New here, and new to fibro

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zep24
New Member


Date Joined Dec 2009
Total Posts : 4
   Posted 12/4/2009 12:14 PM (GMT -7)   
Hi everyone, I've been lurking on here for a few weeks and finally decided to post. I've recently been diagnosed with fibromyalgia, after being tested for numerous other things (dr really thought it was lyme disease but turned out that was negative). My dr gave me a prescription for an arthritis medication (Meloxicam) to take each morning and a muscle relaxer to take at night because I was having problems sleeping. He told me to come back in 6 weeks, so I have an appt on Dec. 28, and in the meantime I guess he just wanted to see if the combo of those 2 drugs worked. Well, at first the Meloxicam didnt help at all, but then I started to think maybe it was helping slightly, but now I'm thinking it was just in my head, because I'm still having a lot of bad pain most days. I've stopped the muscle relaxer because it wasnt helping me sleep anyway, and I think my sleep schedule is somewhat back to normal (it was thrown off because I was calling out of work a lot and sleeping ALL day, then couldn't sleep well at night).
 
The dr told me that Effexor is a common drug used to treat FM...and I had been on that for several years for anxiety/depression but went off about a year ago and have been doing fine with out it, plus it made my hair fall out which of course is no fun! So my first reaction to him mentioning Effexor was "no way!" But now I'm thinking maybe i should go back on it, since I had no serious side effects.
 
I'm wondering what kinds of medications/therapies/herbs/whatever everyone has found relief with? I have a friend with FM who manager her pain without any medication. I would REALLY like to figure out how to do that. Thankfully I know I dont have the worst case of this in the world...even on my worst days, I'm still able to walk and function normally, just with a lot of pain. I've heard exercise helps with the pain tremendously but so far I just haven't been able to bring myself to really do much of anything. I'm also having depression problems again, which I'm sure is partly due to the fact that I've gained about 10 lbs since this whole thing started.
 
I feel like I know some of the things I need to do. Exercise. Start eating better (I figure the less I weigh, the less stress on my joints therefore less pain, right?). But for whatever reason, I'm just having a hard time getting myself in gear, and to stop feeling sorry for myself and DO something about it.
 
Anyway, i'm sorry for the long rant. I'm just looking for some ideas of things that have helped relieve the pain for everyone, so I have an idea of some things to try before jumping into being on a medication permanently. Thanks for reading!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/4/2009 6:43 PM (GMT -7)   
Hi Zep and welcome to the family. It is natural to grieve when first dx'd with fibro, it is a life changing dx. People with fibro have a low serontonin level is why your doc recommended you go back on anti-depressants.
 
Read the fibro 101 thread, second thread, it contains lots of great helpful info.
 
I was on amitriptyline when I was dx with fibro for anxiety which is an anti-depressant but it also helps with sleeping and pain. I also take xanax for anxiety but it relaxes you and helps with sleep. Many with fibro have low vit D and B12 so you might want to make sure he checked them. I was dx 6 or 7 yrs ago, lost track of time, and I just recently started taking a little vicodin which may help a little but nothing seems to take all the pain away. I held out as long as I could without narcotics.
 
Each person with fibro is different and each have their own protocol as how they manage it. But heat is a must for all in many different forms.
 
Most of us live a normal life we just have to simplify and pace ourselves. It takes time to learn but you came to the best place to learn how to live with fibro.
 
Don't stress, stress and fibro don't mix.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 12/4/2009 6:43 PM (GMT -7)   
Hi, Zep, and welcome!  We sure have been where you are now.  You know, each person is so different in what symptoms they have and what works for them.  What works for one doesn't necessarily work for another.  It's a trial and error thing.  I use ibuprofen with food, extra strength Tylenol, malic acid/magnesium supplements and vitamin D3 supplements to help with pain and fatigue.  Walking and stretching are my main types of exercise.  I also swim.  These are very good for fibro.  I also see a massage therapist that has studied and learned how to massage a person with fibromyalgia.  Deep massages are not good for nearly all of us.  You need a gentle massage.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There you will find links to information about fibro including info on the malic acid/magnesium supplements, vitamin D, and some good stretching exercises.  These ideas should get you started.  Always talk to your doctor before starting things, though.
 
I'm so glad you found us and decided to become a member of our fibro family!  I'm looking forward to seeing and hearing more from you.
 
Sherrine
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/4/2009 7:00 PM (GMT -7)   
Hi Zep24 and welcome to our fibro family! If you haven't already, do check out fibro !01. It
is the top of the page 1 and has a lot of good information for the fibromite.

Exercise is so important. It helps relieve stress, build muscle and helps keep you becoming
more stiff and achy. I enjoy walking, working out with resistance bands and small hand
weights. The trick is to start out slowly and pace yourself. Overdoing could lead to a flare.

We all tolerate meds differantly. Sometimes it is trial and error before we find the right med
combo that works. I am taking Savella 50 mgs 2x daily and Flexeril as needed for my Fibro.
It has been a help. I also do relaxation therapy, stress causes more pain because your
body pumps adrenaline and cortisol into your bloodstream and causes your muscles to
become tight.

Heat is a fibromites friend. Soaking in a hot bath helps, I use heating pads and also have
a massage chair pad that I love.

Glad you have joined our fibo family

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 12/5/2009 8:20 AM (GMT -7)   
Welcome Zep24! I'm sorry you have fibro, but so glad that you found us. This forum has been a godsend for me. I have just been recently diagnosed too, but I've been pestering my doctor for about 1 1/2 years. Knowing what is wrong does help in dealing. When I first got sick, I coudln't imagine what my life was going to be like, or how on earth I was going to manage! But I learned so many great tips from experiences of other members, and mostly, that I couldn't let fibro rule my life!

I take amitriptyline for nerve pain and for helping me sleep. I also took the malic acid/ magnesium combo that Sherrine told you about. It made my muscles feel almost normal, and gave me lots of energy. I stopped them this summer, I felt so good, but have just started them back again, as this fall has brought on a flare, like with so many others here.

Exercise is a huge help. I know how hard it is to get motivated to move, especially when you hurt, your legs feel like they have been dipped in cement, and all you want to do is lay down with a pile of blankets. But it will make you feel better, and also help with depression. I've been lazy about keeping up on my exercise routine with all the extra stuff to do around the holidays and worsening pain issues. I am trying to get back into it, as I know I will feel so much better... but as you see, I am procrastinating by posting here ;) I do aerobics (helps with energy and strenght), pilates (a good posture greatly reduces my back and shoulder pain) and yoga (nothing like a good stretch to ease our aching muscles).

Heat is wonderful too for helping with pain. I use a heating pad, electric blanket, and one of those bags that you heat in the microwave. I also made my own (another trick I learned here) by stuffing a pouch with rice (not the instant kind) and I added some lavander from my garden, hmmm.

Please keep posting, and reading. We are all in this together. Hopefully you will soon find something that works for you in easing the pain and fatigue, whether you want to go the natural route or with an rx is up to you. again, welcome!
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet

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