Are fibromites more prone to osteoporosis?

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crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 11/20/2009 7:09 AM (GMT -7)   
Are fibromites more prone to osteoporosis? Doing some research, I read that fibro is
associated with osteoporosis. The article stated that a large percentage of people with
fibromyalgia have decreased bone mass in their neck, spine and hips, especially after
age 50. I know menopause causes a loss of estrogen which can be attributed to bone
loss. A study that was done showed that fibromites were deficient in a growth hormone
that helped with bone replacement.
 
I know that some of us were tested and found to have very low levels of vitamin D,
myself included and put on prescription vitamin D therapy, 50,000 IU weekly. Maybe
fibromites have a more difficult time absorbing vitamin D and add to the risk of getting
osteoporosis.
 
Six years ago I was diagnosed with osteoporosis, I'm 57. I have been taking Boniva
since I was diagnosed along with calcium and vitamin D supplements. I had a bone
density scan and it revealed my osteoporosis is getting worse despite taking Boniva.
 
Is there a fibromyalgia- osteoporosis connection? Any thoughts?
 
Hugs
 
Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Sherrine
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Date Joined Apr 2005
Total Posts : 17101
   Posted 11/20/2009 10:27 AM (GMT -7)   
Robin, seven years ago I had a bone scan and I was fine.  Five years later (2007) I had another bone scan and had a moderate bone loss!  I've been taking Evista and calcium and vitamin D and had another bone scan.  I'm in a holding pattern but my doctor said if I start losing more bone there is an infusion that he wants to do...not sure if I like the sound of that.
 
Be sure to use calcium citrate (Citracal).  It's the most easily absorbed.  Oh, I'm 62.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 11/20/2009 10:54 AM (GMT -7)   
Thanks Sherrine, I needed to pick up some more calcium and I'll try the Citracal. I drink at
least 3 glasses of milk a day and exercise on a regular basis. I'm thinking there is the fibro-
osteoporosis connection, but should probably factor in the medications I have been on plus
my other health issues.

I just had the bone scan yesterday and haven't talked to my doctor yet. The technician
actually showed me the computer images, which is usually unheard of, but I am glad she did.

The infusion process does sound strange and invasive, now I am curious. Think I will do
some research.

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


hope4
Regular Member


Date Joined Sep 2007
Total Posts : 306
   Posted 11/20/2009 5:36 PM (GMT -7)   
Hi - I too have both. Last year I had the infusion - Reclast. It was very easy, it only took about 20 minutes. I am unable to take Boniva, Fosamax, and the others, because of severe stomach upset. I have my bone density in a few weeks so we'll see if it has helped. I also take Citracal, it is really easy to digest.
If your insurance will cover the Reclast, I would certainly consider it.

Hope

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/20/2009 5:48 PM (GMT -7)   
Thank you Hope for the information about infusion. I will definately be asking my doctor
about it. Please let us know how your bone density test turns out, I'm interested.

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


hope4
Regular Member


Date Joined Sep 2007
Total Posts : 306
   Posted 11/22/2009 12:15 PM (GMT -7)   
I definitely will. I have been really wondering lately as my hips have been so achy. Would osteoporosis cause that?
My hips are where I showed the lowest density.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/22/2009 12:30 PM (GMT -7)   
My hips are achy, too.  I have some loss in my hips but am worse in my spine.  Actually, since taking Evista, my hip bone loss is better but my spine bone loss is worse!  Go figure.  But, I think the achiness is more fibro because it comes and goes with me. 
 
Hope, I am anxious to hear if the infusion helped you.  My doctor said that if there was  no improvement with my next scan, he wanted to do that.
 
I also take Citracal.  I used to take Caltrate (calcium carbonate) and I wasn't absorbing it.  BUT, Caltrate needs stomach acid to break down and be absorbed and I take Prilosec that helps stop a lot of the production of stomach acid.  So, I wasn't absorbing the calcium.  I also did a little test after I bought Citracal.  I got two glasses of warm water.  I put a Caltrate in one and a Citracal in the other.  After a half an hour, the Caltrate was still whole but the Citracal was completely dissolved...in water!  So, I have the best chance of it being absorbed with Citracal.  Having Crohn's doesn't help with the absorption, either.   shakehead  
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 11/22/2009 12:36:20 PM (GMT-7)


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/22/2009 1:40 PM (GMT -7)   
My hips also ache and I blame it on the combination of osteoarthritis and osteoporosis.
The bone density scan shows bone loss in the hip region, and my lower spine to be alot
worse. I did have lower back surgery on L4 L5 and S1 due to Degenerative Disc Disease.
 
Sherrine, I took your advice and switched from my Caltrate to Citracal.
Hope, I am curious to hear what your bone density results are.
 
I know my back is weaker and I have to be careful not to bend but stoop to pick things
up, unloading the dishwasher is tricky. My kitchen is arranged to help from bending over
to get things. I got rid of all my heavy cast iron pieces years ago.
 
Robin

Marlee2
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Date Joined Aug 2007
Total Posts : 6067
   Posted 11/23/2009 7:21 AM (GMT -7)   
I too have osteoporosis. But who knows how long my vit D has been low. I'm going to have the infusion after the holidays cause I can't take any of the oral meds with all my stomach problems.
 
This is an interesting finding.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


dottii
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 11/23/2009 8:09 AM (GMT -7)   
Hi - I too suffer from both fibro and osteoporosis, though I have had an underlying anorexia, which is what the medics attribute the osteo to.  I have now had three spinal fractures and times without number I have broken my wrists, arm, shoulder and ankle.  Such fun (NOT) when on more than one occasion I have had both wrists in plaster at the same time - very embarassing as even going to the loo is something i had to ask a friend to help me with shocked I am on three monthly infusions of Bonviva because my stomach would not accept any of the bisphos's !  I chomp on Calcichew for a pastime - yummmmmyyyyy rolleyes    I will ask my GP who i get on with very well as to what he thinks of a link between fibro and osteo and will let you know what he thinks.  Having said that, meeting ppl both here and on other forums, there do seem to be many fibromites who do have a prob also with the osteo................more investigation might be a good thing!
Blessings to you all
Muchly, Dottii

crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 11/23/2009 6:13 PM (GMT -7)   
Hi dottii, Sorry you are suffering from severe osteoporosis. You have had your share of
fractures, hoping the infusions help you. Vitamin D is very important. If you haven't had
your levels checked you might ask your doc to check them. My rheumy is now checking mine
on a regular basis. Glad you posted. Stop back and give us updates. We care!

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


dottii
New Member


Date Joined Jul 2005
Total Posts : 3
   Posted 11/30/2009 5:46 PM (GMT -7)   
Thank you so much Crazykitty for your response.  Yup I will get my GP to check my Vit D levels - I am so lucky that he really is switched on and also totally understanding - he is also such a nice chap and always insists on giving me a hug at the end of the consultation if he knows I am really struggling.  A complete change from the guy I had before who sat on the fact that my T score had gone from osteopenic to full blown -3.7 for three years mad   Only after my first fracture did they actualy do anything proactive - many ppl said I should have sued him - but I don't like that sort of thing.  Anyway it was as a result of that that I have now got my lovely GP - so maybe there is the silver lining to the cloud !! yeah
 
Will come back with anything I find out and let you know.
 
Muchly, Dottii

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/19/2010 6:04 PM (GMT -7)   
Hi, got a question for fibromites who also have osteoporosis. Has anyone taken Forteo?
It is an injection for osteoporosis you give youself daily for two years.

Today I had an appointment with my rheumy. We discussed the results of my bone density
test. A T score of -1 is considered normal. A number between -1 and -2.5 is ostopenia
T scores of -2.5 and below are considered osteoporosis. I have osteoporosis in my neck
hips, spine and forearm. My spine is the worst with a T score of - 3.9. Rheumy is concerned
and I will either do the Forteo injections or the Reclast IV infusion depending on insurance.
I was on Boniva for six years my osteoporosis only got worse.

Any input would be helpful. Thanks!

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


merfy5
Regular Member


Date Joined Jul 2008
Total Posts : 58
   Posted 1/19/2010 6:32 PM (GMT -7)   
I had never got a bone density test done but my hips back and legs hurt so bad ..I was diagnosed with sacroilitis but I have been told I might be in early stages of osteoarthritis and I also have had broken my ankle 6 x in 5 months I had my talus bone removed and its been taken over by arthritis ....
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