childhood symptoms?

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Spicey
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Date Joined Mar 2009
Total Posts : 135
   Posted 11/6/2009 11:26 PM (GMT -7)   
i was wondering what your memories of being a kid with funny,strange symptoms or pains were like?
I remember getting pains in my chest when i would be running after my brother and weird aches in my
muscles at times,not all the time. When I think back now,I was sure for a while that i had attention deficit
disorder,because my focus ability was often terrible!

WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 11/6/2009 11:58 PM (GMT -7)   
I remember Fibro-like symptoms as early as high school. before that I was homeschooled and didn't do much running after anything. I was an indoors person. If I'd been more of an outdoors person, the symptoms might have shown up earlier.

kathydownunder
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Date Joined May 2009
Total Posts : 447
   Posted 11/7/2009 12:14 AM (GMT -7)   
I remeber having what they called growing pains in my legs at night so bad I would be crying. Then when my own children came along three of the four had the same thing. Now they all have fibro as well one starting really bad in high school. In fact he was so bad the Doc. gave him a letter excusing him from all sport due to the fms.

Littleneck
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Date Joined Mar 2009
Total Posts : 599
   Posted 11/7/2009 3:12 AM (GMT -7)   
Kathy, I also had excruciating pains in my leg bones and arms that would make me cry at night in my bed. My Mom and the doctor said they were just growing pains, but never believed that. I also have had restless legs all my life.

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/7/2009 8:21 AM (GMT -7)   
My old physiatrist is a leading expert on Fibromyalgia. When I first saw him he had a survey of about 150 questions regarding my son. I do not know if it published or not yet, but he had significant data that suggested babies can now be diagnosed withing 6 weeks of life. I will try to remember some of the symptons. My son had most & my son & I both had terrible "growing pains". My son is 8 & he already has migraines too. Ok so here is what I remember:
-insomnia -my son used to get in bed @ 7 when he was 2, no tv, no music & lie awake all night.

-wanting to take clothes off immediately when returning home

-refusing to wear socks with seams, or other preferences like girls not wanting to wear tights

-skin rashes

-headaches

-"growing pains" or pains in the legs

There are a ton more, a lot that I had never even thought about, but most boys grow out of it when the finish puberty. Those that don't have a really hard time with dx's bc it is thought to b a "woman's disease" & it is socially harder for men that have pain from an "invisible illness".

--hope this helps

Irish Babe
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Date Joined May 2007
Total Posts : 1371
   Posted 11/7/2009 9:32 AM (GMT -7)   

I believe I've had FMS since I was a baby. As I started to read the LIST of symptoms yrs ago, I wanted to cry. These were the things I had been living w/ ALL my life. My family would comment on how different I was from the other children in the family. My sibs all liked to nap during the day and dropped off to sleep at night, before their bedtime. I could never nap and I had the worst time going to sleep at night. I would average about 2-3 hrs a night - and that was just before I would be up for school.

I had/have a hard time staying focused. My teachers would comment how if you only tried harder. I would read and reread everything and sometimes it just didn't make sense. I remember practicing my spelling words w/ my mother all wk long, Thurs night we would go over them again. Come Friday morning, it was if I never even looked at the words. I was told frequently how stupid I was, that certainly helped me to do better. shakehead

I enjoyed certain sports when I was a child, but could never lift and throw a basketball. I hated running, always got a 'stitch' in the side.

I had/have extremely sensitive skin. As a baby, my mother couldn't use just any soap or detergent on me or my clothes. I can't be near wool (my DH loves wool) In 7th gr I got a whole body rash that would not go away. The dr figured it was from the starch my mother used on my uniform for school. She had been starching my uniform since Kindergarten, go figure!

about 8th gr I developed eczema, tho nobody knew what it was. My arms, hands, face were always cracked and/or bleeding. I had this for so many yrs. Drs. later told me it was from washing diapers - I didn't wash them in 8th gr. rolleyes   I finally got rid of that by eliminating milk from my diet. I'm lactose intolerant. My niece never liked cheese or milk, my brother insisted she eat/drink them to be 'big and strong'.  She is petite, lovely and suffered for yrs, w/ eczema til I found out what was causing my problem. She no longer has skin problems. Any kind of petroleum product (Vaseline, etc.) can set me off. In my state we don't pump gas, if they decide to allow customers to do it, FORGET it. I will pay extra to have it done. Gas fumes make my skin break out.

I don't like tags on my clothes, don't like things around my neck, don't care for anything confining - shoes, socks, etc. Yet I need them for warmth, balance, etc. Can't wait to get in the house and take them off. Along w/ my watch and wedding ring. Can't wear them in the house.

When I saw the list I was so happy to finally have an answer to all my questions, it was just hard to get drs to hear what I was saying.

Cat, if you think of more items on that dr's list pls share them. I am very interested.

My 2 sons have certain things like I experienced, my daughter doesn't, thank God.

My hands are tired and my brain, too, so I will leave this list for now.

God bless.  Alice.

 


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/7/2009 1:14 PM (GMT -7)   
I did think of a couple more: sensitivity to light -my son always wants sunglasses or headaches, sensitivity to smells (I have this one badly-he cannot stay in folk stores w/ incense or candles)

-being a "fussy" baby or being overstimulated easily.

-night terrors

-bed wetting-at an early age--or training late.

I'll keep thinking of more and I'll post.

When I was little I had the oppositte. I could not feel pain until I was in the 3rd grade. I'll never forget it because I fell on the black top & I had never hurt before--it was crazy.

I mean this literally my mom had to be very careful: I could not feel hot water-i fell out of trees & laughed rolled down steep hills & walked away-i was a tom boy too- so u can imagine what that was like when I didn't feel pain. I made a cross tie into a slide once & was stung by over 100 yellow jackets. I dint cry or even feel the 250 splinters or the bee stings.

My son is very "aware" of his body & stuff around him. He is ill a lot & misses a lot of school but he has asthma & allergies.

Like a person with fibro he has always taken longer to recover. Dental work that isn't supposed to hurt has him in bed crying for days. He had a colonoscopy & carterization at a very young age & it wasn't supposed to hurt. He cldnt go back to kindergarten for a week.

Other things don't seem to bother him. He's very active & he had the swine flu tjis year but never ached with it. So when is isn't over sensitive about things he seems to be under sensitive.

Fibromyalgia in children has been mistaken with bipolar due to mood swings and stuff before they are able to communicate well.

snowberry
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 11/8/2009 10:38 AM (GMT -7)   
growing pains, skin rashes, sensitive skin, sensitivity to bright light, headaches.
 
snowberry

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/9/2009 9:06 AM (GMT -7)   
Yes now as I look back I too had many many symptoms or I just thought it was part of me since I can remember. headaches, skin sensitive, rashes, muscle pain, hip pain, depression, anxiety, growing pains bad, pretty much like I have now but maybe not as debilitating or at least not for long periods of time. I think when we were younger or young adults we could handle things better. Oh to be Young and Dumb again. :) :) :)
Have a good Day all!

~FunnyGurl

lettuce
Regular Member


Date Joined Jun 2009
Total Posts : 78
   Posted 11/9/2009 9:10 AM (GMT -7)   
My daughter has Fm, she's 14. She had 'rough' skin as a baby, I couldn't use soap or lotions on her, all her clothes had to be double rinsed. Seams in socks drove her nuts, but she would wear toe socks, no seams! She wore as little clothing as possible at home, like a swim suit. She would instantly get hot & feel like her body was crawling & itching. She had joint & body aches from age 8 or so. She has extra sensitive smelling. She always wants the curtains closed cause of the light. She started skiing in 5th grade & always, the next day she would miss school cause she was wiped out. She would get 'flu like symptoms' every 3 or 4 weeks. She missed a ton of school all her life. This year in 9th grade I finally pulled her out & am homeschooling her. Poor kid, I should have done it years ago, she was just diagnosed w FM this past July. She is now on her 10th dr & they are looking further into Lymes or heavy metal poisoning.

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/9/2009 9:20 AM (GMT -7)   
Yes lettuce ur daughter exhibits the main symptoms. I worry about it because my husband, my child's father does not believe in it, & if my son has it he will swear that I made him a hypochondriac.

Needless to say, I am so sorry for your daughter. I started showing symptoms in 11th grade but though it was from a high stress college prep state funded high school (we lived there jr & sr year).

I know being fidgety & tapping foot or leg is also a symtom

jamies.mom
Regular Member


Date Joined Dec 2006
Total Posts : 53
   Posted 11/9/2009 10:43 AM (GMT -7)   

WOW- Since I found out I had Fibro, I have been looking over my childhood to see where it may have started, so this post really speaks to me.  As far back as I can remember I  have been sensitive to things like seams, tags, wrinkles etc. Never broke out in rashes, they just bothered me so much I couldn't think about anything else until I fixed the problem.  I used to be put to bed at 8pm, but laid awake for hours and hours just staring at the ceiling.  I always got headaches, but Dr could never find a cause.  I know I was scent sensitive, and could hardly bear to be in a car with my mom and sister because of their perfume.  Of course, no one knew about scent/light sensitivities back then, so I think my mom just thought I didn't like the smell, as opposed to it being painful to breath it in.  I also remember the horrible pains in my legs - growing pains - and my periods were always so painful.  I was always very intelligent, scoring VERY high in IQ tests, and so teachers and my parents couldn't figure out why I was only getting average marks in school.  They kept telling me I was lazy, didn't pay attention, etc.  They would tell my mom I should be an honour student, and that put a lot of pressure on me. I often, even when in grade one or so, would forget things at school, or lose things very easily.  I was a very stressed child,always worried about how everyone around me was feeling, who was mad at me, who didn't like me, etc. I remember crying over my dolls when I was really little because I thought they had feelings and missed me when I was gone, or that they were jeaslous if they didn't get to sleep in bed with me. They took turns, so each one got a turn - crazy!  I was also depressed as a child, constantly.  I used to go to bed and wish I didn't have to wake up and go through another day.  I was also constantly worried that I had forgotten something and didn't know it yet, and I was afraid of getting in trouble for something I had forgotten.  I remember reading somewhere that fibro could be caused by a tramatic or stressful childhood.  When I was younger than two, I had been taken from my biological mother several times and placed in foster care, before finally being adopted out to my adoptive family. That might have been hard on me, although I have no memory of that time of my life. I also know that I was given double doses of all childhood vaccines, because the adoption agency could not find proof of my immunizations and had them redone. Later they found my old immunization records, so maybe that had something to do with it. 

I know growing up was a difficult thing for me, and the constant feeling that I was too stupid to do well at anything despite my IQ scores left its' mark on me even into adult life.  I think had my parents known, they would have been less critical and more nurturing.  They wouldn't get angry over bad test scores, but instead encourage me to stick with it and keep trying.  I might have grown up to be a more confident and happy adult.

Now I worry aout my three year old daughter, because she is already showing the difficulty to focus on anything longer than a ten minute cartoon, and she seems to never need sleep. I am already arguing with my husband who sends her to bed sternly at 8:30, and when he is not around I sometimes let her stay up a bit later, as I know what it feels like to not sleep.  Hopefully what we learn can help us raise our children!

Sorry for the long post.


fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 11/9/2009 1:11 PM (GMT -7)   
I remember always getting the "stitch in the side pain".  I started with hip pains around 8 or so.  Stiff neck around 16, 17 and migraines in early 20's.  I look back and wonder if I had ADD or the "fog".  I was very fidgety, still am.  I did o.k. in school but was told I could do better if I wasn't such a daydreamer.  In high school we changed rooms for different subjects and for 4 years I really had to think about where I was going between classes.  My whole family teased me about being so forgetful, still do.  Of course,  glad I can't remember some of the stuff. tongue
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


snowberry
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 11/9/2009 1:37 PM (GMT -7)   
Oh my goodness. I'd forgotten the stich in the side. I had that a lot when I was a kid. I also had terrible pain just below my neck on one side of the spine. It doesn't bother me as much as it used to. It might have been a pinched nerve for all I know.

lettuce
Regular Member


Date Joined Jun 2009
Total Posts : 78
   Posted 11/9/2009 9:31 PM (GMT -7)   
Wow, Jamies.mom, you sound exactly like my daughter, it makes me cry to read your note. Except the part being taken from your mom, she has lived in the same home with 2 parents her whole life. In Kindergarten the teacher would call her slowpoke because she couldn't concentrate & get her coloring done or whatever. She would always put things in places & wouldn't be able to find them. At age 8 she said she hated life & wished she would die. She is very sensitive about hurting peoples feelings to the point of self detriment. Things she loved to do, like write out valentines for her class, she couldn't get done. I took her out of school 2 months ago & try not to pressure her at all. She is depressed & in counseling. She cries daily & says she just needs to get it out. We don't have to walk on pins & needles around her but just make sure we don't raise our voices & are respectful to each other. She would go to bed on a school night & stay awake for 2 hours till midnight every night & get up at 6:30am for school. I couldn't see how she lived in a constant state of lack of sleep. Now she sleeps 9 to 12 hours a day and is doing well with that, she is a nightowl still however.
I know they say FM is caused by a stressful life. I'm always looking for a smoking gun, was it because her dad & I would argue in front of the kids, was it cause her older brother would tease her, was it cause I was still nursing her older brother when I got pregnant with her & her immune system was compromised, was it the stress of school? Her older brother is a picture of health. Now she is even lacking coordination more since the cymbalta. Tonight I had to hold on to her to walk. She said it felt like she just really exerted herself & was shakey & unstable, but she hadn't done anything.
Cat 8201 I feel for you, I have relatives who have children with problems as well & they have accused her of making her son a hypocondriac. One thing I have come to realize that sometimes YOU are the only advocate for your child, even against a spouse. My husband now understands but he didn't at first. I even questioned it myself through the years but also kept going forward trying to find solutions, going with my gut not my head.

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/9/2009 10:43 PM (GMT -7)   
when it comes dwn to it, i will side with my son any day, and if that means being a single mom, so be it. i know how real this disease is, there is no way i would make him live with it without support.o

but they say boys grow out of it, so for now i ignore his symptoms. the doc says like 90 0r 95% grow out of it in puberty, so i hope he does.

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/9/2009 10:44 PM (GMT -7)   
ignore is not the right word. i don't make a big deal, or tell him they are signs of fibromyalgia. but i don't do the "tough love" thing either. i try to teach him ways to distract himself mentally when he is able to.

TreeBo
Regular Member


Date Joined Aug 2009
Total Posts : 114
   Posted 11/10/2009 4:57 AM (GMT -7)   
When I was born I had extremley sensitive skin, No pamper for me just good old cloth. I seem perfectly normal until ablout 3rd grade. I started not being able to concentrate. I would stare out the window during lessons. It was like I was in my own little world. I never really had pain at that time. In high school I was always exauhsted. I could barely stay awake during the day. By the time I was in my 20s I started seeking help for fatigue. By my mid 20s the pain began, and finally in my 30s I DX with fibro. When I look back I guess there was always something wrong we just didn't have a name for it.
Treebo.


Spicey
Regular Member


Date Joined Mar 2009
Total Posts : 135
   Posted 11/11/2009 5:56 PM (GMT -7)   
Some of the posts triggers more memories of my childhood weird symptoms. Like when one morning upon waking up after standing up and stretching,the next thing I know my mother is helping me up off the floor! ?

Another time after an afternoon of suntanning in the backyard,while sitting down for supper I had some kind of shaking seizure lasting for
a few long seconds where I could'nt speak.They chalked it up to overdoing the suntanning.

Another time while out with friends for dinner, I had a full blown seizure and when going to see our family doctor about it, he said I was "probably
still weak from the bronchitis" I recently had. And I understand there's only so much room up top for the top of the class doctors!

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 11/12/2009 10:34 AM (GMT -7)   
I remeber Fibro pains in childhood, leg pains mostly and then in high school fatigue and pings of pain pretty much all over my body.
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