massage, worth it?

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mamanan
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Date Joined Jun 2008
Total Posts : 846
   Posted 11/19/2009 11:32 AM (GMT -7)   
I finally made the time for myself and went and got a massage (as well as a much needed eye brow wax, a totally unnecessary facial, but so heavenly! and finally a much needed hair cut too. I felt so pampered :) )

So, the massage. My PCP thought it would be very beneficial, as I am extremely tight in the upper back/ shoulder area. This area gives me the most pain, and I can't stand to have anyone touch me, it can bring on spasms. I will hurt for hours after a poke. The massage itself was soothing, during the second half. But she coudln't use her fingers at all, I was only able to tolerate her whole hand with gentle pressure. That night, I felt so bruised... you know, that beaten up feeling. And I felt even tighter the next day than when I went in. She suggested I go in for a regimen of 1-2 X/week for about 6 weeks, with the goal of desensitizing that area. I'm just not sure if it's a good idea or not. I'd hate to spend all that money and time on something that will make me feel worse.

I tried reading up on SID (sensory integration disorder) but most of the literature I could dig up had to do with autism. I'm sure that fibromites suffer from this too. We are almost all sensitive to one stimulus or other. For me it's noise, crowds, and touch on my back. It has gotten so bad that if someone at work is too close to my personal space, I start to hurt from just the anticipation of a touch, even if I don't get touched at all. Most everyone at work now knows not to touch my back! It can get lonely too, when you see everyone else giving hugs, having some tomfoolery, or just a pat on the back. Even dh has to warn me that he will touch me first, and start with a gentle whole hand touch. A few days ago, he just about sent me through the roof. He was just walking by, I think we were putting away the laundry together, when he squeezed my shoulder and gave me a quick kiss at my nape. We all need touch, and I feel like I am alienating everyone from touching me.

So, any thoughts? massage, yes or no? What's the best way to desensitize yourself to touch? Anyone with more info on SID?
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/19/2009 11:46 AM (GMT -7)   
Make sure you have a good massage therapist.  I got mine from the American Massage Therapy Association.  Here is their link.  You will see on the bar at the top where it says "Find a Massage Therapiset". 
 
 
These people are not only licensed but need to take courses every year to keep this certification.  Mine is a board certified massage therapist and has taken many courses on how to massage people with fibromyalgia.  She is absolutely wonderful and it does help me.  But, if I've done stupid stuff and gotten myself in worse pain, I can hurt the next day after a massage but will feel better as the days pass.  I find that drinking a ton of water the day of the massage is good too because it gets rid of the toxins in the body.
 
Personally, I think getting a massage that frequently is overkill.  I see my massage therapist once a month.  Perhaps twice a month to start would be more like it.  I think going twice a week would make you sore and the therapist rich!  LOL
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 11/19/2009 11:56 AM (GMT -7)   
well, she did say that after 4-6 weeks, we could cut back to once a month or so. But that I needed many sessions at first to desensitize my back. I have never seen a chiro for the same reason, I believe all these appointments are only a way for them to make money!

I also asked her if she had any experience with fibro patients. She said she does, and they also do myofascial release, so I thought it was a good place to start. But she asked me if I liked heat. Of course I said yes! So I got these wonderful heated blanket on my legs while she worked, aaaah. But she mentioned that most of her fibro patients love the heat, but in school, they were told that heat and fibro don't mix! I foudn that very odd. She is also very young, I think she just graduated last year. If I decide to go back, I will ask for a more experienced therapist.
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/19/2009 12:32 PM (GMT -7)   

If you check out that link I posted,  you can find a massage therapist in your area, if you are interested.

Mine has a heated table and puts heated towels on my legs and across my shoulders.  Ahhhh.......I had to cancel my massage because my son is coming for a visit but I've rescheduled...but it will be a month from now.  confused

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/19/2009 1:08 PM (GMT -7)   
Ahhh, I haven't treated myself to a massage in a long time. I go to a Wellness Center that is part of the hos. we use and they are trained in fibro and MPS but I have found that not all hands are created equal and some have too heavy of a touch. I have also found, the hard way, not to have too much done at one time or I feel sick from the toxin for days after no matter how much water I drink. My back and shoulders are always the worse so I have her spend a lot of time on them but I can tell when I have had enough and ask her to move on. Personally, I wouldn't do once or twice a week maybe every other week at the most.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 11/20/2009 10:05 AM (GMT -7)   
You said something about not wanting to keep going back to the massage therapist or chiro because you think it is a way for them to get more money. Maybe you need to look at it a different way, You see your doctor regularly. You take your meds regularly. The doctor and the drug company gets your money every time you do that. If massage turns out to be a therapy that helps you, doing it once a month or so is a lot like taking your meds or seeing your doctor regularly. It's just one more thing in the arsenal of things to do regularly to help you feel better. Since fibro is more of a marathon than a sprint and has no quick fix, the treatment needs to go the distance with us. That's the way I think of it. Lisa
If I can laugh at it, I can live with it.

Post Edited (geckogirl) : 11/20/2009 10:10:21 AM (GMT-7)


hope4
Regular Member


Date Joined Sep 2007
Total Posts : 306
   Posted 11/20/2009 5:45 PM (GMT -7)   
Massage helps me a lot. I have someone who has worked with me for a while. She always checks in first to see how I am that day, and adjusts what she does accordingly. I view it as a treat that also helps me a lot physically and mentally. She also gives a discount if you buy a package of multiple massages, (no time limit so it is a good deal).
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