Dr's visit to talk about poss. Fribromyalgia Dx

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_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 11/12/2009 10:01 AM (GMT -7)   
In the last 2.5 years I have been diagnosed with Bipolar II, Rheumatoid Arthritis, Obstructive Sleep Apnea and other sleep disorders.  Now that I am well into the treatment of these conditions I should feel much better- but I don't. 
 
Now that the pain in my joints is controlled, I can tell that I have nearly constant pain in the soft tissue all over my body.  With the improvement of my sleep the fatigue should be getting better- but it is still controlling my life.  I have to conclude that something else must be wrong.
 
The Rheumatologist says that my joints look good, I have little swelling, the crushing, excruciating pain that was obviously in my joints is not there anymore.  He says that the places that I still have pain are not in my joints, so it is not the RA.
 
The treatment of the Bipolar II is more complicated.  I am VERY fragile emotionally.  I have been in what is called a "mixed manic episode" for a month and it nearly pushed me over the edge a few weeks ago.  I am unable to work because of this condition. (Half the time I am unable to keep house/take care of my kids) I am in the appeals process in getting Social Security Disability.  The constant pain keeps me walking the edge of disaster emotionally.  Even if I start to feel better it can throw me into a "manic high" that takes a harsh toll on my relationships and my health.
 
The pain that I feel is between the joints in my fingers, (like I had twisted them, or punched something hard) in my forearm and upper arm if feels like someone had lightly hit me with a stick up and down my arm lots of times so that it was bruised but not broken.  I sometimes look for the bruise, but it is never there.  My thighs hurt like I have climbed flights and flights of stairs for no reson at all. My whole body hurts like this.
 
I looked at the pressure points, and the 2 on my neck, 2 on my lower back, 2 on my mid arm all hurt when I apply pressure.(Hurt where I flinch and pull away) the one above my clavicle is not nice, but not to where I flinch, same with the top of my back.  The others don't really bother me, but then I am on 800mg of Motrin.
 
The only time I can get away from the all over pain is when I have some joint pain and can take the vicodin I have been prescribed.  I try to take it only when the RA calls for it and not when I have "other" pain.
 
So that is enough background about me. 
 
What I want from you is some ideas on how to present this to my family Dr.  He was the one that sent me to the psychiatrist for BP, to the Rheumatologist for the RA, and to the Sleep specialist for the apnea.  How do I present this to him in a way that he will see it as it's own problem and not as side effects from all my other problems?  I don't want him to simply write another script for more pain meds.
 Christina
Even though I do not understand where I am going on the path that God has laid out for me, I must submit to His plan and trust that He will take me where I need to be. 
 
Current medications:
Bipolar treatment-Lamictal, 200mg, Mood stabelizer, daily(main side effect: brain fog) Bipolar treatment-Cymbalta, 40mg, Antidepressant, daily(main side effect: GI upset, decreased clotting, insominia) Anemia, Fatigue treatment- Iron supplement, 65mg, daily(main side effect: constipation) Insominia treatment- Ambien, 10mg, daily(main side effect: amnesia eppisodes between taking pill and falling asleep) Mania treatment- Alprazolam, .25mg, Very rarely(main side effect: fatigue, slowing of thoughts, depression of CNS, can't take ambien or vicodin when on it) RA treatment- Plaquenil, 400mg, daily(main side effect: GI upset, decreased clotting) RA treatment- Methotrexate, 25mg, 1X weekly(main side effects: hair loss, stomach upset, mouth sores, sore muscles, fatigue, brain fog, compromised immune system, decreased Folic Acid absorption) GI upset treatment- Leucovorin Calcium, 10mg 1x weekly(main side effects: ?) Folic Acid defintioncy- Folic Acid, 1mg, daily(main side effects: ?) Multi-mineral Supplement (main side effects: constipation, GI upset) Constipation treatment- Docusate Sodium, 200mg, daily(main side effects:?) pain control- Motrin, 800mg, PRN Q6hours daily(main side effects: GI upset, decreased clotting) Pain Control- Vicodin, 5-500mg, PRN Q12hours 3-4 times weekly (main side effects: brain fog, fatigue)
 
 
 
 


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40579
   Posted 11/12/2009 11:16 AM (GMT -7)   
Hi Christina,


Boy it sounds like you have a lot going on. I take hydrocodone for fibromyalgia pain and it works well. Maybe you should take your vicodin for yours. You do need some type of relief.

It sounds like you have a lot of fibro symptoms. Have you read fibro101? It is the first thread on the forum. You will find a lot of people have the same symptoms as you have.

I hope that you are feeling better soon. Take care, keep posting.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 11/12/2009 11:48 AM (GMT -7)   
Hi, Christina, and welcome!  I'm so sorry you are going through all of this but I think we can give you a hand.  Fibromyalgia has so many varied symptoms that sometimes it's difficult for our doctors to piece everything together! 
 
I see that Karen directed you to the Fibro 101 thread...the first thread on the forum.  There are links to good information about fibromyalgia including a list of symptoms.  You could print them out and highlight the symptoms that pertain to you.  Also, in Fibro 101, you will find a link to pain charts and pain journals.  The pain charts will give you a good way to describe the pain intensity you are having.  One of the charts shows faces and that will help you to know exactly what you are feeling.  Then record it in a pain journal.  Take this, along with your list of symptoms, to the doctor and that will give your doctor a pretty good idea as to how you are feeling.
 
While you are in the Fibro 101 thread, check out the links about malic acid/magnesium supplements and the vitamin D supplements.  Many with fibro have deficiencies in these vitamins and nutrients and that can cause some pain and fatigue.
 
I'm so glad you found us and joined in.  Don't hesitate to ask questions because we are here to help you.  I'm looking forward to getting to know you and I hope to hear more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/12/2009 12:21 PM (GMT -7)   
Hi Christina and welcome. The feeling of have been beaten with a baseball bat is very common with fibro. You have been given great advice so I hope things go well at the docs.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted 11/12/2009 12:21 PM (GMT -7)   
Sorry you are going through so much! I would ask your rheumatologist about fibromyalgia. He should be able to do the tender point exam and let you know.
 
I had horrible pain in my hands and had xrays and was tested for RA a couple of times. I finally looked in the trigger point manual and figured out my problem. If the pain between your knuckles feels like a pulling type of pain then place your fingers on your forearm up by your elbow and wiggle your fingers. You will feel the muscle moving and may be able to feel a painful knot there. If so, put a tennis ball between a wall and your forearm and try to massage out the know. It took a couple of days for me and it has been gone for 6 months!
 
I hope this easy fix works for you and good luck with your doctor!
Fibro dx 2004, RLS, raynauds


fibro ?
Regular Member


Date Joined Nov 2009
Total Posts : 76
   Posted 11/12/2009 12:31 PM (GMT -7)   
You could print out exactly what you wrote in your post and hand it to your doctor,, you explained it so very well here, let h im read it and wait for a answer,, if it isnt the one you want ,, press him or her to be more specific,, I sure dont want to get another scrip, I have a cupboard full of pills and scrips that havent did a darn thing for me

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/12/2009 4:10 PM (GMT -7)   
Hi Christina, what a beautiful name! Welcome to the forum. I found this forum to be a
wonderful and caring place. You will find great support here.

You have recieved some wonderful advice. Make sure you bring a list of questions you may
have for the doctor. If I don't write things down, I tend to forget.

Hope your appointment goes well. Keep us posted.

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


_Christina
Veteran Member


Date Joined Feb 2007
Total Posts : 553
   Posted 11/13/2009 9:51 PM (GMT -7)   
I went to the doc today with all the information that I could find. I didn't even have to use it. I started to explain my pain and he brought up Fibro. He said he was disapointed that the Rheumy didn't catch it before I could bring it to him. We talked about some of the other problems that I still have (Brain fog, fatigue) and he decided that he would do a series of bloodwork to rule out a number of conditions. Looking at my mendication list he says that the Lamictal stands out to him as a cause for the brain fog, fatigue and the muscle pain. Pending the results of the bloodwork, the next step is to see if messing with my lamictal gets rid of some of the pain and fatigue. Beyond those two steps, he will work with my rheumatologist. (Have I mentioned that I REALLY like my family doctor?) So now it is just wait for the tests and see what we can rule out.
(I don't really mind taking this step- I would rather have a condition that I can easily solve than to add an additional dx to my list.)
 Christina
Even though I do not understand where I am going on the path that God has laid out for me, I must submit to His plan and trust that He will take me where I need to be. 
 
Current medications:
Bipolar treatment-Lamictal, 200mg, Mood stabelizer, daily(main side effect: brain fog) Bipolar treatment-Cymbalta, 40mg, Antidepressant, daily(main side effect: GI upset, decreased clotting, insominia) Anemia, Fatigue treatment- Iron supplement, 65mg, daily(main side effect: constipation) Insominia treatment- Ambien, 10mg, daily(main side effect: amnesia eppisodes between taking pill and falling asleep) Mania treatment- Alprazolam, .25mg, Very rarely(main side effect: fatigue, slowing of thoughts, depression of CNS, can't take ambien or vicodin when on it) RA treatment- Plaquenil, 400mg, daily(main side effect: GI upset, decreased clotting) RA treatment- Methotrexate, 25mg, 1X weekly(main side effects: hair loss, stomach upset, mouth sores, sore muscles, fatigue, brain fog, compromised immune system, decreased Folic Acid absorption) GI upset treatment- Leucovorin Calcium, 10mg 1x weekly(main side effects: ?) Folic Acid defintioncy- Folic Acid, 1mg, daily(main side effects: ?) Multi-mineral Supplement (main side effects: constipation, GI upset) Constipation treatment- Docusate Sodium, 200mg, daily(main side effects:?) pain control- Motrin, 800mg, PRN Q6hours daily(main side effects: GI upset, decreased clotting) Pain Control- Vicodin, 5-500mg, PRN Q12hours 3-4 times weekly (main side effects: brain fog, fatigue)
 
 
 
 

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