Hi, I'm new here, intro and ? have you found a shock will cause a flair up?

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SEObyCanz
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/3/2009 10:38 AM (GMT -7)   
Hi, My name is Lynn, I'm from New Zealand, but am now living San Diego. I'm dyslexic so forgive the spelling errors especially where I use a correct word, but it's not the right word for the sentence.

I work from home, doing a thing called SEO, which is making websites do better in search engines, or rank highly in search engines.... because of my fibro, I work from a lazy-boy chair with a laptop on a pillow and spend no less than 12 hours a day, often at least 16-20 hours a day at my computer.

I'm new to this forum, but not new to Fibro I've been diagnosed for about 15 years and probably had fibro for about 17 years at least.

When I first was diagnosed my whole world seemed to crash in, while at the same time it was a relief to find out something was wrong and it wasn't "attention seeking" or "all in my mind"

My best advice is don't let fibro become who you are, I have fibro, just like I have brown hair and hazel eyes, it's part of my make-up, it isn't going away. Please don't think I'm being flippant, but seriously the more you let fibro control your life the more it will control your life. Find out for you what causes a flare-up and avoid, if you can those situations.

I became obsessed with fibro, wanted to know all the symptoms, then waited for the symptoms I didn't have to appear, stalked forums like this when I got a computer, and read and hung on to all the bad, sad and terrible posts....

My, then 8 year old daughter talking to her friend gave me a break-through. My daughter told her friend,

oh, I help my mother, cause she's gets sick all the time, like when she goes shopping for food and stuff, if she goes down the smelly aisle (the aisle with cleaners and chemicals) she gets crippled up and can't even walk to the car, but if I go and get stuff out of the smelly aisle, she doesn't hurt so much...

Over the coming weeks I found that my daughter was quite correct, I did react badly to smells, after turning off the plugin air freshener, just doing that thing alone, my constant pain levels decreased massively, then getting rid of anything in the house that smelled, mainly cleaners that had a strong smell, and starting to use baking soda and vinegar as a cleaner, baking soda as a deodorant, both for person deodorant and smells around the house. And of course avoiding smells outside the house like the smelly aisle at the supermarket by seemingly constant pain diminished drastically.

The downside I suppose you could say was that when I was exposed to strong smell's I seemed to have a stronger reaction. But those flare-up were further apart, and easier to cope with because I often knew or could think back to what had caused them. I also knew that the flare-up would be over in a couple of days if not sooner. If the smell was in a restroom, where they use some smelly thing rather than cleaning the restroom properly then the flare-up although bad would be over within 3 or 4 hours.... knowing for sure the pain would end was a break-through.

Over the years, I've found that practically anything that shocks the senses, like loud music.... which I used to love, bright lights or strong sunshine, strong tastes, getting a fright from something, anything that is a shock will cause a flare-up.

I live a quiet, chemical free life now, and find that for the most part, my flare-ups are a thing of the past.

I thought it was time to come back to a forum like this and give newly diagnosed fibro suffers some light at the end of the tunnel

But to the people that have had fibro for a while, have you found that a shock of some kind, whether it be almost having a car accident or change in the weather, or smelling a strong smell, something that causes a shock to one of the senses will often start a flare-up.

Ok, that's enough for now...
Many thanks to the forum for being here, I hope I can give back something.

Lynny

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 11/3/2009 11:04 AM (GMT -7)   
Welcome.  I am still new myself and have found this a very friendly and knowlegable sight.  Our dog died suddenly a year and a half ago and that was very stressful and a shock and I had a really bad flare up afterward.  If I get under alot of stress I will flare. 

puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 823
   Posted 11/3/2009 11:20 AM (GMT -7)   
Hi Lynn and welcome. 
I think it is wonderful that you can work from home.
Any chemical  or perfumed scents give me a headache and sometimes neck/shoulder pain.  I have always been like this.  Weather changes cause the same thing with additional all over pain.  I feel it's the barometric pressure change.
How smart of your daughter to notice the chemical/pain connection.
Stress also causes flares for me.  I think it affects all of us in one way or another.
I hope you keep visiting with us.  You have a great attitude towards this crazy condition that we all share.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/3/2009 11:29 AM (GMT -7)   

Hi, Lynny, and welcome!  Thank you for taking the time to post this great post.  You are so right when you say "the more you let fibro control your life the more it will control your life."  You do have to become aware of your surrounding and see what causes you problems.  For me it's stress and overdoing that usually causes my flares.  Also, extreme temperatures, whether hot or cold, and high humidity really affect my fibro.  But, as you said, you know the pain will lessen once the flare clears up. 

I hope you will visit us often.  I'm glad you found us and joined our family.  I hope to hear more from you soon.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


SEObyCanz
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/3/2009 12:21 PM (GMT -7)   
Hey thank you for the welcome.

yes I'd like to hang around here, like I said I obsessed on having fibro, and it did me no good at all, now I do mention to doctors and health professionals that I have fibro, but for the most part I just keep away from stress, and live a quite live, and find that works.

I have a lot of things I want to find out about the advances in fibro studies, and where they have got to... in my day, fibro was one of those "Women's Things" like PMT and doctors would just give the impression that it was "Hoo Hum... another thing women have come up with to get attention."

Geeze, I can think of a trillion things that would get more attention than being in constant pain... spare me from idiots....

Lynny

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 11/3/2009 2:25 PM (GMT -7)   
Hi Linny,
 
Welcome to the fibromyalgia forum.  I notice that things that aren't natural bother me.  Though I have been lucky for a long time with my fibro.  No extreem flares in a long time. 
 
I even started a job in June, I am so lucky, my boss that I have now has a friend with fibromyalgia and she understands my condition and works around me.  She lets me have the hours that are best for me and asks me how many hours I want and can handle.  I was worried about the winter coming that I might not be able to work and she said if I can't she would put me on leave of absence until I am able to in spring.  So I feel very fortunate to have my fibro under control (knock on wood).  For now anyhow. 
 
I hope to start my Christmas wreaths for the local animal shelter.  I usually donate about 400.00 worth of wreaths and swags.  I don't know how much I will be able to do with work and all, but I will do what I can.  So I will make sure to let you all know how it is going.
 
I hope that you have a wonderful day Linny.  And again, welcome to the forum.  I have a feeling that you will really like it here.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/3/2009 3:15 PM (GMT -7)   
Lynny, be sure to check out the Fibro 101 thread...the first thread on the forum.  There is a lot of info there and you might see something that helps, also.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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