If you had no fibro symptoms for a day, and you knew you wouldn't pay for it later, what would you?

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cat8201
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Date Joined Nov 2009
Total Posts : 135
   Posted 11/9/2009 10:58 PM (GMT -7)   
I'm sure someone posted this before, but I'm trying to focus on the positive lately, and this forum really helps with that.  So, although I have several new threads I want to post, I'll start with this one:
 
What would you do?  i know that i choose not to do things because i know how badly they will affect me. 
 
The July following my miscarriage, I was able to go canoe the Buffalo National River.  I was starting my Fibromyalgia flare at that time, but I was still able to pitch the tent, cook the food (yuuuummm!!!), laugh, stay up late, swim the river (both directions with no life jacket-one side to another), i even decided to float in just a life jacket and the rocks beat me half to death...literally.  I did get sick when it was over, but not terribly, i had a sunburn, and was exhausted.  Now, i would be down for 2 weeks, if I could even do all of that.  At that time, I took Lortab and Stadol, but I only used the Stadol at night.  This past summer we went camping for a week again.  I had recently done a detox to help with tolerance, and then begain my pain medications again.  My husband says I was out of it, but he says that now, not then.  Even then  I understood my limits.  I pitched the tent, set up the canopy, cooked the food,...but i didn't swim much, and I napped every day because I knew we were there for a week.  I respected my limits, and I wasn't sick afterward either.  but i want to do the Buffalo again.  I actually paddled the canoe for 4 HOURS!!!!!..and i didn't hurt.
 
o, what it would be like to be able to spend another day in that cold water, with the bright sun, and actually enjoy the hard work involved!!!
 
so, what would you do, or will you do, on your next remission?
 

Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 11/9/2009 11:31 PM (GMT -7)   
Hi Cat...

This is a cheery topic and I'm sure many people have a vision of what they will or would do on their 'next remission'. One thing you might consider is that not everyone's fibro acts like yours. I have no remissions. Even thought I have pain med's on board 24/7 the pain is always with me. I couldn't paddle a canoe for 5 minutes...my arms are throbbing just by typing this. I don't mean to rain on your topic and I'm sure many people will answer, but please understand that fibro is so very different for all of us. I hope each day that I can get an hour here and there when the pain is low enough so I can accomplish something around the house. So maybe that's my dream...to finish cleaning my house from one end to the other before before I can't tell where the beginning even it!....lol

Hugs,
Chutz
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/10/2009 12:33 AM (GMT -7)   
chutz, i do understand. and my basic dream would be just to be able to clean my house. i too am on pain meds 24/7 and that was the last time i remember being able to do that type of activity. it was 2 years ago. so i do understand that fibro is very different for all of us. i have no idea if i will ever have a remission, i have not for the last 1 1/2 to 2 years, but i hope still, that i will....and even if i don't, i will always remember that cool water...lol. i'm in a constant flare. it's bad,real bad, i spend most of my days unable to do very basic things. but i have been thinking lately of what i would do if i suddenly had a gift of a few days without pain, well, i would swim. in cold water... :)
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 11/10/2009 4:12 AM (GMT -7)   
I would have to respond by saying it is my constant dream that were I to have a remission I would grab my tennis racket and hit the courts. Tennis was my life and not a day goes by that I don't mss it. But as I answered in the one word Fibro brings to mind for me is change. I have accepted the change at long last and just feel so grateful for the things I can do. How much better my life has gotten with the resentment and anger gone.

Have a great day! Patsie

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/10/2009 4:25 AM (GMT -7)   
If I could i would strap on a pair of waterskis and take a few turns around a lake. Enjoying the wind on my face as I glide effortlessly across the water ooh that would be so cool!!!

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 11/10/2009 4:32 AM (GMT -7)   
Hi all... good one..
 
I also am one of those 24/7 pain Fibromites. from one flare to the next I say . LOL.. but really ... also have not been able to clean my house in years. you know all in one day.. like I used to do ..
 
I would say I would love to paint all my inside walls.. and clean the whole house at one time.and that means this closit in my office that I have been trying to get cleaned out for over a month now would be done. LOL.. wow..yes oh yes.
 
then there is the yard .. I would finish my rock walls for my flower beds front and back yard... mortor the flag stone in on the front paito, get the grass in for Chato Bear our pug space.. in the front yard.
get the shed put up in the back yard....Yes. finally .
 
Then after all that... Go find me a piece of woods or a nice River and take a nice long hike.
 
and finish up the day with some playing in the sheets with my honey . as this comes to far and few . LOL. but hey thats life.
 
I used to be wonder women and could do it all.. so long ago.
 
looking forward to reading what every body would do.. I wonder how many of use just want the house clean.
 
 
Spirit ~


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/10/2009 6:13 AM (GMT -7)   
..o i want to paint my walls sooooo bad, but i can't do the repetitive motion. right now, i need to do some serious cleaning, but i can only do so much each day

spirit, i think your day resembles what i would actually do. cuz if i had a good day, i would most likely get done what needs to be done.
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 11/10/2009 6:49 AM (GMT -7)   
I actually am crying tears of happiness at the thought of spending a day like that. I feel
emotionally overwhelmed by the thought. It has been way too long since I have experianced
a day of doing anything I wanted without paying the price. I awoke this morning flaring.

If I could spend a day of my choosing without hurting the next day, I would be hiking,
exploring waterfalls, climbing rough terrain in a beautiful State Park with my husband. I
miss our rugged adventures. We still do some exploring but on a whole differant scale.

I have already mourned the loss of my good health, went through a grieving process and
have accepted my new normal but a girl can still dream!

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


MT Lady
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Date Joined Jul 2008
Total Posts : 955
   Posted 11/10/2009 6:51 AM (GMT -7)   
O Spirit...Wonderwoman...a perfect word to describe what I USE to be...I've been saying overachiever, but Wonderwoman better describes who I use to be. And, for 20 years, I've not been able to let go of that image in my mind and all it's done is drag me down and made me feel so useless now. But I was a Wonderwoman, holding down a full time job, raising kids, running car pools, walking my dogs DAILY, in addition to hitting the gym at 4:45 in the morning, and then going to karate classes that began at 8:30 at night! If I woke up one day and this demon FM was suddenly gone, I would grab my dogs and go out for a five miler and then hit the gym and stay there for the rest of the day!!! What a perfect day that would be tongue yeah


Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 11/10/2009 7:22 AM (GMT -7)   
I have had a little reprieve, not from the pain as much as the "I don't feel well" feeling of fibro the past few weeks and I have been having a good ole time in my house cleaning. The last time I felt like this it will be two years ago in Feb when we went to NC to oldest son's retirement. Kinda sad I guess to remember the good times as a momentous occasion. It would be such a blessing if I could feel like this through the holidays but one day at a time.
 
I got up like a 90 yr old this morning from washing walls and going up and down my step stool cleaning cabinets yesterday but I still feel a sense of accomplishment. There are so many things that haven't been cleaned in this house since we moved in almost 4 1/2 yrs ago.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
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harleybluz
Regular Member


Date Joined Sep 2009
Total Posts : 122
   Posted 11/10/2009 7:47 AM (GMT -7)   
I would DANCE.  I miss that soooo much.  Just dancing with my husband.  One of the biggest losses of my life, I think.

This is no Social Crisis... Just another Tricky Day (The Who)

 
FMS, IC, IBS (working on full alphabet) Asthma, Depression/Anxiety


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/10/2009 8:53 AM (GMT -7)   
Marlee I'm glad u were able to do those things. It does feel good to get the house clean, looks like that is what most of us struggle with. Something so basic becomes too much.
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 11/10/2009 9:54 AM (GMT -7)   
I would take my husband Victorian Ballroom Dancing, then afterwards we would crash at a hotel and enjoy eachother.

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 11/10/2009 10:22 AM (GMT -7)   
This is such a good post. I am enjoying reading everybodys responce..
 
Thanks All.. and Great Big Soft Hugs.. LOL..
 
Praying for a god day yeah   to come.
Spirit ~


RedDiane
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Date Joined Jun 2007
Total Posts : 906
   Posted 11/10/2009 10:30 AM (GMT -7)   
Last week I was on vacation at a beach house in Florida. (Right where the hurricane is now). There were a zillion stairs to go down to the beach and I made sure I only went up and down one time--and very slowly. I was thinking how I used to bound up and down stairs and that I probably never would again. I would just love to be able to run up and down stairs now, or even two steps at a time. WOAH!
Diane
Fibromyalgia since 1984, Sjogren's, Hashimoto's Thyroiditis, Auto-immune eczema, GERD, osteoarthritis, IBS, RLS, sleep apnea


Jenyl
New Member


Date Joined Nov 2009
Total Posts : 2
   Posted 11/10/2009 11:53 AM (GMT -7)   
I would go on a 6 mile run outside. I havent been able to exercise in months since the pain has been so intense. Having a pain free day sounds amazing. Then I would acutally cook myself a real meal for once and go out on the town. I am 25 years old and i dont go out like I should because i am so concerned with resting from working 8 hours a day. After that I would stay up and be intimate with my partner because i wouldnt be hurt. I know this is not extravaggant but I just want to do some normal things.

AkinaChan
Regular Member


Date Joined Oct 2009
Total Posts : 48
   Posted 11/10/2009 1:37 PM (GMT -7)   
I would run, I used to run cross country in high school before this all started. I miss it, 6 minute miles, running three miles non stop, the rush of it all. If I can ever go back to just running for pleasure I would be so far beyond ecstatic. I would pull on my running clothes and shoes, grab my asthma spray, put my knee brace on, grab my ipod and I would just go, the feeling of my body pushing to go, the adrenaline, and the peace from being outside and in my own world, that would be the best day in a very long time.
"Some books are to be tasted, others to be swallowed, and some few to be chewed and digested" - Francis Bacon
"I couldn't repair your brakes, so I made your horn louder" - Unknown

------
Diagnosed with: ADHD, Raynaud's Syndrome, Fibromyalgia, Asthma, Hypoglycemia, heart murmur, knee caps that are too high, reoccurring kidney stones, multiple food allergies, multiple drug allergies, multiple environmental allergies, possible underlying arthritis


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 11/10/2009 1:45 PM (GMT -7)   
Cat, I've never had a "remission" in the two decades I've had fibro.  I'm not sure if that is in a fibromite's vocabulary!  I go from good days to bad days and all days have pain.  BUT, if they ever found a cure for fibro, I would head to the amusement park and get on the roller coaster!  I love roller coasters but would never attempt it with this fibro body of mine.  But I can dream........
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


vestabula
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Date Joined Nov 2008
Total Posts : 2855
   Posted 11/10/2009 2:19 PM (GMT -7)   
I would just love to spend the day playing with my three grand daughters.  Such a simple thing.  I would reach down and pick up Isabel without asking for help, or walk through the woods with Avery and Ella who are four and six and love that kind of exploring.  I don't see them that often because they live so far away, but when I finally do...I wish I could be a real grandmother and not even have to think about how I will pay the price when they leave.
 
Huggies
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium


cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 11/10/2009 3:58 PM (GMT -7)   
I live in a constant flare, but to be honest I am hopeful, my mom was down every day for years. Now she cleans, cooks, plays & does a lot more like she did before. I guess that is what I hope for.

Vestabula, I feel that way about my 8 year old. I promised him this week I will take him out & watch him skateboard. He did the whole, u guys r great, but w/ dad sleeping all day, u got to let me outside more (he's been in trouble for months).
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 821
   Posted 11/10/2009 4:35 PM (GMT -7)   
I would drive back to the Midwest and visit my kids, sisters and brother and go out with some friends, dancing till the wee hours like we use to.  Car travel is almost impossible for me.  We use to drive from the Midwest to Ca several times a year and make it in 2 days.  Now when I would go back I'm thinking 4 days.  I will be going to the Midwest in the spring armed with all sorts of pillows, heating pads and medications.  We don't fly because we take our golden with us.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


Statgeek
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Date Joined Jul 2008
Total Posts : 1495
   Posted 11/10/2009 7:54 PM (GMT -7)   
If I could do it without pain, I would climb a wall then climb a large hill covered in large boulders.

Sue

merfy5
Regular Member


Date Joined Jul 2008
Total Posts : 58
   Posted 11/10/2009 9:23 PM (GMT -7)   
I would have a football game with my kids and go hiking with them longer then 10 min and bike riding I try and do things with them now but not as I did 6 yrs ago but they don't see my pain I usually will pretend they made me fall and then we just lay there and look up in the sky

TreeBo
Regular Member


Date Joined Aug 2009
Total Posts : 114
   Posted 11/11/2009 5:02 AM (GMT -7)   
I would go Hiking. My husband I used to hike almost every week end. Now after 30 mins I have to stop. I miss getting lost with hubby and just feeling like we were the only 2 people in the world. One day I swear I will do it again. I 'm not giving up on my dreams.
Treebo.


deme
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 11/11/2009 6:23 AM (GMT -7)   
I'm still in the finding out if I have fibro but I love these forums. When I come in here I dont feel so alone. I felt horrid all last winter and couldnt do much of anything. Then over the summer I had 3 days of pain free and thinking clearly.

I worked in my yard and planted some flower beds. I actually dont like gardening but I was just so happy to be able to do it. I was digging up the area I wanted to plant it and and grinning like a loon. A few times my husband would come out and ask what are you so happy about. And I'd just laugh and give him a big squeeze. I didnt want to ruin my good time by thinking about why shoveling mulch could thrill me to death much less explain it. I just wanted to enjoy every moment and took complete advantage. I even reorganized by kitchen.
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