Supplements we take

New Topic Post Reply Printable Version
35 posts in this thread.
Viewing Page :
 1  2 
[ << Previous Thread | Next Thread >> ]

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 11/30/2009 3:13 AM (GMT -7)   
I thought it might e helpful for many of us if we post the natural supplements we feel help our daily lives. It must be said they have to be respected just as prescription drugs but many are very effective. Nothing to date is a cure for Fibromyalgia but anything that helps our daily struggle is important.

Personally I take a good B complex, D, magnesium/malic, calcium, that are pretty well understood by most of us.

However, do most of us realize the benefit of fish oil? It is extremely important for circulation and depressing inflammation in the body. It can be hard to digest but taken in the middle of a meal usually works. I have gotten a real handle on elevated blood pressure and my husbands cardiologist says fish oil is likely responsible for this.

I have been taking True Calm for about 2 weeks and it has helped immensely with nerve pain. My neurologist phoned me to report the benefit she has seen in her MS patients. It helps with neurotransmission. Since many symptoms of Fibro mimic MS it should help. It is the first supplement that has made a significant difference for ME. We are all very different and what works for one may not for another.

Before closing it must also be noted that mixing herbs or natural supplements with prescription drugs can be dangerous. It is very prudent to check with your physician that monitors your Fibro for safe guidance.

This being said, what works for you?

Best, Patsie

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 11/30/2009 7:39 AM (GMT -7)   

Since going through the Lexapro withdrawal from Hell, I have upped my vit D and magnesium and started taking fish oil.  Supposedly, this combo is supposed to help with increased pain and the brain zaps.  Three months later, I would like to say I have seen noticable improvement, especially with the head sensations but I haven't.   Or maybe they would be worse if I wasn't taking them?  My fibro pain as increased ten fold since withdrawal.  Oh well...shouldn't have weaned so fast.

Our doctor has replaced my husbands Lipator with Omega 3 capsules, as he claims it can be as effective at lowering bp and cholesteral as statins....which are expensive and can do a number on the liver.

Might try some of that True Calm, Patsie...what's in it??

Huggies

Donna



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

Post Edited (vestabula) : 11/30/2009 9:12:59 AM (GMT-7)


LRDozier
Regular Member


Date Joined Nov 2009
Total Posts : 29
   Posted 11/30/2009 8:40 AM (GMT -7)   
My doctor started me on a new prescription vitamin called Req 49+.  He gave me a sample pack of 120 tablets to be taken twice daily.  I love this vitamin!  I have noticed a huge difference in my "fog" and in my pain.  Since he gave me a sample, I don't know how much this vitamin will cost, since I am sure insurance won't pay for it.  But, no matter the cost, I am going to continue this.  It is a life saver as far as I am concerned.

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 11/30/2009 9:43 AM (GMT -7)   
Hi donna,

So very sorry you had this withdrawal, it sounds terrible.

Well, my belief on MY Fibromyalgia is this: for me it has become apparent that neurotransmission is my major culprit. When I get stressed my nervous system goes into overdrive with a highly over active fight or flight response. It is as if my body cannot handle certain stressors because of my genetic make-up and my personal history. In each of us I think the onset is caused by something different making this puzzle almost impossible to solve.

Fast forward to why I think my doctor is on to something with True Calm. It appears to have an ability to support a better mental mood in me. It is a combination of amino acids with a 25 mg per tablet dose of valerian root. It includes GABA, which purportedly supports the "down regulation" of overstimulated nerve cells. Note my doctor has me on 4 daily and the suggested dose is 1-3.

As I stated earlier this is no cure as we both know. BUT it is definitely helping my day to day state of mind and nerves. I know it is not a placebo effect with me.

We have to keep on keeping on.

Best,
Patsie

GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 11/30/2009 10:27 AM (GMT -7)   
My vitamins and minerals were blood tested last spring. I was extremely low in B-6, B-12, D, K, Iron, Ferritin, Copper and Zinc. All have improved to near normal levels in the past months - currently having vit/min blood tests every three months to monitor progress - post celiac diagnosis.

Since April/May '09 I have been taking a muti-vitamin, B-6/B-12 combo, Calcium with D & Magnesium and Fish Oil (lemon flavored Cod Liver Oil) for more D and Omega-3's

Shortly after Fibromyalgia diagnosis last month I have been taking Malic Acid/Magnesium to combat fatigue/provide energy - slight improvement in energy so far.

I am currently researching & will soon speak to doctors regarding supplementing amino acids to aid/repair possible deficiencies in neurotransmitters often found in Fibromyalgia. CAUTION: many amino acids are harmful if taken with common Fibromyalgia Medicines - Be sure to consult your doctor for possible interactions.

Great question Patsie!

-Lisa
Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vit, B, D, Calcium, Magnesium, Malic/Acid, Fish Oil, Probiotic

Still a mystery - heat/humidity intolerance


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 11/30/2009 11:34 AM (GMT -7)   
I currently take a multi vitamin with iron and also a vit D 2000iu per day.  Was anemic and low on Vit D a couple blood tests ago I believe it is back to normal levels now.
I would like to try malic ?
Have heard several people speak of it still have not found it must have to buy it at a health food store or such.
I try to eat whole grains, veges and fruits and just eat the right foods it the best way to get your vitamins and minerals.
But that calm stuff sound interesting may look into it.

 
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 11/30/2009 12:19 PM (GMT -7)   
I purchase Malic Acid/Mag combo and other supplements from Amazon - great pricing and free shipping.

http://www.amazon.com/gp/product/B000GFJJKQ/ref=ox_ya_oh_product

You should be able to find at Health Food Stores as well.
Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vit, B, D, Calcium, Magnesium, Malic/Acid, Fish Oil, Probiotic

Still a mystery - heat/humidity intolerance


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 11/30/2009 12:30 PM (GMT -7)   
I take a multiple vitamin, calcium with D, extra D3 so I'm taking 3,500 IU daily, folic acid, malic acid/magnesium supplements, and iron.
 
Funny Girl, there is a link in Fibro 101 all about malic acid/magnesium supplements and how they work in your body.  I get mine at Puritan.com.  Right now they are having a buy one, get one free....buy two, get THREE free!  Can't beat that!  I also get my Vitamin D3 there too.  But, there are plenty of places that sell this.  I just found this to be quite affordable.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 11/30/2009 3:40 PM (GMT -7)   
Thank you so much for this posting, Patsie, I do all herbals now. I found True Calm a few weeks ago and
find it equivalent to flexoril. I take 2 before bed and it helps to really calm the nerve endings down. It's the
only thing I've found so far that works on the neurotransmitters.
 
I take a multi, hair vits, vit D & E, Malic Acid, Super Cissus RX, Bio-Sil, Co Q-10, True Calm, Lecithin,
Lipo-Trim, Colostrum, Hylaronic Acid, Calcium, Primrose, Bromelain  and HGH everyday.
Nite Time Herbs, Echenacia, Marshmallow Root, Yucca, Goldenseal, Slippery Elm, Fennugreek & Thyme
all when needed.
 
On very RARE occasions a pres. painkiller, no other pres meds
 

MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 11/30/2009 4:55 PM (GMT -7)   
I will have to try True Calm, currently I'm taking B-Vit complex, Omega-3 Fish Oils, Melatonin, and belladonna and chamomile ear drops as well as script pain pills and a script anti-anxiety med. I was taking more herbal suppliments and vitamins before I was put on a pain med, but at that point I was unable to function in anyway, getting out of bed was WW3.
Lola

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.
Lola

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID


Buspar 10mg, Acetometaphen 500mg, Zantac 150mg, B-complex, Tramadol 150mg


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 11/30/2009 5:26 PM (GMT -7)   
Thank you all for the great info. Nana Monster when you have time LOL, perhaps you could explain for those of us very interested what most of those supplements do. I happen to know most but many do not.

Hey, I used Slippery elm, boiled down with honey, for my young dog and it turned intestinal issues around!!! Love the stuff.

Best,
Patsie

GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 11/30/2009 6:02 PM (GMT -7)   
Thanks Nana Monster! I'm so new to all this, but Flexeril is the first thing that has help relax everything in order to improve sleep. Great to know that the TrueCalm Patsie is using may be a way to replace that at some point.

-Lisa
Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vit, B, D, Calcium, Magnesium, Malic/Acid, Fish Oil, Probiotic

Still a mystery - heat/humidity intolerance


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 11/30/2009 8:21 PM (GMT -7)   
I take b12 injections at home as needed. I also take iron, magnesium. another favorite of mine is called NT factor. I swear its a miracle drug for me. It really helps my energy and fog,

good thread
Chronic Lyme Disease
Fibromyalgia
Chronic fatigue syndrome
Polycystic Ovarian Syndrome
Sleep Apnea
Hypothyroidism
Adrenal Fatigue
 


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 12/1/2009 8:43 AM (GMT -7)   
I have been fortunate so far not to be on any prescription meds.  I do take Advil several days of the week now.  As far as supplements I just started an Omega 3 fish oil last month and can't say I have seen a difference yet.  I take a liquid Calcium/Magnesium that has helped me out tremendously especially with night time leg cramps.  I am on a liquid multi vitamin and lastly probiotics.  I too am interested in the True Calm. 

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/1/2009 9:09 AM (GMT -7)   
Hi Libby,

May I ask what the liquid ca/mg is? Thank you as night time leg cramps can be a big problem for me, toes too. I do take my calcium before bed and it does help.

Patsie

Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 12/1/2009 10:40 AM (GMT -7)   

Patsie,

Hello.  It is a liquid form of calcium and magnesium together and it also has some vitamin D3.  It's a thick white liquid but not that bad tasting.  I get the orange flavored, there are different flavors.  It is a bit chalky, but all in all not too bad. The brand name escapes me right now but I get it at a local Greenlife grocery store, which is a healthfood store if your not familiar with it.  I will look tonight when I take it at the name brand and let you know if you're interested.  It does wonders for my leg cramps and I was getting some really bad ones.


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 12/1/2009 1:58 PM (GMT -7)   
Vesta,
   You can get True Calm at Vitiman Warehouse in Syracuse. It's just off 690 on Midler. Their web
site is Vita-Glo.com. Mike will do free shipping on orders over $50 anywhere. I'm not sure if the
shop in Midtown carries it but they do have a lot of the NOW brand products. I'm using it at night
mostly. 2 of them is like using a flexoril without all of the side effects.
          NM

GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 12/9/2009 1:32 PM (GMT -7)   
Hello All-

I had mentioned that I'd post info if I started to supplement with Amino Acids. My theory was to increase neurotransmitters serotonin and norepinephrine (target of many approved fibromyalgia medications) by supplementing with Tryptophan (for the seratonin) and Tyrosine (for the norepinephrine).

I consulted with my Gastroenterologist (Celiac Doctor) to see if what I was suggesting was safe -- I did not ask for an endorsement, my only concern was safety. He thought it would be safe.

I have been taking both amino acids for many days and have improved a great deal. Currently my body locks up at about 7-8pm compared to the 3-4pm I've had each day for the past year and I have not been foggy for the past week. I have increased the distance I can walk from 1 mile to 3 miles this week.

CAUTION - any vitamin/mineral/amino acid supplement should not be taken without close supervision from your doctor as many can react adversely with common fibromyalgia medications.
Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vit, B, D, Calcium, Magnesium, Malic/Acid, Fish Oil, Probiotic

Still a mystery - heat/humidity intolerance


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/9/2009 1:52 PM (GMT -7)   
Thank you Ski. I am in the biggest snow storm in NH. Already must be 18" on the ground.

I am still taking the True Calm with great success. BUT would you share with us the breakdown on your program of amino acids?

Much obliged,

Patsie

GottaSki
Regular Member


Date Joined Nov 2009
Total Posts : 47
   Posted 12/12/2009 8:38 AM (GMT -7)   
Sorry to post and disappear. We lost my MIL and good friend last week. She passed peacefully after a 25 year valiant battle with Sjogren's Syndrome and other autoimmune Conditions. She will be missed.

Patsie -- we are doing a snow dance here because none of us thought I'd be able to ski this season...I've skied hard with my kids for the past 10 years. I am feeling strong enough to ski at least part of the day tomorrow so off to the snow we go for the day!

As for my research in amino acids, it was a lengthy process of combining much information from many parts of my medical history and life experience. I'll be writing up the whole thought process in the coming weeks and will share with you all when complete.

For the past few weeks I have been taking and improved each day:

L-Tryptophan - 1000 mg at bedtime along with one Flexeril.

N-Acetyl-L-Tyrosine - 300 mg upon waking (i keep it bedside) and 300mg mid afternoon.

I had some improvement my first week when only taking the Tyrosine once in the morning, but because I got the idea for taking it from the reason I was prescribed Savella, I tried taking a second dose similar to the time I had tried Savella.

CAUTION: I will always include this warning when speaking of these amino acids -- YOU ABSOLUTELY NEED TO CONSULT YOUR DOCTOR when taking both of these, while they are essential amino acids that we can obtain from our food, taking them as additional supplements can be dangerous when taken together with many approved Fibromyalgia medications.

-Lisa
Fibromyalgia 10/27/09 & Celiac 3/26/09

Med/Supplements: Flexeril at bedtime; Multi-Vit, B, D, Calcium, Magnesium, Malic/Acid, Fish Oil, Probiotic

Still a mystery - heat/humidity intolerance


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/12/2009 9:49 AM (GMT -7)   
I have found great success with weekly B12 shots and adding 2000 more units of Vitamin D. I am actually thinking of adding another 1000 units as since the weather has become colder the pain is peeking in some. I am going to check out that True Calm. Thanks!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 12/12/2009 4:25 PM (GMT -7)   
To All...Breakdown of my suppliments.
Vit D is well known for nerves and pain.
I use Super Cissus RX, Bio-Sil together. The Super Cissus rebuilds muscles, tendons and ligaments and also has a built in painkiller and the Bio-Sil rebuilds callogen in joints.
Using them with Malic Acid to detox has got it so I can do an 8 hour day without problems.
I don't know what the "Trio" does in co-junction with each other, but I do know that even
the bone spurs are shrinking.
Vit.E is good for the heart and bloodstreams. I found when my wrists start hurting I'd take
about 800-1200 Vit E and it would stop after a few days. I read an article by a Dr stating
he would use 1200-1600 for his carpal tunnel patients and only a few needed surgery.
Lecithin is a brain oxeygenator and fat emulsifier...Lipo Trim is also a fat emulsifier. I
have been using them together to shrink some lypoma tumors. Strange but it works.
Colostrum is bovine breast milk and Hylaronic Acid is trace minerals in Japanese food.
Using them with Co Q-10 has boosted immune system and healing ability. I'm able to
bounce back from surgery quickly and don't get sick (with sinus infections especially)
as frequently. The greatest benefit is skin quality is fantastic.
The Co Q-10 is used in every single cell in your body with most in the heart.
I had sinus bracardia (low heart rate) and low blood pressure. Taking this increased both
heart rate and pressure so now both are "normal". As my heart had to work harder I was
having major chest pains to the point of taking nitro and toprol to regulate my
heartbeats...now I take none.
Bromelain is pineapple enzymes that are a natural anti-inflammatory.
HGH is used when we get older as a suppliment. As we age our production grows less and
I've noticed less wrinkles and grey hair.
Yucca is a natural steroid. I use it for poison ivy (in place of predisone).
Black Walnut will kill of poison ivy, infantago, scabies, and rashes. It is an anti-viral,
anti-bacterial, anti-parasitic.
Echanecia is an immune system builder. I use it with Vit C when I start getting sick.
Marshmallow Root or Slippery Elm and Fennugreek and Thyme I use to break down mucus.
Goldenseal helps to clear out sinuses.
Nite Time Herbs is a sleep aid.
True Calm is an herbal flexoril. working on the neurotransmitters to relieve pain.
Essiac Tea is a wonder if you have acid reflux. It not only alleviates the reflux but it helps
to rebuild damage done. Check out Renee Cassies web site....it's awesome.

Hopes this helps. LOL
Nana Monster

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/12/2009 8:03 PM (GMT -7)   
I take 5000IU of Vitamin D3 daily; 2 big malic acid-magnesium tablets (the IU escapes me) with milk and yogurt to help my stomach with them; and 3000mg cold-pressed fish oil gelcaps with a meal. Others have talked about D3 but I wanted to mention the malic acid-magniesum and fish oil.

I have been doing a lot of reading and researching into diet and mineral deficiency. Magnesium has become really interesting for me. It contributes to more than 300 enzymatic processes in the body. See if these deficiency symptoms sound familiar: increased adrenaline; skeletal muscle twitching, spasm and tension; muscle pain, back pain, TMJ pain, neck pain (my biggie); chest pain; constipation, urinary, and menstrual troubles; photophobia, especially adjusting to bright lights of oncoming cars; noise sensitivity; panic attacks and anxiety; carbohydrate intolerance; chronic fatigue; numbness and tingling, and feelings of being "zapped" or electrical pain. To me that is fascinating. I'm so glad I am giving this supplement another try - it is hard on my stomach. Green veggies, nuts and seeds and whole grains contain magnesium naturally... all foods I don't normally gravitate to!

I don't have problems with blood pressure or anything, but heart disease runs in my family so fish oil is the supplement I've been taking the longest, over three years now. Last time I was at the doc I had my usual blood screens and tests, and my cholesterol came back at *167*. I'm a bigger person and don't usually get enough exercise, and don't always eat that well, so to me that is amazing. One of my goals is to try and find processes, foods, and exercise that work for me, so my first steps toward something new like that is to read.

patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 12/13/2009 7:13 AM (GMT -7)   
Ski, Nana Monster and Littleneck thank you so much for taking the time to help ALL os us with your regimens. I KNOW my improvement is just incredible and it is my supplements. We all realize at this stage that many respond to things others do not but any help is just so wonderful.

Let's keep this up and as things work for us share, share, share.

It is quite cold in N.H. and my body is behaving nicely. I just did a huge benefit in Maine last night to help elderly pay for heat and other needed services and I am not in the least bit of pain today. Perhaps reaching out and helping others is the best medicine.

Holiday hugs, Patsie

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/15/2009 5:23 AM (GMT -7)   
My sister with fibromyalgia lives in northern Vermont and strangely enough she is not hurting at this time of year like she usually does. She attributes that for taking COQ10 every day for over a year now, she said. Taking the right supplements that enhance the effects of my doctor-prescribed medications, and adjusting the type of food I eat is really in the forefront of my mind lately, so thanks for starting this topic. I think it's really important.
New Topic Post Reply Printable Version
35 posts in this thread.
Viewing Page :
 1  2 
Forum Information
Currently it is Wednesday, December 07, 2016 5:27 PM (GMT -7)
There are a total of 2,734,356 posts in 301,205 threads.
View Active Threads


Who's Online
This forum has 151325 registered members. Please welcome our newest member, artgal234.
363 Guest(s), 11 Registered Member(s) are currently online.  Details
Celeste15, Jasperilla, Teamchris, Gear, Scaredy Cat, Redwing57, Huddie, ChickNorris, time2reclaim, exqualls, artgal234


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer