Does it get better?

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Regular Member

Date Joined Oct 2009
Total Posts : 52
   Posted 10/26/2009 10:48 PM (GMT -6)   
Hi everyone my name is Laura.
My fibro flared up this past summer. I was living out of state working full time and going to school. Then the fibro hit me hard, I ended up moving back move with my parents unable to work, go to school, or even walk. I have been trying to meds but the side affects are too much for me. I know that that is common with fibro. I'm just having such a hard time dealing with the pain. I can't do much because everything hurts. I'm only 20 years old and I don't know if I'm ever going to be able to live. I was wondering how you all keep such a good out look and what your life's are like? What are you able to do? What types of careers?

Fibromyalgia, Chronic fatigue, Chronic low back pain, TMJ, VCD, Depression, Acid reflux, Sleeping issues...You know....

Regular Member

Date Joined Oct 2008
Total Posts : 111
   Posted 10/26/2009 11:11 PM (GMT -6)   
Hi Laura, and welcome to the forum!

I'm 21 years old and have gone through a lot of conflicts between college and fibromyalgia, too. My fibro was much, MUCH worse in the first year, which was the end of my freshman year and the beginning of my sophomore year. Well, I should phrase it differently. It was much more acute then, I had days where I was fine and days where I thought I was dying, and not much in between. There were days I literally could not get out of bed. I wore wrist braces constantly, which made a lot of people ask questions. It was incredibly hard before I knew what was wrong with me.

After I was diagnosed in spring of my sophomore year (2008), I began talking to my classmates about what is wrong with me, which helped me feel less awkward. I had to get a rolling backpack because I can't carry anything, and I had to learn where the elevators on campus are to avoid the stairs. I also began taking a laptop to class so I didn't have to wear the wrist braces, which I mostly needed for writing notes. Typing is much easier for me.

I withdrew in Fall 2008, the first semester of my junior year, but returned this past spring. Over time my fibro has become less intense. Instead of coming and going at extremes, it is constantly at a mid-level pain. I started taking Savella and miraculously did not have a bad reaction to it after my body acclimated, and that helps, mostly by preventing flares. It doesn't help my day-to-day very much. I'm still in school and hoping to graduate on time next spring.

So my answer is that yes, it did get better for me, even before I started Savella. I can't promise that this will happen for you, or for anyone else with fibromyalgia. I also don't know for sure that the difficulties that made me leave school for a time are 100% from the fibro because I also suffered a concussion in January 2008 and had Post-Concussive Syndrome for a year afterwards.

It's still hard for me, as I think it is for most young people, to deal with having FMS. Psychologically speaking, I have good days and bad days still. It's important to accept your limitations, but it will happen for you in your own time. I fear every day that I will not be able to pursue my dreams of graduate school and then a career as an archaeologist. But I try to be optimistic and hope for the best, always. I know that I can do a lot of things if I just have help, and I focus on what I can do, no matter what the necessary conditions are, instead of on what I can't. As far as my future career goes, I fortunately have an interest in archaeological lab work, while most archaeologists prefer fieldwork. Lab work would allow me to be out of the sun and do a lot less hard labor and be able to sit when I need to. Also, archaeology is what I love and it is easier to manage my pain when I am doing what I love.

I hope you can find what you love and that you learn how to use your body the way it is now. It will never help you to agonize over what you used to be able to do and how easy it was to do things that are now difficult or impossible. Try to do things in different ways, you might be surprised at what you can do if you just do it a little differently from healthy people.

Diagnosed with fibromyalgia February 2008, dysthymia January 2009.
Savella, Vitamin D supplements
Provigil and Temazepam when I need them.

New Member

Date Joined Oct 2009
Total Posts : 8
   Posted 10/26/2009 11:29 PM (GMT -6)   
turn Laura, I'm sorry that at 20 yrs old you have to go through this. I have gone through allot of Medications to be able to find something that works for the worst of it. I have just started getting trigger point injections in my worst areas (back, neck, and shoulders). As well as a Cervical epidural injection. This has given me some relief from the pain. See a Pain Management Doctor for more info. I found it helpful to find a medication that helps me get some sleep at night. When I am sleep deprived everything is 10 times worse. You have to try to push yourself to walk. I know it is hard trust me. You have to try to stay mobile. I know sometimes that is not possible, but try to push through it. You have to weigh the medication side effects against the problem they are treating. Which is worse. Typically the side effect will go away after a while. But it sucks waiting for that to happen. Are there any Fibro Clinics in your area? They seem to get it more than regular M.D's do. I take Deseryl at night, as well as Xanax. The combo helps me get some rest. Unfortunately its all trial and error with finding the right meds. Don't give up, your worth it. Some people go into remission with this so don't give up hope.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 10/26/2009 11:55 PM (GMT -6)   
Hello Laura!

I too am sorry you had a need to join us, but at least you are here with people who truly understand and care about you. Plus we all share our experiences of what works and what doesn't, ideas for reducing pain, even a good chocolate recipe now and

Your one comment really touched my heart.. "I'm only 20 years old and I don't know if I'm ever going to be able to live." All of us are living proof that YES, you can live and have a wonderful and satisfying life too...complete with spouse, job, kids and grandkids. Now don't get me wrong being wonder woman any more or maybe just being 'normal', whatever that is. But we do most of what anyone else does, it's just we have to work in concert with a good doctor and plan well what we do.

I was teaching at a local community college until just over a year ago when doc said it's time I quit. But I'm wayyyy older than you and have many other conditions going on at the same time. Very different for me, but you will slowly see that there are sadly many people in your age bracket in the family here. Sure you read posts of them being miserable, having problems and feeling very down, but what most of us forget to share are the fun and 'normal' things we do every day.

So what is MY life like? I live with hubby in a very rural wooded area of Washington state. ;-) Grandson, who is almost your age, lives with us and goes to college...Green River CC. We have kids and other grandchildren we see often so our lives are busy and full. Oh, what about the pain thing?? Ya, it about makes me crazy some times. And I'm not so fond of the pills, but without something for pain I would have no life at all so my awesome doctor and I work together to keep me as comfortable as reasonable and still be able to live normally. I can even drive with the regime I'm on but it took a long time to get here. If you do want to take medications that your doc is suggesting then ask about taking a much smaller dose. This is YOUR body those pills are going in to so you get to choose. Sometimes we forget that we do have a choice. One medication that is often helpful with fibro pain are antidepressants. Most of them leave me a zombie and I'm not about to live that way. So we found one could tolerate at very small doses. Sheesh, I can just lick the inside of the lid and get a full dose for

This is a 'do-it-yourself' disorder. We get help from our medical team but other than that we're on our own. We have to find out what works for us and every one will have a different story. This fibro is miserable but no way will I let it get the better of ME! How about you??? Want to travel with us down the road to living a good life? Here, take my hand <extending hand> and let's get moving...slowly if you don't mind. My legs are hurting right now. ;-)

Warm hugs,
Children will not remember you for the material things you provided but for the feeling that you cherished them.
Richard L. Evans

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums

Regular Member

Date Joined Oct 2009
Total Posts : 52
   Posted 10/27/2009 1:23 AM (GMT -6)   
Thank you all, I feel much better already. You all work better then my antidepressant! For now I think I need to work on finding a GOOD doctor. That was a great hint about fibro clinics who knew?(who's holding out?)lol. Take baby steps and wait before stressing out about school. I have a sleep study schudled, I praying for some answers. As for Chutzie..... You are to much lol. You are soo sweet! I'm glad we have you as a co-moderator. Maybe it's a Washington thing, as I am from Lynnwood. Watch out for team WA! W00t W00t!

Regular Member

Date Joined Aug 2009
Total Posts : 159
   Posted 10/27/2009 2:55 PM (GMT -6)   

Dear LVangel,

Welcome to the group!  I'm really glad some of our members cheered you up.  I too am on Team Washington.  In the SW.  You will find our members in every state and around the world, I imagine.  I'm sorry you have to deal with this DD at such a young age---I'm in the mom, grandma, great-grandma catagory myself but I've had it since my mid-20's.  So, as Chutzie said, life does go on and it is definitly what we MAKE it.  Believe me, some days are harder than others to get your good face on and your good attitude going., but it is not impossible to do.

Keep on keepin' on (KOKO) girl.


Forum Moderator

Date Joined Apr 2005
Total Posts : 17061
   Posted 10/27/2009 4:15 PM (GMT -6)   
Hi, Laura, and welcome!  As you have already found out, we have wonderful members here that love to help one another and we really do care about eact other, too.  I know you will like it here.
I have lived a full and enjoyable life with fibro.  I've had it 22 years.  I was 40 when it hit me while watching television!  Everything hurt except my ear lobes.  I wasn't sure how I was going to handle this, since I had three children at home to take care of.  But, after trial and error, I found what medications worked for me.  I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements, and vitamin D3 for my pain and fatigue. 
Be sure to check out the Fibro 101 thread...the first thread on the forum.  There are links to great info about fibro and you will learn a lot there.  There are links about malic acid/magnesium supplements and vitamin D3 and how they work in our bodies.  Many with fibro are deficient in these vitamins and nutrients.
You do need to keep moving with fibro or you will be stiff as a board.  There are some gentle stretching exercises in Fibro 101 that really do help.  Also, find a gentle exercise that you will do.  I walk and swim.  When I started walking I could only go about four houses down and have to turn around.  But now I walk my dog a least a mile every morning before breakfast.  Exercise does help with pain and also depression.
Once you get moving and find what helps you control your pain, you will be doing much better.  Also, keep a positive attitude.  That really does help a lot.  Focus on things you like to do and the pain does fade in the background.  And, a good sense of humor really helps with fibro fog!
I'm so glad that you found us and joined our fibro family.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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