Primary or Secondary

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patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 11/16/2009 6:11 AM (GMT -7)   
Hi all,

I would really like to know if you feel your Fibro is primary, meaning no other known cause, or secondary, meaning you think it is attributed to something else. We have bounced around how we think we got Fibro and when but not sure we have discussed this.

Personally I have had nothing else surface in my medical history. My doctor says you are healthier than almost all of his patients that are 20 years younger. What is your take on your origin?

So that makes me think one of two things. Using the egg or the chicken concept; which came first. In other words was I born with a predisposition for Fibro from a genetic source? I have depression on both sides of my family and Mayo suggests Fibro may be the genetic result of this with no depression present. Or quite possible have my personality traits contributed to an emotional imbalance that has triggered Fibro. Has my so called inner mind reacted negatively about striving to be good and perfect?

I have found very positively studying our forum that MOST of us have definite personality traits leading to perfection or "goodists". I coin the word goodist to refer to the many of us that are very caring above and beyond and sensitive to all of human nature.

Very interested in your thoughts as we are the ones that really know the most.

Best, Patsie

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/16/2009 7:31 AM (GMT -7)   
Hi Patsie. Since I got fibro during or after a long very stressful time in my life and after horrible anxiety maybe it is secondary for me. I was a perfectionist and even got on my own nerves with it, still do sometimes. smilewinkgrin I was always there for everyone and thought I had to solve everyone's problems. My DH told me before I got fibro that I had to stop taking on everyone's problems, maybe I should have listened.
 
I do wonder if my mother may have had fibro, guess that I will never know. Can't say my mother had my personality. I think we are predisposed to get it, not everyone with type A personalities get fibro.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/16/2009 8:37 AM (GMT -7)   
Hi Patsie, this is an interesting subject. I have a load of differant health conditions but I never
attributed my Fibro resulting from any of them. I do know that it is not uncommon to have
Fibro along with a Connected Tissue Disease and in my case I have MCTD.

My Fibro symptoms really kicked in a few months after I had back surgery, although I had
symptoms prior to being diagnosed with Degenerative Disc Disease. I really have no
clue as to what causes Fibro. My guess is that it has something to do with our central
nervous system.

For much of my working career I had positions in a caretaker role. I worked with the
mentally ill, mentally challenged and worked with dementia patients. When I was a teenager
I babysat children with disabilities. I have always enjoyed helping others but I can't say
one way or another if our personality traits have something to do with Fibro or illness.

I can say there are wonderful, caring and supportive people on this forum!

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 11/16/2009 11:12 AM (GMT -7)   
Hey Ms McPatsie!!

I think the goodist theory is a good one. I've noticed that most people who have fibro have been that personality type.

I've had lots of health issues that could have sparked my fibro.. so I'm not sure what to tell ya on that respect. But as we've been told before.. it could have been something as simple as a virus that got is going. I wish we had an answer for what REALLY brings this syndrome on.. then maybe we'd get some answers as to how to avoid it!!!

Hugs....
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety DisorderDyslexia, Degenerative Disc Disease, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Meloxacam, XanaxLipitor, Talwin 
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 11/16/2009 11:27 AM (GMT -7)   
Well, we are all guessing here, just like the doctors.  I didn't have anything particularly stressing happening to me before I developed fibro suddenly.  But, I do have many health problems and nearly every one is autoimmune so that has me wondering.  I also wonder about a genetic predisposition because I have a first cousin that has fibro also but I don't know of any other member in my family history that had this illness. 
 
We all seem to be Type A personalities, though, and many deal with anxiety and depression.  I dealt with the anxiety but I'm anything but a person suffering from depression.  I'll have my moments, but I'm basically a happy person.
 
I've just typed a bunch of words and have come to no conclusion!  tongue
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 11/16/2009 2:39 PM (GMT -7)   
Great question!

Many of the symptoms of fibro are also symptoms of celiac disease. In celiac the only treatment is gluten-free eating. Once completely gluten free my digestive symptoms improved greatly, but my fatigue, fog, stiff/achy/painful muscles and joints all got worse.

Of course I'm guessing, but I think that years of not absorbing nutrients because of undiagnosed celiac either triggered or worsened my fibromyalgia.

It helps to keep the guessing conversations alive...otherwise how would doctors ever fine tune their practicing??
Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vitamin, B, D, Calcium, Magnesium, Fish Oil, Probiotic -- Trying Malic/Acid, CoQ10

Still a mystery - heat/humidity intolerance

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