great vacation

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Statgeek
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   Posted 11/29/2009 9:57 PM (GMT -7)   
We had such a nice time on vacation.  We actually went to Disneyland twice this year.  We haven't been since 1995 before that.   I used a wheelchair and that made it much better.  I was in a flare all during the trip.  Just resting my arms against the arms of the wheelchair was painful.  I am so glad to have gotten over my pride about using mobility aids.  But I did have to look cute.   It helped me feel less invisible.  Hubby commented: "geeze, it is like you have an invisible bubble around you."  People just walk right in front of me and I have to stop to keep from running them over.  It is easier to push yourself once you have momentum going.  But when people cut in front of you, you have to slow down and start over.   I think this is good information to have.   I don't think people are intentionally rude.  They just do not realize what they are doing. 
 
Our two daughers and their husbands went with us, too.  We had a really nice time together.  I think we might do this again next year.
 
Sue

Irish Babe
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   Posted 11/30/2009 12:37 PM (GMT -7)   
Sue, so glad you had a nice vacation, and got to enjoy it w/ the extended family. I'm glad you had the wheelchair, just sorry about the flare. Wish 'it' had given you a bit of a break for the vacation. What did you go w/ re clothes? I know you were looking for suggestions.
 
I am on a cane, and I know what you mean about ppl coming right in front of you. I have to stop on a dime to keep from running into some ppl. You think they would see a full grown adult, but obviously NOT! I don't start or stop that quickly, anymore. lol!
 
Glad you are all back safely, but sorry the vacation had to end. Hope you are feeling better.
 
God bless.  Alice.

Sherrine
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   Posted 11/30/2009 12:45 PM (GMT -7)   
Well, Sue, I'm heading to Disneyworld on Thursday.  It's my son's birthday and he wanted to go to the Magic Kingdom.  He's only 33 years old!  LOL  I'm looking forward to it....especially the teacups!  I haven't been to the Magic Kingdom since 1982 and it's only one hour from my house!  But, I'm not sure how I'll be.  I hope, if it gets too much for me, that they will have spare wheelchairs because I'll definitely get one if I need one and it they have any available.  I didn't order one ahead of time because I usually don't have problems walking but I haven't walked through a theme park in years.  So, wish me luck!  Regardless, I'll have a great time!
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
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   Posted 11/30/2009 1:33 PM (GMT -7)   
I'm so glad you had a good time Sue inpite of the flare. I would have to have a wheelchair due to the lack of energy and fibro has decided to take up residence in my feet and legs now too. I hope they have one available Sherrine cause I have a feeling your going to need it and don't let your pride and stubborness stop you from asking, I know you. devil Is your little boy going to wear a birthday hat walking through Magic Kingdom??? Mine probably would since the oldest and youngest refuse to growup.
 
luv and hugs
Marlee
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crazykitty
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   Posted 11/30/2009 4:29 PM (GMT -7)   
Sue, I'm glad you had a nice vacation. It's been awhile since I've been to Disneyworld
but I do remember how crowded it can get. Using a wheelchair was a smart idea. If you
would of been walking, you might have had people bumping into you in the crowds.
Hope you are getting some rest and feeling better!

Sherrine have fun! Say hi to Mickey and Minnie for me. Wishing your son a happy BD!

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Statgeek
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Date Joined Jul 2008
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   Posted 11/30/2009 8:14 PM (GMT -7)   
Sherrine,
Get a wheelchair when you get there. Standing in line is the hardest part. Standing still is harder than walking. If you wait until you need one, they might be out. My daughter who is 6 months pregnant. tried to get a chair in the afternoon and they were gone.

If you have a chair, you can sit in it while waiting in line at handicap accessible rides and you get a slightly shorter line for those who are not handicap accessible. You can get a pamphlet at the town hall that will tell you how to access the rides.

Sue

Chutz
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   Posted 11/30/2009 9:58 PM (GMT -7)   
Sue...

I am in awe of you! I don't think I'm ready to allow myself to use a wheelchair even though it would help with the pain for a day long adventure. I still have issues when I take the cane but I do it when I absolutely have to. I've always been too darn stubborn when it comes to these things...the emotional pain is too much right now. But it helps when you and others post how you did and how successful it was. Umm, I'm not a germ-a-phobe or anything but do they disinfect those things between uses? <shudder> sorry, just a thought.

Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
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Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Statgeek
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Date Joined Jul 2008
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   Posted 11/30/2009 10:51 PM (GMT -7)   
I am sure they disinfect them.  But you could also bring some Lysol and do it yourself.  I am embarrassed to say that I never thought of that!  I, too, have a problem with pride.  I am embarrassed to use a scooter because I think I look dorky.  That is really a silly thing to think, too!  But you know what?  It is so much easier to use the aids than not to use them. 
 
Btw:  I got some cute outfits - skirts just above the knee, leggings, boots, cute tops, hats and scarves.  Then it was hot there, so I bought a t-shirt.  I stood by the letter A to have my picture taken and two other people took my picture, too!!!  They either thought I was super cute or wanted a picture of a weird californian!  The leggings with skirts worked out great because wearing them with dresses would have been uncomfortable in a wheelchair.   I was still invisible in the wheelchair, but looking nice helped me feel better about it.   I even posted pics on facebook. 
 
Now I gotta act like a grown up.  boo hoo
Sue

Sherrine
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Date Joined Apr 2005
Total Posts : 17094
   Posted 12/1/2009 6:00 AM (GMT -7)   
Thank you for the suggestions, Sue.  I've been thinking about that but, like Chutz, I'm pretty stubborn.  I want to walk as much as possible but I do know that standing is much worse than walking.  When doing Thanksgiving, my back was killing me and the vericose veins on my leg were throbbing.  But I don't want to feel stupid wheeling the chair through the park.  But it would come in handy if I needed to sit down.  I think I'm thinking out loud here!  I'll let you know what I do.  Chronic pain is the pits!
 
By the way, Sue, what do you do with the wheelchair when you are on rides?  What prevents someone from coming along and taking it while you are on rides or in the bathroom?  Thanks for the help!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 12/1/2009 6:15:11 AM (GMT-7)


Marlee2
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Date Joined Aug 2007
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   Posted 12/1/2009 7:13 AM (GMT -7)   
Sherrine and Chutzie, our goal is to have the best quality of life possible with fibro no matter what it takes so swallow your pride and do what you have to do. Of course this comes from someone who has never used a wheelchair or even a cane in public. devil
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Statgeek
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Date Joined Jul 2008
Total Posts : 1495
   Posted 12/1/2009 2:14 PM (GMT -7)   

Sherrine,

The chair waits for you in a specified place near the ride and by the ride operators.  I park the chair right outside my bathroom door and no one takes it.  You could always go in the disabled stall.  I tend not to do that, but to save it for persons who actually need to take the chair inside.

Sue


barbara789
New Member


Date Joined Dec 2009
Total Posts : 1
   Posted 12/5/2009 3:13 AM (GMT -7)   
Thanks for the info.
Elenora
I edited out your link.  Please read our forum rules.  Thanks!

Post Edited By Moderator (Sherrine) : 12/5/2009 5:38:22 AM (GMT-7)

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