Having fibro isn't all that bad.

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Marlee2
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Date Joined Aug 2007
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   Posted 11/8/2009 8:03 AM (GMT -7)   
I know I can hear you all saying, "what does she mean having fibro isn't all that bad"???  I know we hurt 24/7, I think it has been 7 yrs now since I was dxd and the pain is a part of my LIFE. Sometimes it is so bad I want to scream or cry, I think the head aches are the worse. The fatigue is so frustrating for me, I get done in a week what I use to get done in a day. Then there are all the many other symptoms that goes along with fibro that we have to LIVE with. I have to arrange my LIFE to do things that have to be done during my peak hours. It can all get depressing cause we aren't LIVING a normal LIFE.
 
So what do I mean about fibro isn't so bad??? I got a call yesterday morning that my 57 yr old cousin is quickly losing her battle with cancer. She has done everything she can over the last year and a half to buy more time but that time is about up. She has lost the ability to speak from the brain cancer and I can't imagine Teri not being able to voice her feelings. She has a mass so big behind her ribs that is cracking some of her ribs and it is now in her spine. I know Teri and she will hang onto LIFE til her last breath.
 
She has a 21 yr old daughter who's mother won't be there when she graduates college, gets married and has children. I lost my dad before I was 23 so I know what it is like not having a parent there for the good and bad times in your life.
 
As hard as it can be at times to LIVE with fibro we are still LIVING and that is the key word. We aren't going to die from fibro. No one is promised tomorrow but fibro isn't a death sentence. We can make plans for the up coming holidays even if we have to make them simpler than we would like to. I did that years ago and my grandchildren love our Christmas with Santa coming and ordering pizza, yes pizza, it saves me a lot of stress and energy and they love it.
 
I know it does not seem fair that we have this thing called fibro but try to remember that there are many out there that would trade their illnesses for fibro in a heart beat.
 
Okay, I'm done being all sappy this morning.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
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Gretchen1
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Date Joined Jan 2007
Total Posts : 3459
   Posted 11/8/2009 8:48 AM (GMT -7)   
I am so sorry!!!  Thank you for this.  It puts things into perspective.  Life doesn't have to be perfect to be enjoyed. 
Gretchen  ~  diagnosed with MS July 2006
 
I have no lesions on my soul and so I will live with no limits.


puppylover
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Date Joined Feb 2009
Total Posts : 825
   Posted 11/8/2009 8:50 AM (GMT -7)   
Marlee, I am so sorry about your cousin.  She is so young.  I do thank God that all I have is fibro.  I can live with this.  I can be with my friends and family and do most of the things that I use to do, just slower. 
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


getting by
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Date Joined Sep 2007
Total Posts : 40603
   Posted 11/8/2009 9:31 AM (GMT -7)   
Marlee,

I am so sorry to hear about your cousin. She must be in so much pain. I wish I had a magic wand to wash it all away. There are so many people who suffer more than us.

Know that she is in my thoughts and prayers.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 11/8/2009 11:02 AM (GMT -7)   
I agree with you Marlee ... I'm always saying that I don't have it that bad.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/8/2009 12:23 PM (GMT -7)   
Marlee I am sorry about your cousin. It is so very hard to watch someone you love
suffer as they die. Sending you a gentle hug and saying a prayer that your cousin's
pain will be eased and that family's pain is eased as they go through this difficult time.
I watched my brother die of cancer, he was 50.
 
Robin
 
 
 
 
 
 
 
 

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/8/2009 6:41 PM (GMT -7)   
I'm so sorry. That is so painful to go through. It brought tears to my eyes just reading.

Thank u for using this as a positive reminder. I myself am struggling with what seems to be a year long flare so reminders help me tremendously.

That being said, my mother & her siblings have 1 surviving aunt. She has had 8 brain tumors removed. My mother has already had breast cancer. My grandmother died at 43 from breast & lung cancer & her brothers sisters all passed from cancer at a similar age.
So although we as a family haven't fought the battle in a while, it always looms over us. My aunts never ever see a dr, and they are both obviously sick. I can empathize with you to some degree, but I often take for granted the days that I have.

Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 11/8/2009 9:28 PM (GMT -7)   
I am so sorry about your cousin, Marlee. I pray for a miracle that she will win her battle. It is good to put things in perspective. A friend is dying of cancer and is in a lot of pain. Every day he celebrates being alive.
Sue

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 11/9/2009 5:32 AM (GMT -7)   
Thanks for sharing...
 
I am sorry to learn about your cousin and her battle with cancer., This is such a hard disease , and is so cruel.. Like you said now can no longer get the words out..my dear brother went through that also.
 
. I know just how hard this is... as I lost my big brother to cancer. in 2004 on veterans day .he died of a brain tumor. cancer.. this was I think his third battle with it. and he could not beat it this time.. He went home to be with God. and he had said he was ready to go home.
 
My heart goes out to you and your family .. you will be in my prayers.
 
Take care.

Spirit ~


AustenFan
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Date Joined Aug 2008
Total Posts : 1771
   Posted 11/9/2009 6:36 AM (GMT -7)   
I'm so sorry about your cousin, Marlee. My thoughts and prayers go out to you and your family.

Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 11/9/2009 7:06 AM (GMT -7)   
Thanks for the prayers and kind words. I just pray she doesn't suffer.
 
Teri is 18 mos younger than me and I guess I'm still half way in a state of disbelief. As long as the chemo was keeping the cancer in check we all had hope that she could buy a couple of more years.
 
I know we have had a lot of people in flares and I know when your hurting and feel down right sick it's hard to see the positive but the flares do pass and we do get better.
 
I just want everyone to remember that we can LIVE with fibro even as frustrating and depressing as it can be at times.
 
luv and hugs
Marlee
 
 
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


SassyMyKitty
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Date Joined Apr 2009
Total Posts : 673
   Posted 11/9/2009 8:42 AM (GMT -7)   
Marlee, I am really sorry to hear about your cousin. I know it must break your heart to see her and her daughter going through this. But you are right. Even though we are in pain, we aren't dying. Somedays it may feel like it, but fibro isn't a death sentence. We need to thank God everyday that we are still alive. Thank you for this. I think it will encourage all those who read it.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/9/2009 10:16 AM (GMT -7)   
Right sassy! And thanks again Marlee, I really needed this reminder.
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