Good morning, feelings of isolation?

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mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 11/19/2009 8:55 AM (GMT -7)   
Good morning everyone. Is everyone looking forward to the holiday season? Last year, dh got me warm fuzzy sweaters, an electric blanket and a massager for my computer chair. See a pattern? lol

I'm sorry I deserted the forum again for a bit. I was feeling very antisocial, and felt isolated, especially when at the computer. Somehow that seems like an oxymoron, I don't get it. How could I feel more lonely when I could connect with others that get how I feel? I really think I need to look into those lights that Jeannie has for SAD, this may be part of my problem. The other part was of course my fibro has been feeling worse with the colder weather. Although... one day I managed to bring in to the basement and stack 1 1/2 cords of wood, about 5 hours work! My arms were so sore, that deep bone ache, that night. But my legs felt great! They were sore, but the normal muscle ache from worked muscles. Not the restless leg phantom ache that makes no sense and drives me batty. Then the next week, I tried raking some pine needles and the mess of bark by the wood pile. I think I lasted maybe an hour, and was out of commission the next day.

Anyway, is depression a part of fibro? I know many have the two, but I'm not generally depressed. But sometimes, my feelings seem to get out of control. I would chalk it up to SAD, but it's not only in the fall. I go through periods where I really don't like people, or myself. I feel so bad for the kids, I don't even want to talk to them, and I find myself yelling a lot. :( Maybe it's the pain too. Of course I'm in a good mood when the pain isn't as bad.

My face was really bad for about 3 weeks of constant pain, I'm sure that didn't help. It still hurts at times, but not constant, yeah! So I'm getting tooth work done on the left side (the side that flared this time) in 2 weeks. But my right side still has flares of pain, although not as bad and only short bursts. I can take that. My MRI is on next Monday.

So that's my update. I hope you are all doing well, or at least coping well!
(((soft hugs)))
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med)


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/19/2009 9:46 AM (GMT -7)   
I'm sorry you're not feeling up to snuff... It most likely is the durned darker days ahead. You asked if depression is part of fibro. YES! YES! YES! It's not just the sadness from losing our old flexibility. Pain actually uses up serotonin in the brain. I mean it EATS IT UP!

Humans use serotonin for mood control, circadian rhythms (sleep cycles), pain perception, appetite and some other things I can't remember thru the fog. When you become deficient in serotonin you have difficulty sleeping, feel depressed and anxious, feel pain more strongly and want to eat "comfort foods" that are high in carbohydrates. This is because eating carbs gives a boost to your serotonin production. Sometimes when I'm having trouble falling asleep I'll have a bowl of cereal or some rammen noodles and I"m off to Zzzzzzzz land before I know it.

This is why doctors prescribe Selective Serotonin Re-Uptake Inhibitor (SSRI) medications for fibro. These meds do far more than work as anti-depressants, as they are classified. Trying the different ones, because they all have slightly different chemical formulas, until you find the one that fits for you, is relatively easy. Just ask the doctor for some two week samples. I'd start with Prozac. It comes in an inexpensive generic - $10 for 3 months at most big pharmacies- and has the longest track record for success.
Drugs in this class include (trade names in parentheses):

* citalopram (Celexa, Cipramil, Cipram, Dalsan, Recital, Emocal, Sepram, Seropram, Citox)
* escitalopram (Lexapro, Cipralex, Esertia)
* fluoxetine (Prozac, Fontex, Seromex, Seronil, Sarafem, Ladose,
* fluvoxamine (Luvox, Fevarin, Faverin, Dumyrox, Favoxil, Movox)
* paroxetine (Paxil, Seroxat, Sereupin, Aropax, Deroxat, Rexetin, Xetanor, Paroxat, Loxamine)
* sertraline (Zoloft, Lustral, Serlain)
* zimelidine (Zelmid, Normud)


I'd start with these meds (SSRI) before going on to the NSSRI meds (Lyrica, Cymbalta and others). This class of drugs works on your norepinephrine levels as well, and tend to make sleepy people more active. Sounds like you have the activity level going just fine so the less meds the better.

The light that I use is the 10,000 LUX one and I use it even in the summer if I'm indoors a lot baking wedding cakes. I keep it on my workbench in the bakery or on my desk in the office. It's like a balm for my soul. The light feels a little warm, and very calm and soothing. I LOVE it! Exposure to the light raises serotonin levels, too.

Hope this helps... I'd get the light pronto and look into the meds as well. You don't need a prescription for the light and I bought mine on Ebay. Well worth the money.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 11/19/2009 9:49 AM (GMT -7)   
The pain I've noticed makes me more irritable, maybe not so much depressed, but to me it seems it's hard to deal with other ppl when I can't even deal with myself and my pain. My dr has put me on an anti-anxiety med and for the most part it helps, but about a wk before that time of the month, nothing seems to help, my husband describes me as a "rabid momma grizzly bear" that wk.
I can honestly say though, it would be a surprise if we didn't have emotional disturbances from all the pain, fatigue and medication side effects. Fibro gives us a beating, it seems, physically and emotionally.
Lola

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.
Lola

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID


Buspar 10mg, Acetometaphen 500mg, Zantac 150mg, B-complex, Tramadol 150mg


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 11/19/2009 11:06 AM (GMT -7)   
Jeannie, these lights aren't cheap, are they! That's why I always put it off, I hate spending so much money on something that may not work or I may not use. Though I'm sure it would make a difference! I saw they have full spectrum fluorescent lights. Do you think this would work the same way? We have fluorescent lights both in the work space in the kitchen and in the basement rec room (both places where I spend most of my time). I wonder if these might be more practical for me. Or if I can find a smaller box, the ones I just saw are pretty big.

As for the meds you have listed.... I'm already on amitriptyline, an antidepressant. Would this be in the same class as the SSRI or NSSRI? I like the amitriptyline for helping me sleep and pain control. As soon as I tried to go off it and try clonazepam, my facial pain came back. It gets better usually when my doctor raises my dose, but he won't raise it again now. It also helps with the shooting/ stabbing pain in the rest of my body. I'm really loath to talk to my doctor about another problem until I get this facial pain sorted out, or he is sure to think I'm a nut job! lol
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med)


yo-yo
Regular Member


Date Joined Aug 2009
Total Posts : 159
   Posted 11/19/2009 1:19 PM (GMT -7)   

Hi Mamanan,

Just had to comment on your question about full spectrum floresent lites.  Florestents themselves are really not good for your all over health and can make you irritable.  I have had full spectrum floresents in my kitchen for years and really like them.  I think they they tend to make me less irritable and give such a nice all round sunshiny glow to the whole room.  I'd give them a try as I think they are well worth it.

Yo-yo


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/19/2009 2:44 PM (GMT -7)   
Hi Mamanan, you have been missed. It is good to hear from you. I truly believe fibromites
serotonin levels are lower than the norm. Taking a SNRI, Savella has helped me somewhat,
but I think being outside on a sunny day really makes me feel better. When I lived up north
during the winter I always felt like a slug, no energy and more moody. The sun definately
affects how I feel. The combination of sun and exercise really helps. Do you notice that you
flare more when it is raining and cloudy? I know that I do. I have thought about those light
boxes too. I have a friend who swears by tanning, saying it helps her, but my skin doesn't
need anymore wrinkles.

You definately sound like you have some energy, five hours of stacking wood. I'm sore
just thinking about it. Hope that you are feeling better with each day and that nasty facial
pain leaves forever.

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 11/20/2009 9:00 AM (GMT -7)   
Quoting from a medications page: Amitriptyline acts primarily as a serotonin-norepinephrine reuptake inhibitor, with strong actions on the norepinephrine transporter, and moderate effects on the serotonin transporter.

You need more serotonin so switching to a different anti-depressant could make all the difference. The light I use is 10,000 LUX. You aren't going to get this intensity from an overhead light, but if they are throughout your home it may help. My doctor has them throughout her office.

One way to check and see if the light may work is to answer the question, "Are you of northern European ancestry?" Most people with S.A.D. are descendants of survivors of the ice ages in Europe.
Another inexpensive way to check is to have a few tanning sessions at a tanning salon. You don't have to get tan, just have your eyes be exposed to the light, so you can wear your chothes if you like. If this lifts your mood you most likely have S.A.D. Not diagnosing here, just repeating what my doc told me.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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