Photophia (sensitivity to light)

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Sharmedimsure
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 11/30/2009 12:34 PM (GMT -7)   
Hi all,
 
  Hoping everyone is well and having a good day. I went to my eye doctor 2 weeks ago for a routine eye exam but have been suffering from extreme light sensitivity for some time and it has been getting very bad over the past couple of months. During the exam, I wasn't able to tolerate the little flashlight even on the lowest setting so he set me up to come in and get dillated. (sp?)
At the appt. I continued to have trouble and he decided to take pictures of my eyes. Wow!!!! When the light flashed right into my eye, it felt like he shoved a needle through my eye into my brain! I actully saw the blood vessels light up and it felt and looked like lightening. He had to take a couple of pictures of course and commented that he had never met anyone with such photophobia before. I actually screamed because it hurt so bad. I realized at that point that my right eye is way worse than my left eye. Any way, all said and done, he told me that I am losing pigment in the retina in the right eye which is causing the sensitivity and asked if macular degeneration ran in my family. It doesn't and I checked to make sure. I don't have any vision loss or anything. So that whole day I had to wear dark sunglasses  and my sleep mask and feel my way around the house. The next morning I woke up and felt like a truck hit me and someone belted me in my eye. It was aching so bad and I had to wear sunglasses and keep everything in the house closed up ( which I have to do sometimes anyway) Even this computer screen is really hurting my eye! Anyway, my whining is done and now the question. Has anyone else  had there eyes checked who has photophobia and had anything like this? When I looked it up I came across info. on possible auto immune issues. I am trying to figure out if this could be from the fibromyalgia or if something else could be going on. I have been getting a lot of new symptoms lately and am more exhausted. The fear of lupus is always looming on my mind. When I was originally diagnosed with the fibro. I had a positive ana and  elevated liver enzymes and was told that I may have lupus. I went back for more blood testing and everything came back normal and was given the fibro dx instead. My blood work has been normal ever since but I haven't been in in over a year. I will be seeing my rheum. in a couple of weeks and plan to talk to her about it but was wondering if anyone had anything similar? I feel like everything is going wrong on me and my list of new symptoms is growing. I am trying to be reasonable but at times when I am feeling bad, it gets to me.
 
Sorry if I rambled. I don't feel like can talk to anyone. My husband is kind and so supportive but he doesn't understand the emotional side of this and I feel like I am whining too much some times. I feel bad for him because he of course wants to fix it and there is no way of fixing this.
 
peaceful thoughts for all,
Shar

(Revelation 21:4) And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 11/30/2009 12:56 PM (GMT -7)   

Shar, photophobia is one of the symptoms of fibromyalgia.  My sensitivity isn't as bad as yours, though.  The monitor doesn't bother me at all but bright lights have me squinting, in pain, and tearing.  I'm diabetic and have my eyes dilated several times a year...also have glaucoma.  That is so painful for me.  She shines a bright light in my eyes while using magnifying lenses, which makes it even brighter, and I can barely stand it.  I find myself scrunching down in the chair and she hold my eyelids open.  Tears are streaming down my face...not crying but from the sensitivity.  So, you are not alone.

I'm very careful about macular degeneration.  My Mom had it so I started taking Occuvite for my eyes.  (I actually take Vision Formula that I get at Walmart.  It's much cheaper but has the same stuff in it.)  Occuvite is a vitamin especially for the eyes and it also has lutin in it and will help protect against macular degeneration.  It doesn't promise to prevent it, but it really does help.  My opthomologist is very pleased that I take that.  So, even if you don't have macular degeneration, this is something good to start using to help protect your vision.  Talk to your doctor about it.  I'm sure they'll verify what I've said.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Sharmedimsure
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 11/30/2009 1:41 PM (GMT -7)   
Thank you Sherrine for answering me.  I do realize that the photophia is a fibro symptom. I've had it for many years, but it is getting worse lately. Yes, the opthamologist(sp?) told me to take the  eye vitamins in hopes of stopping the pigment loss from progressing. Thank you for suggesting it. I guess I was just wondering if  it was possible for the body to respond in this way to fibro.  I have heard conflicting things on whether or not this is auto immune. This is not something that runs in either side of my family but I guess it has to start somewhere.
Thanks again for your time and I wish healthy eyes and happy thoughts for you.
 
Shar

(Revelation 21:4) And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”

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