I hope I am on to somehting....

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Isosceles
Regular Member


Date Joined Jan 2007
Total Posts : 35
   Posted 12/7/2009 12:29 PM (GMT -7)   
 
I am just about convinced that my Fibro symptoms are caused by my terrible sleep patterns (wake every 1-1.5 hours, no matter how tired I am), vitamin and hormonal imbalances.
 
I had these suspicions a few months ago, went to my primary care Dr. and told him I think my body is not repairing itself becaue I don't sleep efficiently and my hormones are out of balance.  I particulalry pointed out a possible D3 deficiency.
He pooh-poohed the idea, stating that D3 deficiencies are more common in women (hello!  SO IS FIBRO!).
 
To support the D3 deficiency, I point to the fact that I had a total right hip replacement 3 years ago at age 43.  Isn't Vit D supposed to promote healthy bones? And I diagnose myself with healing problems, perhaps created by lack of HGH, because, not only am I very sore the day after carrying a table here at work, but it took over 3 months and many extra hours of therapy to be able to walk without a cane after my hip replacement surgery.  My mother had the same operation a year later and was walking without a limp within 3 weeks!!
 
Also during that table carrying incident I referred to above, my boss who is 4 years my senior, had a harder time carrying the table, but was not sore at ALL the following day.
 
After reading Dr. Edward Lichten's findings, I have ordered liquid D3, DHEA, and 5-HTP.  I am praying I'll be able to get some relief because I can't much more of this.  The only meds that really help me are Cymbalta and Fentynal.  One of them is causing me to sweat a lot, mostly cold sweats.shakehead   YUCK!

Post-traumatic Fibro onset after accident 10/05, diagnosed end of 8/06
Total right hip replacement due to osteoarthritis 8/1/06
Extra Hemi Vertibrae on top of T1 and below C7 (call it C8??)
resulting in scoliosis, last measured 40+ degrees.


meds: Cymbalata 60mg twice daily,
Lyrica quit taking...seemed to feel better 150mg 3 times daily
Oxycodone 10/325 up to 6 times daily, usually 3 or 4
Fentanyl patch 50mc 1 per 48 hours
Provigil 200 mg once daily
Zinc/Magnesium/Calcium
St. John's Wort.
....i'll take anything that won't make me naseaus


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 12/7/2009 12:51 PM (GMT -7)   
Wow, hip replacement, Vitamin D deficiency....have you ever been tested for celiac disease?

You can test yourself to see if you have a problem with gluten by going gluten free for a couple of weeks and then going back on a "normal" diet. If you feel better gluten free and then have nasty symptoms after you start eating wheat again you'll know that you need to be gluten free.

It's good to have a doctor test you, but there are frequent false negatives in both blood work and biopsies for celiac disease.

Good luck!! Keep us posted!
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 12/7/2009 2:21 PM (GMT -7)   
I started taking Vit D3 after finding out I was low, back in late September. It has been a godsend for my Fibro. But.....its raining today, and the Fibro is in full flare. So in normal weather the vitamin D is working, but a rainy day it doesn't. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/7/2009 2:35 PM (GMT -7)   
Many people, especially fibromites, are deficient in vitamin D.  That can cause more pain and fatigue but I don't think that's the total answer because many of us have been taking it for quite some time.  It does help but we still have pain.  There is a link all about vitamin D3 in the Fibro 101 thread. 
 
Also, you are absolutely correct about the lack of sleep and the fact that we don't repair ourselves.  That's why many take sleeping aids and SSRI's.  But, again, that isn't the total answer, either.  BUT, give these things a try.  They could really help you.  Also give malic acid/magnesium a shot, too.  I use that and it has helped me a lot.  There is a link about that, too, in Fibro 101.  Let us know how things go for you because we really do care.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 12/7/2009 4:33 PM (GMT -7)   
You may want to consider changing doctors. Just because something is more common in women doesn't mean a man can't have it too. Be careful with supplementing vit. D, it's a fat soluble vitamin so you can build up to dangerous levels. Have you had a sleep study? A sleep study will tell you about any sleep issues so that your doc can fix them with the right treatments and/or medications.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 12/7/2009 6:19 PM (GMT -7)   
Check into Super Cissus Rx. I use it with Bio-Sil and Malic Acid. The difference in sleep
patterns is substansial. Even the first dose of Super Cissus (I took 3 tablets) and I
slept like a log. I was averaging over 40 times I would wake up on a bad night.
I now use True Calm and Nite Time Herbs and rarely have a bad night. Seeing as I
have to get up at 4 in the morning sleep really counts.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/7/2009 8:31 PM (GMT -7)   
I would change any doctor who pooh-pooh'ed anything his patient had to say. We pay them to listen to us, to care, and to help us, not pooh-pooh.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/7/2009 8:51 PM (GMT -7)   
I agree with Littleneck. You should start looking for another doctor. I believe we are our
own best advocates and should be proactive in our healthcare.

You seem to be proactive in looking for solutions and your doctor is not taking you seriously.
My rheumy takes the time to look over medical abstracts I bring in from doing research.
He is glad I am taking an active role. Being proactive makes me feel I have some control
in decision making concerning my health. It gives me knowledge to ask questions.

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Jhemi
Regular Member


Date Joined Jul 2009
Total Posts : 223
   Posted 12/8/2009 12:51 AM (GMT -7)   
If you drink coffee, tea, soda, or eat much chocolate you need to stop for a while and see if that helps you sleep also.
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