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fmmom
New Member


Date Joined Nov 2009
Total Posts : 9
   Posted 11/21/2009 5:41 PM (GMT -7)   
Hello, I am new to the forum but not to FM. My pain started about 20 years ago. After many years of doctors and mis-diagnosis they told me I had FM about 12 years ago.

At first I was in sever pain and could barely move, but after a few years of trial and error I was able to cope and get by daily. I have my bad days still but overall I do ok. It is tough on my bad days trying to explain to family, friends and co-workers why I am limping or moving slowly. Although my husband has been with me from the onset he is starting to question that I am actually in pain. Since I do have days that I look and act totaly fine.

My first question is, has anyone gone into sort of a remission? Everyone I have ever met with FM has it bad. I feel like maybe this isn't FM after all. Others never seem to get better. I also feel alone because I really do look fine.

I have been trying to pin down what triggers a flare up. Lately I have flare ups more often. The latest started last night. I wasn't under any stress physically or emotionally. I have been sleeping ok. Has anyone noticed any other triggers? Can foods trigger a flare?

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 11/21/2009 6:19 PM (GMT -7)   
Hi...and welcome! 
 
I was dx'd with fibro about 15 years ago, but I also had signs of it long before that.  I think am am not the typical fibromite, as I have had long periods of time when the pain was simply 'white noise' and I actually functioned like a normal, healthy human being.  Which has often made me wonder about my dx also.  I cannot, however, recall a day in all those year when I didn't take some kind of OTC pain killer.  My symptoms did not even begin with pain.  I had numbness and tingling sensations in my legs, and extreme skin sensativity.  I went through every test known to man, including heavy metal poisoning.  Everything was normal.  Then one day the pain started...tested again for Lupus and other autoimmune diseases.  Nothing.  Went through another period of feeling somewhat normal.  I finally went to a Rheumologist after some heavy duty  burning pains and weakness in my arms and legs.   Tested again...all normal.   Then she did some trigger point testing and dx'd me with fibro/myofascial pain.
 
Unfortunatley, those days are over and I experience pain somewhere almost every day.  The fog has increased and sleep has once again become an issue...or lack there of.
 
Yes...it it hard for friends and relatives to understand this disease because of the way it attacks us.  Good days...bad days.  Sometimes it hits us mid sentence.  For me, stress or over doing on a day when I feel okay triggers a flare.  I raked leaves last week and am still paying for it.  I took a five mile hike up a mountain this summer...today I could hardly walk to the maibox.  It's a very insidious disorder.
 
Others will chime in here and give you their opinions.  I have never noticed certain foods triggering a flare...some have.
 
You are right...it can be a lonely disease, especially when family and friends see you having a good day and the next day you are gimping to the bathroom!
 
Donna
 
 
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


fmmom
New Member


Date Joined Nov 2009
Total Posts : 9
   Posted 11/21/2009 6:49 PM (GMT -7)   
Donna
Thank you. I like the term fibromite. I never had someone that I could talk to about this and felt uneasy talking on a forum. I am glad to know that I am not alone with periods of feeling fine.

Yes usually stress or overdoing it does it for me as well. Most of the time I can pin point exactly what I did to trigger but not this one. I guess I shouldn't put so much energy into why it happened and just try to rest.

Again, thanks

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/21/2009 6:56 PM (GMT -7)   
Someone on the board/wall asked about Flareup causes found this pretty complete. I know their are others such as chemical sensitivities, feel free to add to this list. :)

What triggers Fibromyalgia?
Doctors argue that emotional or physical triggers can cause a flare in fibromyalgia symptoms. A flare, short for flare up, usually is accompanied by constant pain and lethargy. Patients suffering from a fibromyalgia flare often cannot sit, stand or lie down comfortably for any length of time.

Flare ups can be triggered by strong emotions including depression, anger or stress. Fibromyalgia flares can also be triggered by physical issues ranging from too much exercise to the beginning of an illness. Cold, damp weather or extreme heat, anything that places stress on the body, can also act as triggers for a flare up.
 
Remission: A period during which symptoms of disease are reduced (partial remission) or disappear (complete remission). ps this is off a fibro support website
 
I have been in a flare for 3 months now but for a time this summer like early june i would say I was in remission and felt wonderful.  Still had some back pain but not so much FM pain.
Feel grateful for your remissions and do not feel bad because you look good.  You are ill not dead :)
Hope this info helps you and feel better!

Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 11/21/2009 9:18 PM (GMT -7)   
I don't have it so bad either ... for that I am glad.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/21/2009 9:27 PM (GMT -7)   
HI!!

And welcome to our Fibro Family! I sure am glad you found us because this can be such a lonesome disorder like you already know. I can understand your husband's confusion and your questions about why we look good sometimes and at other times we look like a 95 year old cripple. Oh, sorry if I offended any nonagenarians out there...lol But seriously it's just how fibro is.

Most everyone here has pain that goes up and down, in and out sort of like the waves on a beach. The only difference is the timing and the intensity of the pain. For me I most often ebb and flow hourly. That might be due to the pain medications I take, somewhat, but it's just how my pain is. Also, I 'flare' when I'm hit with heavy emotional stress, too much physical activity like lifting furniture (admitting my sins here) or being extremely low on sleep. But for e the biggest trigger is the weather. When we have large shifts in weather like a large storm comes in or the seasons seem to change very fast, then my pain level is OH-WOW! out of site. That's where I am right now. I live in Western Washington in a modified marine climate. We're had big rain/wind storms come through every other day for the past two weeks and this body of my is revolting! I mean that as a verb, not as being descriptive...well, OK, never mind...lol

I'm sure your hubby does love you dearly but on the other hand it has to be hard to believe someone can be fine one minutes and literally 5 minutes be in agony. The only thing he needs is some education on fibromyalgia. No, you can't cure it no matter what the hucksters try to sell us. YES, it can be treated if you have a good doctor. Good pain treatment is out there. Please ask your hubby to go to a doctor's appointment with you. Find a couple of good books for him to read. If he's only going to read one and he wants the fast facts, try Fibromyalgia for Dummies. Yep, it's in almost every library. He can read it at no cost to either of you. ;-) Then invite him to come here and read, ask questions and learn how others just like his lovely wife live with this every day...just as you do. My hubby is very supportive and I am so lucky, but on the other hand a couple of family members prefer to ignore that I have any problems at all. Oh well, I do what I can and my goal is to enjoy life and help others understand that we CAN live with fibro and have a wonderful life too...different but wonderful.

Hope this helps!
Chutz
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 11/22/2009 8:44 AM (GMT -7)   
Hi fmmom and welcome. I too went it alone without anyone to talk to about fibro for several years before I found my Fingertip family here and now I don't know what I would do without them. Fibro is wacky, I don't understand my body so I don't expect normals to understand it. Some times I can pinpoint what causes a flare and other times I don't have a clue, maybe it's the way the planets are aligned. I can't say I have had a break from fibro since it all started, I have good days and even weeks but the pain and fatigue is always there. Right now my neck is messed up again and the only thing I can relate it to is a new pillow I bought a week or so ago.
 
Having fibro is lonely cause no one has a clue what we go through each and everyday. Unless you want to complain all the time about how you feel and have normals think you are whinning about nothing we suffer in silence. There are certain diseases that bring fear to the general public like heart attacks, cancer, MS, RA and even some spinal issues but fibro is foreign to them and they have no idea how we suffer. But we always have each other to bring our problems to and for that I'm thankful.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 11/22/2009 9:00 AM (GMT -7)   
Hi, FMMom, and welcome!  No, you are not alone.  There are a lot of us fibromites out there but you have come to a very good place.  We have wonderful members that love to help one another and we really do care about each other, too.
 
Be sure to read Fibro 101...the first threat on the forum.  There are links to a lot of good information about fibromyalgia and you will learn a lot there.  There are also some links that could possibly help your husband to understand...especially The Spoon Theory and Dr.'s Respond to New York Times Article.  These could be quite enlightening for him.  Also, there is a great list of symptoms on Fibro 101 too along with information on supplements that have helped a lot of us.  So, do read it.  I think it will help you.
 
I'm so glad you found us and joined in!  I'm looking forward to hearing more from you soon.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 11/22/2009 9:13 AM (GMT -7)   
Welcome to the land of friendly fibromites where fibro fog and fibro flares are not
uncommon and people care. We understand, we're here to share!

You already have recieved some great thoughts. Having fibro, we all know the challenges
of living day to day with it, that is are common bond and makes this forum so great.
We know we are not alone!

Glad you have found us.

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

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