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PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/8/2009 9:54 AM (GMT -7)   
Hi, I've popped in from the lupus forum and realize that should have been here a long time ago. Just changed rheumys and when he gave me my physical he was startled by how much pain I have. He immediately started me on lortab and lyrica. I'm hoping the lyrica kicks in so that I don't have to rely on lortab. He started me on a low of 50mg a day and cut my neurontin in half to 600mg a day.

I've been wanting to get off the Neurontin for some time because I believe that's what's causing my brain to fuzz up and I wonder how much of my fatigue is a result of it. After investigating the side effects of lyrica, I see that it can cause mental confusion and fatigue.

Secondly, I've been on prednisone for 5 years and have lost 10 of the 70 pounds I gained and clearly am worried about additional weight gain from lyrica. This much weight gain can cause as many physical problems as a real disease can.

So any advice or information is much appreciated.

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, tri-est, cymbalta, tricor, acifex


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/8/2009 12:47 PM (GMT -7)   
Hi Pat, I also post on both forums.

I don't know if you ever checked out the fibro 101 thread here but it is great! It is the
first thread on page one. Lots of good information for a fibromite!

I know there are members here who do take Lyrica, I don't. My rheumy wanted to put
me on it but I was afraid of the weight gain that I heard of. I am taking Savella instead.
Haven't had any bad side effects and I actually lost 10 lbs since I started taking it mid
July. Savella was just FDA approved this year for the treatment of fibromyalgia.

Hope some of the Lyrica users see your post. You can also try putting in a search
and read older posts.

Hope you can find some pain relief soon!

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 11/16/2009 8:32 AM (GMT -7)   
Thanks Robin,

The combination of cutting the neurontin in half and taking lyrica has brought me back almost to normal. I haven't had this much physical or mental energy in years. It's really like a miracle. It's good to know about savella, in case I gain too much weight. Thanks!

Pat
SLE, fibro, renauds, restless leg, hiatal hernia, double vision, migraines, costocondritis.

prednisone, plaquenil, leflunomide, neurontin, synthroid, triamterene, actonel, niaspan, lyrica, tri-est, cymbalta, acifex


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/16/2009 10:17 AM (GMT -7)   
Pat, so glad to hear that is med combo is working for you. It is always wonderful to hear
someone has found some relief. :-)
 
Hugs
 
Robin

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/18/2009 8:35 AM (GMT -7)   
i was just started on Lyrica and for me the weight gain would be welcome lost so much after hospital stay...i am hoping it kicks in soon as this fibro n other dd have really taken its toll..glad u are doing so well keep us posted ..lyn
..                          Co Moderator for Crohns , Anxiety/Panic ,Alzheimers....
 
           Crohns,Pyoderma Gangrenosum ,Seizures ,Fibro ,completely Deaf ,Anxiety/Panic,Neuropathy..
 
......I COULD feel sorry for self but where would that get me....I CHOOSE  to fight n survive...
 
.                                    Donate  www.healingwell,com 
 
                                                        Lyn


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/18/2009 8:51 AM (GMT -7)   
Lyrica is the "New Improved" version of Neurontin so I'm confused as to why your doctors have you on both. The first info I every found on Lyrica was about the fact that Neurontin was going generic and the drug company needed a new patented med that worked similarly to boost stock prices. They are chemically very similar and also work in the same way. If I were you all, I'd ask my doctor why you are on two such similar meds. This really needs looking into!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 11/18/2009 9:02 AM (GMT -7)   
Jeannie you read my mind while checking into lyrica neurontin is just generic form basically i would really want to know2 why a doc would hv you on both ..isnt that just a tad weird or is it me lol......luvs lyn..plus is there a possibility of too much of this drug between 2 doing more harm than good
..                          Co Moderator for Crohns , Anxiety/Panic ,Alzheimers....
 
           Crohns,Pyoderma Gangrenosum ,Seizures ,Fibro ,completely Deaf ,Anxiety/Panic,Neuropathy..
 
......I COULD feel sorry for self but where would that get me....I CHOOSE  to fight n survive...
 
.                                    Donate  www.healingwell,com 
 
                                                        Lyn


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 11/18/2009 9:24 AM (GMT -7)   

I just read that Savella is the "new Cymbalta."  Chemically, they are almost identical...just another antidepressant deguised as a designer Fibro miracle.  Drug companies are making a forturne off pain and depression.  We have been waiting for Lipator to go generic as it is so expensive and the hubby needs it.  Guess what...a month before their patent was up it was approved for some rare diabetes symptom.  Now they can renew their patent and....Cha Ching!  I wonder if doctors have a clue what they are prescribing.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

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