Tired and frustrated

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AkinaChan
Regular Member


Date Joined Oct 2009
Total Posts : 48
   Posted 11/17/2009 6:44 PM (GMT -7)   
I know I've been missing for a while. I've been so tired every day I'm having trouble doing anything. This week I have doctors appointments and the movie premiere I've been waiting for all year, so I'm saving my energy for that lol.

I got a bunch of tests done by a new doctor, and now I'm more irritated that usual. I've had a fever of 99 - 100 for over four months now and no one can explain it even though it's not common. So I got all these tests done and they all came back normal, not what I was hoping for, it's good and bad, because still no explanation. But what was worse was the doctor, he kinda just said that my medicines cause my problems of being tired all the time, mainly the Dexedrine for my ADHD, he says it's not good for me and that I should slowly not take it, that he doesn't approve of treating ADHD in adults, and basically hinted that he really doesn't think adults have it. Well stupid I've had this since I was 5! I've been taking the same meds since then because they're the only ones that work and don't make me suicidal. Oh yeah and I don't take them every day, havn't for more than a year, so uh slowly coming off it isn't my issue. And I didn't take it for a year, and my sleeping problem never got better, so again the medication isn't my problem.

He also said stupid stuff about a psychiatrist and other things that made no sense. Asked if I was depressed, which I'm not, I was for years as a teenager, severely, I got help and I remember what it feels like when I was. So no I'm not. He was very arrogant, and all that my mom and I got from him is that he doesn't believe there's anything wrong with me. He said get up be active, do this do that, well that's hard to do when getting out of bed has been a struggle for a good couple months now, I know I should but I would like to fix the no energy and constant fatigue before I do so.

So basically he's a quack and I'm never going back to him, I left crying.

Saw my rheumatologist today, she gave me something that's supposed to help when I'm feeling really tired and such. So hopefully it helps. And she gave me a precription for the 25mg of savella, because the 50mg makes me really sick. So hopefully these things help.

I'm honestly sick of feeling so warm all the time, I'm not used to it. All I want is a little bit of relief.

Ok so ranting, sorry I'm just frustrated, I hate being just 22 and I can't do much. I'm afraid to apply for a full time job because of how I feel all the time, and I'm afraid of not being able to keep a job because of it as well. And it's just frustrating to know that I should be able to go to the mall, go out with my friends, and such without so many problems, but I of course can't be a normal 22 year old. I'm done now.
"Some books are to be tasted, others to be swallowed, and some few to be chewed and digested" - Francis Bacon
"I couldn't repair your brakes, so I made your horn louder" - Unknown

------
Diagnosed with: ADHD, Raynaud's Syndrome, Fibromyalgia, Asthma, Hypoglycemia, heart murmur, knee caps that are too high, reoccurring kidney stones, multiple food allergies, multiple drug allergies, multiple environmental allergies, possible underlying arthritis


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/17/2009 8:44 PM (GMT -7)   
Hi AkinaChan, it has been awhile since you have been on. Sorry you are dealing with so
much being only 22. You do sound frustrated, but don't give up. It might help you to set a
routine for yourself and set up short term goals. Doing this has helped me. Getting out of
bed in the morning by a certain time, being showered and dressed by a certain time,
eating breakfast and getting exercise in. Getting a morning routine established will help
jump start your day. I know that it may be a struggle to get out of bed when you don't feel
like it but it really does help. There have been days when I could stay in bed all day, but it
doesn't help me physically or emotionally. One step at a time, one day at a time, what ever
it takes is a step in the right direction.

Don't be sorry for expressing your feelings, venting is a good release of emotion. You are
stronger than you know. Hoping that the lowered dosage of Savella will help you.
Sending gentle hugs.

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/18/2009 8:05 AM (GMT -7)   
It sounds like it is time to find another doc that will take you seriously. When I first started having fatigue my doc thought it was meds, age and etc. til I went in one day and told him this is not normal something is wrong. He knew I was serious and said okay lets do some test. I don't know maybe it was the tone of my voice that made him realize I was serious and there was a problem. We know our bodies better than anyone else and when there is a problem we need to convey that with authority in our voices to our docs.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 11/18/2009 12:41 PM (GMT -7)   
Hi!  I'm sorry you are having such a bad time.  First of all, I have had temperatures with no illness.  My doctor thinks it's fibro.  I remember seeing him for a regular appointment and when they took my temperature it was 100 degrees.  I take ibuprofen and Tylenol, to boot!  But I felt just fine.  So maybe that's what's going on but you are so concerned about it.  It sounds like they have run a lot of tests on you so this could be a possibility.  As I said, I take ibuprofen and Tylenol for pain and those are fever reducers and still, the lowest my temperature has been is 97 degrees.  I just tell people I'm a Hot Mama!  turn
 
My son is ADHD and hasn't taken medicaton since he turned 17 years old.  He was diagnosed when he was 3 years old and needed medication in order to function in school.  He is now a very successful 33 year old man.  I do still see the hyperactivity in him but that is good!  He gets a lot accomplished in a day.  But, your doctor might be right about the Dexedrine.  I know you stated that you have taken it for years but sometimes, if we are on meds for a long time, they start to work differently.  I know I'm on my third medication for diabetes because the others stopped working after a while.  Dexedrine does have the ability to make an ADHD person tired, it seems to me.  It is a stimulant and when  you give a stimulant to a hyperactive person, for some reason it has the opposite results.  My son was on Ritilin and it is a stimulant, too, and that's how it helped him.  But, you have been on this a long time so it might be worth weaning yourself off it, like your doctor suggested, and see what happens.  You obviously aren't happy with what is going on now.
 
Exercise really does give you energy.  Right now you don't know how you could exercise, but you can, if you put your mind to it.  I'm not saying to run to the gym.  I'm saying, don't sit or lay too long, do some stretching exercises, and go for walks.  I think you will find that you will have more energy then.  The more energy you get, the more you will want to do, and the better you will feel.  I know I do.  I hate any form of exercise, but I started walking and feel so much better since!  Some days I have to drag myself out the door but, once I get going, I start to feel better.  Give it a try!  It can't hurt you and it could help you.
 
Also, try not to eat a lot of carbohydrates and sugar.  They can make you very tired, too.
 
Lastly, your doctor may be giving you really good advice but it wasn't what you were expecting to hear.  I have a lot of respect for doctors that don't rush to write prescriptions for everything you have.  His advice, to me, seems sound and it sure won't hurt you one bit to give it a try...a good, honest try...not just a day or two.  I'd love to see you up and having a good time.  You should!  You are only 22 years old and this sure isn't fair, is it?
 
Also, you might ask your doctor about malic acid/magnesium supplements and vitamin D.  There are links about these in the Fibro 101 thread...the first thread on the forum.  These have really helped me with fatigue!  They are finding out a lot about vitamin D deficiency and many with fibro are deficient in D and malic acid and both can cause pain and fatigue! 
 
I do hope you get moving and getting some energy back.  Feel better soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 11/18/2009 3:05 PM (GMT -7)   
Hi there,
 
 
I am sorry that the dexadrine doesn't give you any energy.  I take adderall which is dextroamphetamine and it gives me energy, but I am not add.  In fact I just had mine increased due to working a job now and it really has helped. 
 
I hope that the savella works for you.  It is relatively new, and I don't know much about it.  Though I have read that some people are having success with it. 
 
The above posts make a lot of sense, especially the walking.  I do a lot of walking and it makes me feel a lot better.  It increases my energy and gives me an overall good feeling.  I know it can be hard.  I couldn't use to do it.  But start out slow.  Even if it is just for five minutes at a time and gradually increase what you walk each day.  They say that walking five out of seven days is very benificial. 
 
The stretching exercises losen up the muscles and are relaxing.  Remember to breathe.  It really helps. 
 
The malic acid and vitamin D3 are really good for you.  Most fibromites are low in thes supplements.  I have been taking the malic for about a year now and it has really helped.  I have been taking D3 for many years, and believe me I notice it when I don't.  Especially this time of year.
 
I hope that you feel better soon.  Keep trying and never give up. 
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Mrs.T
Regular Member


Date Joined May 2009
Total Posts : 58
   Posted 11/18/2009 5:35 PM (GMT -7)   
Ohh, someone is going to go see New Moon, lol.
I'll be at the theater Thursday night/Friday morning at midnight watching it too!
Make sure you try the vitaminD if you haven't yet, it really helped me out.
Mother to two wonderful boys and wife to the best husband ever.

~Fibro, Diabetes, PCOS~


** "Don't tell me to suck it up, do I look like a vacuum cleaner?"


AkinaChan
Regular Member


Date Joined Oct 2009
Total Posts : 48
   Posted 11/18/2009 6:58 PM (GMT -7)   
Thank you all for the replies and encouragement. I am going to try to be more active, thinking I'll do my best to get my puppy a harness so he doesn't choke himself with the collar and he and i can take some walks together, mabye they'll tire him out lol.

I didn't like the doctor's advice because he acted like I just don't try. He's not my primary or anything, I have a primary and a rheumatologist, I'm going to keep checking with them about everything going on because this doctor or rather so called specialist pretty much acted like there's nothing wrong with me. My mom was with me and even she says I shouldn't go back, I apparently saw him once before when I was in the hospital a couple years ago with a kidney infection, we didn't like him then either, he was very arrogant.

The Dexedrine makes me focus, when I take it. I don't take it every day, and for a year I didn't take it at all, the only difference was that I couldn't focus. My problem is being constantly exhausted and having no energy.

I see my primary doctor tomorrow and I'm asking her more questions so hopefully I can figure something out with her. And then I'm forgetting all this stuff as much as possible because it's the New Moon premiere and I've been waiting for this basically since Twilight came out lol.
"Some books are to be tasted, others to be swallowed, and some few to be chewed and digested" - Francis Bacon
"I couldn't repair your brakes, so I made your horn louder" - Unknown

------
Diagnosed with: ADHD, Raynaud's Syndrome, Fibromyalgia, Asthma, Hypoglycemia, heart murmur, knee caps that are too high, reoccurring kidney stones, multiple food allergies, multiple drug allergies, multiple environmental allergies, possible underlying arthritis


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 11/19/2009 4:56 AM (GMT -7)   

No one knows your body better than you do so I'm sure you will do the right thing.  Just be careful with the dexedrine.  It can be habit-forming.  You don't want that, for sure!

I walk my dog when I go for my walks.  We walk about a mile in the morning before breakfast and sometimes walk another mile in the afternoon.  She will be 13 in a couple of weeks and is in fantastic health since I started taking her with me.  Before we started the walks, she was a little overweight and somewhat lazy.  If I tried playing with her, she would be panting really hard with just a tiny bit of running.  I just figured she was getting older....NOT!!!  When we started walking, she lost a pound of weight.  (She's a toy breed so she wasn't really heavy.)  Then, her energy returned!  Honestly!  Now she runs like the wind without tiring and has the energy that she had when she was three years old!  She's like a puppy again. 

So, there really is something to exercising giving you energy.  And, as a bonus, it helps with the pain.  I do think you will notice the difference.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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