fibro/auto-immune

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myjoy
Veteran Member


Date Joined Feb 2009
Total Posts : 686
   Posted 10/26/2009 2:11 PM (GMT -7)   
A friend of mine, who is a nurse, just went to a conference on fibromyalgia. She said, when muscle biopsies are done on fibro patients, the cells are inflamed, and look very strange compared to normal muscles. Also, she said it's starting to look like fibro is possibly an auto-immune disease. This surprised me....but one never knows, with all the research going on.

Anyway, she said she learned a whole lot about fibro, and I was very happy to see that a hospital sending their staff to this conference. The woman who did the conference has a daughter with fibro who has suffered terribly. My friend is going to be telling me more on this conference.

What do you think of this?
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 10/26/2009 2:29 PM (GMT -7)   
My Joy, I've always wondered about that too, since ibuprofen has helped me so much and that is for inflammation.  Plus, nearly all of my health issues are auto immune...even my hearing loss.  But, right now, doctors still maintain that fibro is not an auto immune problem. 
 
The good news it that they are finally looking and trying to find answers.  You never know when they will hit on the key to fibro!
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 10/26/2009 3:52 PM (GMT -7)   

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 10/26/2009 4:24 PM (GMT -7)   
I was pretty sure Fibro was connected to autoimmune disorders. It makes sense, given my family's medical history.

teenatoons1
Regular Member


Date Joined Aug 2006
Total Posts : 44
   Posted 10/26/2009 11:06 PM (GMT -7)   
I have often wondered if it is auto immune related. I also have been diagnosed with Crohn's disease, which is also an auto-immune disease. My father has Guillain Barre Syndrome, the cronic one. He has suffered from Guillain Barre since 1988. My Fibro came out after I had a work injury of the neck and upper back. It wasn't healing, like it should have. My Nurse Practioner asked me if I have sore spots on my legs. I told her no, so she asked if she could test them. When she lightly squeezed just above my knees, I jerked from the pain. She told me I ought to talk to my regular physician about it. He read my (extensively thick) file, and said he wasn't going to waste money or time sending me to a specialist, I had all of the symptoms. He gave me lyrica. Right around that same time, I had come to him because my neck was hurting so bad, but I wasn't sure it was from the injury. He realized I was so sleep deprived, that I was nodding my head, and didn't even know it. My neck hurt so bad, because My muscles , and my body, were exhausted from lack of sleep. He gave me provigil to make it through the day, but I hate to take it, because it is a Narcotic. My mother's mother had Polymyalgia, and colitis, and my mother's father had Crohn's disease, so I am guessing my auto immune came from mom's side of the family, but knowing my father has an auto-immune disease, I am worried about passing it on to my child. I have even held off on the flu vaccines and H1N1 vaccine. I asked my doctor if I should or should not give my son the shots. He could not give me a straight answer. I asked a pharmacist, she could not give me a straight answer either. I looked up the shots on the internet, and I did not get a straight answer from the manufacturers either. Since the Fibro seems to be a nerve disease, and Guillain Barre seems to be a nerve disease, and both are possibley related to the auto-immune categories, it is just a little scarry!.

MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 10/27/2009 8:09 AM (GMT -7)   
Everything I have is autoimmune related. I would not be surprised at all if and when it is noted that FM is autoimmune too.

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 10/27/2009 8:50 AM (GMT -7)   
I also come from an auto immune family.  I would not be surprised if they find a connection some day.

Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 10/27/2009 10:17 AM (GMT -7)   

It's a mystery.  My ANA's always come back normal...which are supposed to indicate auto immune disorders.  But I have noticed on other Health Forums they list fibro  in the Auto Immune catagories.  Who knows?

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 10/27/2009 8:54 PM (GMT -7)   
Myjoy,
Can you find out the name of the conference and even the location? I would like to look at the presentation submissions. I have only had experience with legitimate conferences. And in those, the submissions are screened and only good research is accepted. But there could be outdated ones out there as well.
Thanks,
Sue
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