Things that make ya go hmmmmm

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deme
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 12/1/2009 8:47 AM (GMT -7)   
Im beginning to feel like I defy the laws of physics here. Had a Dr.'s appt. He has no diagnosis, his words were he "couldnt quite put his finger on it, he wanted me to continue with supplements and to try lyrica" which brings me to my first question why do dr's always want to prescribe drugs BEFORE they find out what is wrong with you?
 
I have a list of 45 symptoms of things and he focuses on weight loss, I btw dont even have weight loss on my list! I lost  4 pounds pshhhh what is the big deal.  And while there are abnormalities in my blood work all the abnormalities are in the opposite direction of what would be indicated by a problem with weight loss. Everything is high whereas with weight loss in his words would come back low. Which leads me to my second question why are dr's freaky about weight when the patient and blood work say weight loss is fine? I walk humped over and take lil tiny steps, not only do I have days where I cant multi task I cant even single task, I'm so cold I cant stand it, even on nights I sleep I still wake up and feel like I havent, my arms dont always wanna do what I tell them to, I have spasms, twitches, and jerks, I envy my grandmother her poor memory because it is better than mine........... and the dr is worried cause I LOST 4 POUNDS! Blood work does however indicate a muscle disorder or some kind. Third question why are we not testing for what that disorder could be instead of just being randomly given drugs to try?
 
Fourth question when you asks your dr's those questions why do they seem to think those questions arent good questions? 
 
And btw Im probably ranting on the wrong board because my blood work is also not consistent with patients with fibromyalgia but I like the board and its the only place I been where I can relate to other people's problems.
 
So here I am with a presciption in my hand for a drug I dont want to take for a problem a Dr. cant even diagnose. And another appointment in a month and  a half from now just to see if said drugs are working. At times I think I'm a lil nuts I get cuts and burns and dont feel pain even though I know they are bad enough they should REALLY hurt then I'll go and get bood drawn which I know doesnt hurt and it feels like my arm is gonna fall off. The only thing one I believe is nuttier than I am is these dr.'s and the drugs they are always trying to shove down my throat. I know people that cant beg a pain presciption from there dr's, me on the other hand I ask for anything and they either write it out or ask if I want something stronger.
 
Forgive the rant but I just needed to talk to someone that could possibly relate and understand and while I have people in my life I can talk to they sympathize or comfort but they do not understand. This is about the only place I could think of where someone possibly might. Sympathy tends to just make me wanna give in and cry understanding on the other hands makes me wanna get up and try harder.
 
thanks
 
 

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 12/1/2009 8:57 AM (GMT -7)   
Hi Deme
Doctors do not have alot of time with patients so they like to give a pill and send you out the door that is correct in some circumstances.  At least you had some blood work done. 
You may want to ask for a referral to a specialist like a Rheumy, neurologist or whomever is most suited for the most prevelant and painful of your many symptoms.
You may also consider changing your primary care doc. Because if this turns out to be a chronic condition you will be seeing this Doc all the time. I have "fired" Doctors myself.  I am lucky right now to have a set of wonderful Doctors so I feel blessed.
Best of luck to you. 
 
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


deme
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 12/1/2009 9:04 AM (GMT -7)   
This was a specialist. My primary care Dr. after I told her all my symptoms was the one that came up with Fibro, I'd never even heard of it till she mentioned it. She sent me to a Rheumy and the Rheumy is the one I saw today it was my third visit. I've had chronic headaches and episodal migraines for 14 years so I'm used to chronic pain.  I've been put on every type of migraine med there is and had not only no luck but some really bad experiences (I react very badly to meds)  which is why I'm wanting a diagnosis for a problem instead of just randomly trying drugs again before I even know what is wrong with me.

Post Edited (deme) : 12/1/2009 9:14:15 AM (GMT-7)


Sharmedimsure
Regular Member


Date Joined Oct 2009
Total Posts : 24
   Posted 12/1/2009 9:49 AM (GMT -7)   
Hi Deme,
 
 
  I am sorry you feel so badly and yes dr.'s can be frustrating sometimes. I've been through many just as I am sure most people on here have. I was wondering if the dr. had checked your thyroid levels? It sounds like symptoms of hyperthyroid but of course many things mimick the same symptoms. I watched my husband go hyper and it was not good. He was almost hospitalized by the time they caught it. He is a very strong man and it reduced him to a freezing cold weakling. It can be life threatening so hopefully the dr has run labs for this. I hope you can get a diagnoses for your pain either way and that you find relief soon. My thoughts go out to you...
 
Shar

(Revelation 21:4) And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.”


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 12/1/2009 9:50 AM (GMT -7)   

Deme...personally, I'd find another doctor.  Lyrica is not a drug that you just give to someone unless you know the cause of the symptoms.  I would insist on further testing and find out what is wrong before I started taking some drug that may only make you feel worse....been there, done that.  All my bloodwork was fine, but I still insisted on an MRI and other tests because Fibro is a disorder that mimics so many other diseases.  It is very frustrating and I hope you get some answers so you can address the problem properly.

feel better

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


deme
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 12/1/2009 10:16 AM (GMT -7)   
The thyroid was one of the first things they checked. It came back normal. I've also just did a MRI I'm waiting for the results on.

I thought the same thing about Lyrica and he gave me Cymbalta the very first visit to try which I thought was even odder.
 
Thanks for the input, like everything else my mind is not working right. I once ran an airport and had 35 controllers working under me. Now not only can I not multi task but I have days I cant even follow a conversation one on one. So the input really is helpful.

Post Edited (deme) : 12/1/2009 10:22:21 AM (GMT-7)


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/1/2009 11:09 AM (GMT -7)   
Deme. can your original doctor...the doctor that thought you had fibro...treat you?  I see a board certified Internist as my doctor and he can handle anything.  He has suggested Lyrica to me but I don't want the side affects so I didn't take it.  Cymbalta is given a lot to people with fibro.  It is an antidepressant that raises the serotonin levels in the brain and does help some with pain.  Some people like it and some don't.
 
I don't take prescription meds for fibro.  I just use supplements and over the counter pain relievers and have manages so far.  I'm like you.  I'm sensitive to meds and the side affects just aren't worth it to me.
 
The bottom line, though, is you need to have good rapport with whatever doctor you use.  You need to have faith in his/her advice, too, and you need to be able to speak your mind.  I do a lot of what my doctor suggests and there are times I don't do what he suggests, and he knows that and respects my decisions.  That's important.  I hope you find someone that you can work with.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/1/2009 11:58 AM (GMT -7)   
deme said...
I walk humped over and take lil tiny steps, not only do I have days where I cant multi task I cant even single task, I'm so cold I cant stand it, even on nights I sleep I still wake up and feel like I havent, my arms dont always wanna do what I tell them to, I have spasms, twitches, and jerks,


Not diagnosing here, but have you been checked for Parkinson's disease? This sounds like my mom-in-law before she was diagnosed. ~ Wish I could be more helpful.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


deme
Regular Member


Date Joined Oct 2009
Total Posts : 27
   Posted 12/1/2009 12:04 PM (GMT -7)   
Yeh my primary care Dr. I really like. She's real common sense and she works really well with me, really helped me manage conditions that I had seen specialist for for years with no results. Gives alternatives other than drugs. Whatever my problem is now is really to complicated for her to diagnose so she's been referring me to specialists to rule out things she believes it could be but isnt able to diagnose herself. If it was just the pain I could work around that but my motor, vertigo, and congnitive skills are getting so bad at times that I dont function at all and have gotton some serious injuries, even on days when the pain isnt that bad. I plan to talk to her about what's going on with the rhuemy see if she can refer me to another one, or get her opinion on what hes found out so far.

Thanks ya'll got me feeling more positive already. Ya'll really are a great group of people.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40572
   Posted 12/2/2009 11:42 AM (GMT -7)   
Deme,

I just wanted to say that I hope that you find what is wrong and what will work for you. Be patient. With fibro, they have to rule so many things out. There is no blood test for fibro and it doesn' show up on exrays.

Best wishes for a wonderful day.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted Yesterday 10:28 AM (GMT -7)   
When I was young..oh forever ago...like in the 70s for you youngins..the stone age. Anyway..my husband was in the military and I wanted a baby but couldnt have one. Their answer to ALL of my illnesses at that time including this one was...lose weight. I'd go in to see them only to hear the same things each time. Lose weight. So I stopped going.

To make a very long story short...after I had to have a hysterectomy they found out that I had Polycystic Ovarian Syndrome which they are finding is much more prevelant today than they thought it was at that time.

It took me two years and four doctors to find I had Fibro and it wasn't until after I was with the family doctor I'm with right now for a year and a half and went through a surgery and many blood tests did he finally LISTEN to what I was saying and tell me I might have fibro and get me an appt with a Rheumatologist.


So you're not alone kiddo ;) Good luck sweetie
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