lyrica ebruptly and take cymbalta---i took one cymbalta friday morning and i was really unwell after a few hours, and yesterday saturday i had the worst migraine vomiting, i am soooo low i feel like i have hit rock bottom again and am now on no medication and afraid to take anything....did anyone else ever have problems with the medications? i am having cold sweats non stop and when i try to sleep i can't with pains mostly up my head and the sweats....
Does anyone not take any medication at all? and how do you deal with it? because i am fed up of pumping non stop crap into my body.Does anyone have anything they would recommend---ANY advice is welcomed!!!
I am waiting to see a rhumatologist and hoping he can sort me out once and for all but i don't think so confused
Thanking you in advance

yankee girl
Regular Member


Date Joined Nov 2008
Total Posts : 125
   Posted 10/25/2009 7:47 AM (GMT -7)   
Hi Sunset,

I'm so sorry that you're in such misery. I had horrible side effects with both Lyrica and Cymbalta--nausea, dizziness, that "unwell" feeling. Can you call your neurologist and tell him the Cymbalta made you sick, and can he prescribe something else?

I currently take Roxicodone for an unrelated injury. Obviously it helps my fibro pain. If I didn't have the roxi's, I don't know what I would do for the fibro since for me, NOTHING touches the fibro pain.

Have you tried any muscle relaxers, and are you able to exercise a bit?

wishing you the best.

Yankee girl
 severe nerve damage/several surgeries on wrist, TMJ--have titanium disks, PTSD, fibro
 
roxicodone, xanax
 


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 10/25/2009 7:58 AM (GMT -7)   

All I can say is I wish these doctors that think it is perfectly fine to stop SSRI's, Lyrica, Savella etc. cold turkey and start something else without any wean should try it themselves and see if they can drag themselves to work..sleep...move their head or eyes without getting zapped...I know you went from Lyrica to Cymbalta which are in somewhat the same drug class, but many people still will have a reaction to the change.  My Doctor told me that I was on such a small dose of Lexapro (10 mg) that I shouldn't have any withdrawals.  I weaned slowly anyway and after a month of being completely off, I am still having symptoms.  Never ever again.

Many people take Malic Acid/Magnesium, Ibruprofen alternating with Tylenol for pain and this combination makes it bearable.  Also mosit heat and hot baths.  Fibro pain is different for everyone and what works for one person may do nothing for someone else.  Sorry you are feeling so badly and your frustration is valid as many of us have gone through the trial and error method.  I hope your rheumy can help you.

Donna

 

 


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 10/25/2009 2:59 PM (GMT -7)   

Hi, Sunset.  I'm sorry you are having such a rough time right now but things will get better for you.  We have heard over and over again about Lyrica stopping being effective after a while.  That doesn't happen with everyone but it has happened with many so  you are not alone there.  Also, many have stopped Lyrica because of side affects too.  You need to keep trying meds until you find what works best for you.

I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 to help control my pain and fatigue...just like Donna said.  There are links about these in the Fibro 101 thread.  If you never read that thread, this would be a good time to do that.  You will learn a lot.  It's the first thread on the forum.

Also, you do need to keep moving with fibro.  If you sit or lay too long, you will be stiff as a board.  When your muscles hurt, it's tempting to lay still and not move.  Well, that's about the worst thing you can do.  There are some good gentle stretching exercises that help and you also need to do some gentle exercises.  I walk and swim.  When I started out walking, I couldn't go very far but now I walk a mile every morning before breakfast.  Many times I don't feel like walking but I make myself and I always feel better by the time I get home.

Moist heat is good for fibro.  Hot showers and baths feel wonderful.  Get a Bed Buddy.  You can find these at Walgreen's and other places or you can make one by taking a tube sock, filling it 2/3's full of long grained rice, and tying a knot at the end.  Pop it in the microwave and it gives off moist heat and feels great on those muscles.

Also, pace yourself.  You can do much of what you used to but not in the same time frame.  Do a little and stop for a few minutes and move on. 

Lastly, try to think more positively.  You are so down right now, and I don't blame you.  But, try to look forward to each day with hope and anticipation.  Focus of something besides how you feel and the pain seems to fade some in the background.  Set a small goal for tomorrow and accomplish it.  You will be surprised how great that will make you feel!  A positive attitude does help with pain and, when the pain lessens, your depression will get better, which will let you count your blessings and look forward positively...and on and on.  I think you've gotten the message.

I do hope you start to feel better soon.  Let us know how you are doing because we really do care.  Hope to hear more from  you soon.

Sherrine



Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Wishst
Regular Member


Date Joined Feb 2007
Total Posts : 55
   Posted 10/25/2009 3:06 PM (GMT -7)   
Hi Sunset,
Sorry you're feeling so bad, medications can play such tricks on us! I'm so sensative to meds, I get so scared whenever I have to try something new. I've never taken Lyrica, but I did have Nerontin prescribed before which is in the same drug family. My doc started me off on a very small dose, I took it at night and the next morning woke up with stroke symptoms, couldnt talk, my speech was slurred, I guess I felt like I was high from what I described and all my reflexes were off, they thought I had a stroke and didnt believe that the small dose I took would have caused all those symptoms, but it turns out it did! I was on Paxil and was switched over to Cymbalta cold turkey and although I did feel a little nausea I didnt really notice much, but I also have chronic depression and again, I was started out on the Cymbalta on 30mg. I wanted to go back to my Paxil, I started feeling the depression coming back with Cymbalta and the pain was the worst it ever was, but my doc had me try 60mg of Cymbalta, I did with much opposition, then a miricle happened! My pain was very well controled, I had a pain free summer, and my depression got better. I'm still on the 60mg of Cymbalta, but I know a lot of people have had trouble, it's all very individualized, so just watch yourself, but sometimes we have to give things a few days before the bothersome side effects go away then again with others the side effects are really bad! Good luck with everything and keep your doc up to date!
Gentle Blessings
Deb
_____________________________________________________________________________________
 
fibro, diabetes, neropathy, depression, IBS, chronic anemia, hypothyroidism, chronic fatigue, sleep apnea
 
 


sunset34
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 10/26/2009 1:13 AM (GMT -7)   
Thank you all for your kind and helpful messages and its great to have people that understand and have been down the same road. I started to feel a little bit bette last night in the sense i could eat and head wasn't as dizzy,luckily it is the school holidays so i don't have be rushing out and preparing my courses. But you know when you have kids its not easy to mind them and be so unwell. Yes i went from 400mg of Lyrica to 60mg of cymbalta so off course there was going to be a side effect i don't know what my nurologist was thinking about ,i questioned him when he told me as i found it strange seen as when i started Lyrica i had to gradually up my dose everyweek. My sleep is really upset these days with pain and everyday a new hurrendous pain to start the day and only you guys can understand that---i do feel like other people just think i am a hyprocondriact!
I am going to ring my nurologist now,then my physiotherapist and get my life back in gear today. I will keep you posted on what i decide to do medicine wise.
Thank you so much again
Kindest regards
Patricia

merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 10/26/2009 8:45 AM (GMT -7)   
did you take antibiotics for chest infection? have you ever been tested for Lyme disease??

what you describe sounds like a herxheimer reaction. basically what happens is the lyme bacteria die as the antibiotics starts to work and release toxins making you feel really bad.


i know this is a shot in the dark but that is what first came to mind, but I have lyme too...

hope you feel better soon
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Jokat
Regular Member


Date Joined Feb 2008
Total Posts : 278
   Posted 10/26/2009 10:25 AM (GMT -7)   
Google Cymbalta withdrawal! You will never want to stop taking it, not because it works, but because of fear of the withdrawals. I tried quitting Cymbalta and it was not fun. I started taking it again so I would not have to miss work.
 
I do not know that Cymbalta or Lyrica work for the pain. I took Lyrica for a while and quit cold turkey because it was making my fog worse....
JoKat
 
Our attitude towards life determines life's attitude towards us. {Earl Nightingale} 
Fibro since 2005


tjbab4
New Member


Date Joined Oct 2009
Total Posts : 8
   Posted 10/26/2009 8:43 PM (GMT -7)   
Sunset ,
I took lyrica for 6 months about a year and a half ago. I thought it worked in the beginning, then it seemed to stop and it made all my symptoms worse and new ones appear. I could not wait to get the drug out of my system. It works for some and then theres those of us it wrecked havoc on. I would just be careful on it. Talk to your Dr.
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