Considering job change due to fibromyalgia

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sjm
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 11/28/2009 3:31 PM (GMT -7)   
I am new here.  I am a home childcare provider.  I have done this for eleven years but now my fibromyalgia seems to be getting worse and it is becoming very difficult for me to keep up with my job as well as I used to.  I have stopped taking babies and any toddlers that must be picked up a lot.  I have also had to reduce the number of children I care for and therefore my income has plumeted.  I am thinking of changing careers now.  Has anyone else changed their career due to their fibromyalgia?  I just hate to have to do that but I don't know what else to do.  The long days and the constant moving and bending and all that is just getting to me.  Does anyone have any suggestions for me?

prema
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/28/2009 4:18 PM (GMT -7)   
HI SJM I AM ALSO A NEW MEMBER ON THIS FORUM BUT I HAVE HAD FIBRO 20 YEARS. I CAN RELATE T O YOUR SITUATION. I HAVE ALWAYS HAD PHYSICAL JOB. I AS A MASSAGE THERAPIST WENT BACK TO SCHOOL FOR PHYSICAL THERAPY.  OVER THE YEARS I HAD TO CUT MY HOURS LESS AND LESS. THANK GOD I AS MAKING GOOD MONEY PER HOUR. I WENT FROM 40HR TO 32 TO 24 TO 18 OVER APERIOD OF YEARS.  I FINALLY COLLAPSED MENTALLY AND PHYSICALLY.  HOW OLD ARE YOU AND DO YOU HAVE THE OPPORTUNITY TO GO BACK TO SCHOOL?  I WOULD HIGHLY RECCOMEND CHANGING CAREERS BEFOR E YOU COLLAPSE.  MANY PEOPLE CHANGE CAREERS DURING THEIR LIFETIME.  IS THERE ANYTHING YOU HAVE IN MIND TO DO. CAN YOU DECREASE WORK HOURS? GOOD LUCK IN YOUR DECISION. PLEASE REPLY IF YOUHAVE ANY FURTHER QUESTIONS    PREMA

sjm
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 11/28/2009 5:15 PM (GMT -7)   
I am 37 so I suppose going back to school is an option but I still have to earn an income.  My husbands job alone isn't enough for my family of five.  Two of my kids have autism spectrum disorders and require more doctor visits and medication and therapy.  I have cut my hours down from 12 hours a day to ten hours a day but still that is a lot.  I have cut my income by one third becaues I just couldn't handle as many children.  I am at the breaking point.  I am in so much pain and I am so physically and mentally worn out.  I am trying to find ways to make the day easier for me and the kids but it is very hard on me.  I love my job and I love the kids but I think something has to change.  I am hoping for a job where I can sit down.  I have not had a sit down job before. I  hope that is easier to handle.  I have only had fibromyalgia for maybe 5 years or so but it seems to be getting worse fast.  my mom has lupus along with fibromyalgia and a long list of other things.  I seem to be going down her path.  Is there something that I can do to make myself feel better during the day? 

prema
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/28/2009 5:37 PM (GMT -7)   
DO YOU HAVE A COMPASSIONATE MD. ARE YOU TAKING MEDS THAT ARE HELPING? ARE THERE ANY OTHER MEDS THAT YOU COULD TRY.  MY ONLY SOLUTION WAS TO GO ON DISABILITY. I HAD NO OTHER CHOICE. I JUST COULD NOT FUNCTION. IS THAT AN OPTION FOR YOU.  IF SO YOU CAN START YOUR APPLICTION ON LINE. IT IS A LONG PROCESS AND SOME ARE DENIED. I WAS LUCKY I WAS AWARDED DISAB. THE FIRST TIME.  MAYBE MY AGE HELPED IM NOT SURE I AM 62 NOW WAS 60 WHEN APPLIED.  I DID NOT HAVE AN ATTORNEY. DID IT ALL ON MY OWN.  WHEN YOU GET REALLY BAD OR HAVE BAD DAYS IT IS VERY DIFFICULT TO THINK AND THEREFORE HARD TO WORK AT ANY JOB.  MY DAUGHTER ALSO HAS FIBRO SHE IS 35 W.AS DENIED 2X AND IS REAPPLYING.          PLEASE DO NOT FEEL GUILTY IF YOU HAVE TO TAKE PAIN MEDS UNLESS YOU HAVE ANY ADDICTION PROBLEMS.  IF YOU NEED THEM TO LIVE THEN SO BE IT.   SOMETIMES YOU JUST HAVE TO KNOW ENOUGHT TO TELL YOUR DOCTOR WHAT YOU NEED. I HOPE THIS HAS HELPED IN SOME SMALL WAY.  WAITING YOUR REPLY      PREMA

sjm
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 11/28/2009 5:51 PM (GMT -7)   
I have pain meds but I can only take them at night.  I tried to take half and see how I reacted to that but it still made me very drugged feeling.  I have a muscle relaxer but again, I can only take it at night.  I have tried three different ones but all of them make me feel very drugged so that doesn't work while I am working with the kids.  I had facet nerve blocks but they did not work.  I go Thursday to have facet joint injections.  Hopefully that will work.  I also take a anti inflamatory but I am not sure it works very well.  I have tried Lyrica and Neruontin but neither of them made any difference in my pain.  I have also tried a tens unit and that made no difference either.  My mother has been on disability since her mid 40s due to her illnesses.  I am just very frustrated right now.  It seems like nothing works.  I have thought of physical therapy.  I am not sure if anyone has good results with that.  I want to try everything I can before I go to disability.  I see that in my future though. 

vickabee
Regular Member


Date Joined Jun 2009
Total Posts : 53
   Posted 11/28/2009 6:15 PM (GMT -7)   
Have you ever gone to a fibromyalgia specialist? I know someone that did, and they received IVs twice a week with a mixture of vitamins in it, certain shots, and natural supplements. They are doing much better now. My daughter was told a few days ago (15 year old daughter) that she has fibromyalgia, but we're not able to go this route because of the cost, and a lot of insurance companies don't cover it.

May be one of the fibromyalgia clinics would help that are set up with a regimen like our friend went to would help. Plus, maybe their cost for the treatment by you hopefully would be more reasonable.

Praying for you. God bless you.

Vickabee

sjm
New Member


Date Joined Nov 2009
Total Posts : 5
   Posted 11/28/2009 6:17 PM (GMT -7)   
I didn't even know there was such thing as a fibromyalgia doctor.  I have only seen my family doctor and a pain specialist.  I have requested several times to be referred to a different type of doctor but he so far hasn't seen the need to.  he just sends me to the pain doctor.  Kind of annoying.  I want to do more than take pain meds and get injections in my back.

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 11/28/2009 6:22 PM (GMT -7)   
A job where you sit down a lot can be just as difficult as one where you move around all day. I get even more stiff and sore if I sit too long. My fibrofog makes it difficult for me to work, I make many mistakes and can't remember important details.

I used to be an engineer and I made a lot of money. I had to give that up - I made too many expensive mistakes. I am now teaching; my position is not certified so the pay is low but it's only 6 hours/day. This job pays me about 20% of what I used to make but I now if I make a mistake, it doesn't cost some company $200,000.00 to fix it. I can move around when I need to and sit when I need to and just when things get really tough, I usually get a day or two off. I actually have a tougher time in the summer when I am not working because then I don't move around as much.

A desk job may seem easier physically but the mental stress and pressure can be a lot worse.

vickabee
Regular Member


Date Joined Jun 2009
Total Posts : 53
   Posted 11/28/2009 6:35 PM (GMT -7)   
There's a fibromylgia center in Dallas. I would think there would be some more centers in other major cities. The person we know that is doing better I think did a pay as you go, but the center we went to had a plan that you had to pay a certain amount and it paid for the ivs and visits but not the natural supplements. Plus, it was a M.D. that worked in the regular medical field for many years but saw the need for this. Plus, they run lots of blood work that other doctors don't run. We know two people from our church that go to the center in Dallas. The other person we know went to a center in a smaller city outside of Dallas.

Hope you find some answers.

God bless you.

Vickabee

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 11/28/2009 9:41 PM (GMT -7)   
I have gone from a 60hr/week health care program manager to a 25hr/week office assistant over the past year, and am so glad I did because I was on the verge of collapse. Now I am in the process of signing on for disability because I am having a hard time handling even 25hr/week. I have the similar verge-of-collapse feeling and neeed to figure out the right diet, exercise and regimen for me, as well as get myself to a new climate in spring. I think we all do a good job listening to our bodies, as they know best what we need!

prema
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/28/2009 11:47 PM (GMT -7)   
OH WO I JUST TYPED A HOL BUNCH OF INFO AND IT JUST CLICKED OFF AND DELETED EVERYTHING SO I WILL SHORTEN THIS ONE. TO TIRED.  PAIN CLINIC CAN COST THOUSANDS WITH MANY NOT GETTING VERY POSITIVE RESULTS.  DR TITTELBAUM STARTED THESE CLINICS. GO TO AMAZON CHECK OUT HIS BOOKS ONE IS FROM FATIQUE TO FANTASTIC.  IWOULD THINK YOUR PAIN LEVEL SHOULD BE LOWER GOING TO A PAIN DR.  PLEASE CHECK OUT OTHER MEDS OF SITED.  ANOTHER VERY GOOD SITE TO CHECK OUT IS FIBROTALK  VERY INFORMATIVE. YOU CAN LEARN MORE ON THESE SITES THAN YOUR MD THEN YOU CAN TELL YOUR DR. WHAT YOU WOULD LIKE TO TRY.  IS HE  SWITCHING YOUR MEDS AND TRYING DIFFERENT COMBINATIONS .  STAY ON THE FORUMS AND LEARN ALL YOU CAN.  GOOD LUCK LET US KNOW IF THIS IS HELPING YOU WITH OUR SUPPORT. PLEASE REPLY SOON    HUGS  PREMA 

prema
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/28/2009 11:52 PM (GMT -7)   
ALSO TRY THE CHAT ROOM FOR IMMEDIATE RESPONSES.   PREMA
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