Question on Pressure Points

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Regular Member

Date Joined May 2006
Total Posts : 36
   Posted 11/25/2009 6:52 PM (GMT -6)   
I'm new here from the UC forum, and have been thinking about Fibromyalgia for several years.  I didn't discuss it with my doctor for a few different reasons - 1) trying to talk myself out of the possibility, 2) always felt decent whenever I was in for other reason, and most importantly, 3) I think Fibro patients get a bad wrap and I didn't want to deal with "it's all in your head" kind of reaction.
Finally last week I went in, and of course, we are testing for other things first.  I do have an appointment with a Fibro Specialist in about two weeks.  I know one of the things they do is the pressure point test.  Can anyone tell me if these pressure points are still sensative when you are feeling well.  Today I'm feeling better than I have in a couple of months, and I don't know if I should keep this appointment if I'm feeling good at the time.  Will it do any good?
Thanks for your input.
Diagnosed w/Proctitis 12/97
Upgraded to Left-sided UC 8/05
Diagnosed as Pre-Diabetic 10/08
Past meds: Sulfasalzazine, Asacol, Cort-Enema's,Daily Mesalamine 60 ML Enema's
Current meds: Asacol (400mg 2@3X daily), Ferrous Sulfate, Every evening - Mesalamine 60 ML Enema's

Irish Babe
Veteran Member

Date Joined May 2007
Total Posts : 1371
   Posted 11/25/2009 9:26 PM (GMT -6)   
Welcome Gac62!   Very glad you joined us, this is a really great group. I would suggest you go to the appt w/ the Fibro specialist. Before you go, look over 'Fibro 101' the top post on the first page. There is a lot of great info there, one thing in particular is the list of symptoms. Print out a copy and check off the things you have going on. Take this to the dr visit. Hopefully, you will continue to feel good, but sometimes we don't realize how slight a touch on the pressure points is needed to make the dx for FMS.
Most of us have had the 'it's all in your head' comment, sometimes by several drs. But we need to advocate for ourselves, if we are having the pain and problems, it is REAL! Period. The better informed we are, the better we can present our case. Is there a relative or friend who knows what you are going thru, that can go to the dr visit and support you?
It is common for the drs to test for everything, because w/ the symptoms we get, it could be other things. It may take some time to come to a final dx, but it is best if the drs check for other problems. That is how they come up w/ FMS, basically by process of elimination. I really couldn't tell you if the points are sensitive when you're feeling well. I haven't been pain free for as long as I can remember (Fibro Fog aside, lol). My body feels like I have the forever flu-like pain.
Hope you get answers soon and can start getting some help. Pls let us know how you are doing.
God bless.  Alice.

Veteran Member

Date Joined Feb 2009
Total Posts : 686
   Posted 11/26/2009 7:14 AM (GMT -6)   
I, like Alice, have flu-like pain every day....but on my "good" days, I still have pain at my pressure points. I have all 18 of them.
DX fibromyalgia 2007, osteoarthritis, obsessive-compulsive disorder OCD, depression, anxiety, sleep apnea, hysterectomy.

fluoxetine (prozac), abilify, trazodone, lorazepam, prilosec, nabumetone, hydrocodone, c-pap machine.

Regular Member

Date Joined Nov 2009
Total Posts : 173
   Posted 11/26/2009 10:39 AM (GMT -6)   

Gac 62

Like the other people said it is a dx. They look for anything else your symtoms could possibly be before they would ever diagnose you with FM. Also yes your pressure point can still hurt even if you feel fine that day.

One thing that is new in diagnosing is that patients do not have to have the 11 of 18 or what have you the other symptoms are just as important to the dx.

It is new info I recently read on I believe Stanford Science something. 

So go to your appt and let them rule out any other conditions.  You deserve to have the best medical care and find out the real reason for your symptoms. It may be FM but I hope not.

Happy Thanksgiving to You!


Humour is always the Best Medicine!
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 11/26/2009 12:34 PM (GMT -6)   
Hi Gac and welcome. I was in my first real flare when my doc did the tenderpoint test, we had already ruled out all the other things it could be. My tender points have stayed sore every since, all of them plus. You don't always feel the tender points until someone pushes on them so you may have some that you don't know about.
I hope they get to the bottom of your problems soon.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Regular Member

Date Joined May 2006
Total Posts : 36
   Posted 11/27/2009 2:40 PM (GMT -6)   

Thank you all for your comments - that helps.  I do have some good support, and my husband has been encouraging me to have this checked out for a while.

Since this most recent round of what I call my "fibro symptoms", I have reviewed the list of symptoms that is posted here, and also from WebMD.  Very helpful, and it really explains so much.

about 5 weeks in, I started with a ulcerative colitis flare to top things off.  I have a gastro appt Monday and will see a Fibromyalgia Specialist on 12/10.  My regular doctor discovered (most likely as a result of the UC) that I have a Vitamin D Deficiency - but I haven't been able to find a lot of information about that.

Diagnosed w/Proctitis 12/97
Upgraded to Left-sided UC 8/05
Diagnosed as Pre-Diabetic 10/08
Past meds: Sulfasalzazine, Asacol, Cort-Enema's,Daily Mesalamine 60 ML Enema's
Current meds: Asacol (400mg 2@3X daily), Ferrous Sulfate, Every evening - Mesalamine 60 ML Enema's

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