Post Edited (crazykitty) : 11/15/2009 11:46:10 AM (GMT-7)
Altho I've had FMS all my life, I never got a dx until '06, no drs ever connected the dots. When I had someone sugggest this might be the prob, I asked my dr, she didn't think this was the answer. So I started to read and I finally found some books that gave me answers. I again brought up the possiblity of FMS w/ my dr. She didn't think so, but said she would send me to a rheumy. I was dx w/ FMS, but they (pcp and rheumy) didn't feel it was a prob so didn't do much to help me.
I tried to find a FMS support group around my area, none existed. I did not have a computer, so I was stuck. We were able to get a computer a yr or so after dx. I just was hoping to find some info. My DD suggested I see if there were any online support groups, as I didn't have a clue how to use a computer. I typed it in and several names came up, I looked at a few and was not too excited about the 'tudes. I dismissed them right off the bat. I found this site and observed for awhile. I found the ppl to be smart, caring, willing to share and most important to me - they were kind and compassionate.
Most ppl are dismissive of what goes on w/ FMS, 'can't see it, it can't be that bad'. Too many ppl I know had no idea what was going on, so didn't really want to hear it. Since the commercials for Lyrica on tv, 'now' it must be real. Ya think?!?! Here there is acceptance, and non-judgmental friendship. Many of the ppl here were here before I started, so many more have come since then. I like to read the posts when the ppl start, sometimes they are so overwhelmed and feeling lost and yet soon you can see a difference in them. No, FMS has not gone away, but the kindness and compassion and that realization they are not alone makes such a difference.
I see the names of old friends, when I come on, that automatically brings a smile to my face. I see the names of new friends, tho it makes me sad to see more ppl suffering w/ FMS. Yet I feel good that they are putting their faith in this forum to help them live the life they deserve. I believe we each come here hoping to find answers and feel better, but I believe our answers come from helping others find their answers. I think we help each other to find our own strength. So many of the things in my life haven't changed, but how I deal w/ them has changed. Faith and kindness can make such a difference in a person's life.
For the ppl who started HW, for the Mods, and for the rest of the good ppl here who reach out to others, I say thank you from the bottom of my heart. You have made such a difference in my life.
God bless. Alice.