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snowberry
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 11/8/2009 9:44 AM (GMT -7)   
I get so tired of no one understanding. Well, some do understand, but they forget so easily. I have a friend that I love dearly, but may have to pull away from because she makes me feel like a slacker or something.
 
My plan is to have a talk and give her a copy of one of the symptom charts etc. She's really a wonderful person. But very high energy herself even though she is 70 (I will be 70 in April). She 'pushes through' her aches and pains and does whatever she wants to do. But she doesn't understand that fibromyalgia is more than ordinary aches and pains.
 
I'm sure others have dealt with this. If anyone has advice, I'd be happy to hear it.
 
Blessings,
 
snowberry
 
 

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 11/8/2009 10:14 AM (GMT -7)   

Hi Snowberry...love your name!  I am 63 years old and have friends that still ski, power walk through malls and think nothing of sitting for 12 hours in a car for a road trip.  The truth is...they have just stopped asking me to join them.  Fibromyalgia is still a disorder than can get the old 'eye roll' and so many of us on this forum can't even get their doctors to admit it exists.  I had a wonderful two weeks of remission this summer and climbed a mountain...5 miles.  Of course, when the pain returned a week later this accomplishment was diminshed with comments like 'You looked great last week...what happened?"

As you know, the pain, fog and fatigue come and go, which is why it is so hard for friends and family to 'get it'.  I really don't try to explain it anymore.  If someone asks why I am gimping, I just say I have an arthritic condition.  THAT, they get.  I also have a 67 year old friend that pushes through activites that cause her obvious pain.  She has severe pain in her hands and wrists and has to wear those carpal tunnel  wrist supports 24/7.  She can't feel the bottoms of her feet and wears a knee brace from a ski accident.  She has two herniated discs in her neck, and sleeps on a heating pad.  Yet she keeps on, keeps on, and is in Hilton Head right now, golfing.  Yeah...I feel like a big baby.

You have tons of fibro friends on this forum that do 'get it'.  Sometimes a cyber vent takes the edge off!

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


snowberry
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 11/8/2009 10:33 AM (GMT -7)   
Thanks, Donna. You're right. I needed to vent. :) Oh snowberry is the user name I use for my Christmas forums and it makes me feel happy. I  got it from the name of my favorite Christmas tea.
 
Soft hugs back,
 
snowberry (who thanks Jesus for Donna)
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