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Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/8/2009 9:30 AM (GMT -7)   
I am so confused. I dont know how I feel right now. I always thought it was fibro but was never diagnosed. I was having most of the same treatmeant (pt,cymbalta,muscle relaxers) but nothing has worked. My dr wanted me in for a visit. Gave me a physical exam and never even thought fibro until she pushed on my chest and I flinched horribly. She then said I think you have fibro. And told me she wanted me on pool therapy the rest of my life and i know ive written this in another post but i cant get over it cause i am only 26 yrs old and i hurt so bad and i dont want to live my life in pain so its hard to accept. I was always wishing i was wrong and my pain could just be fixed. Ive sat and watched the new fibro commercial with all those women crying and i would also cry. Maybe she is still wrong? Im sry everyone i just figured maybe you guys could relate more than anyone else!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40567
   Posted 12/8/2009 9:37 AM (GMT -7)   
Hi FTL,
 
I am sorry that you are suffering so.  Fibro may be a life sentence, but it is not a death sentence.  So try to take each day as it comes.  At least you know what you are dealing with now. 
 
There are medications that you can take for pain.  It sounds like you are a little depressed too.  Often you can find antidepressants that help with the pain too. 
 
I take a lot of meds, and yes, it gets burdensome.  I often wonder what would happen if I stopped them all, but know better than to do that.  I would be a wreck. 
 
KNow that we are all in the same boat here, and that we all care about you.  I hope that you start to feel better soon.  Have you ever thought about trying the malic acid and magnesium regimen?  IT works for a lot of us, but not for all.  I also take vitamin D3, that really helps with the mood and gives you an overall feeling of well being. 
 
I really hope that you start to feel better soon.  Just know that you are not alone in this.  We are here for you.  Keep posting and let us know how things are going.  Take care my friend.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/8/2009 10:09 AM (GMT -7)   
Thanks so much for your response! Im actually on vit d3 and omega 3 fish oil supplement since my vit d level a few months back was 13. She also put me on lyrica as well but apparently i took a different pill last night tho i was so sure it was my lyrica and i counted them this am and there are still the same amount from when i got them from the pharmacy. That itself scares me cause i have no clue which pill i took if any. Im also on neurontin for anxiety and have been on it for over a yr so i know it hasnt helped my pain. But its GREAT for my anxiety! im suppose to take wellbutrin but i havent been very faithful to that one lately. Ive been on soooooo many psych meds cause of all my mental health issues (bipolar borderline personality disorder ptsd anxiety add ocd think thats it?) and none seem to really help my depression unfortunately. Ive tried cymbalta,robaxin,flexeril,advil,tylenol,voltaren, and then some for pain. Definitely not a death sentence and i appreciate those words!! :)

mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 12/8/2009 10:49 AM (GMT -7)   
Hi and welcome to the forum, I'm so glad you found us.

Yes, like Karen said, fibro is a life sentence, but not a death sentence. I started having symptoms in the spring of 2008. By summer of 2008, I was feeling horrible with lots of pain and no energy. I thought then that I would rather have anything but a life of this! But... fibro, for most people waxes and wanes. You will find that you will have good days, and then bad days, but they don't last forever. Also, you would be surprised at what your body gets used to. Aches and pains that I used to suffer through have just become my new normal, and I hardly notice anymore. You will still be able to live a full life doing most things you used to, but maybe in a different way. The secret is to learn to pace yourself, and get to know your body.

I remember reading your original post last night, but didn't have the time to respond then. I was searching for it today when I came across this one. Anyway, in your last post, you said the doctor suggested pool therapy 3X/ week. Many people here do love swimming exercise as a gentle way to get moving. This might be just what you need to start making you feel better. But don't think so far ahead as think that you will have to do that forever. Any form of exercise is wonderful for fibro, the more you move without overexertion, the better you will feel. i can usually link bad days with periods of inactivity. I have been to PT during particularly bad times with my shoulders, but once it helped, I moved on. I am going to try massage in the new year. I'm supposed to go more at first, then if it helps and feels good, I may just go once in a while.

Read up on the fibro 101 thread at the very top of the page. You will find lots of useful information then. I have tried the malic acid/ magnesium combo with great success. Keep asking questions and posting for encouragement if you need it. We are all in this together, and I'm sure we can help you get a handle on this. I found I started feeling much better once I learned to accept and move on. Once again, welcome!
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet


Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/8/2009 10:59 AM (GMT -7)   
mamanan thx so much for responding. It does help having this site. I know eventually i will just accept it. Esp with the help of this site! :)
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/8/2009 2:46 PM (GMT -7)   
Hey FTL, You already recieved some great advice!

In your own time you are going to find what works for you. Know that you can have Fibro
and have many great days and enjoy life. Learning to deal with the flares is through trial
and error. All flares are differant too. My rheumy presribed Savella (SNRI) and it has helped.
I also take a muscle relaxer Flexeril (cyclobenzaprine) when I am flaring.

Take one day at a time, strive to have fun and try to relax, but don't forget some exercise!

Hugs

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/8/2009 4:12 PM (GMT -7)   
I know this is difficult but really try not to stress out over this.  The stress will make the pain worse.  I've had fibro for 22years and still have had a wonderful life!  I've learned what helps me be in control of the pain and I've learned how to pace myself.
 
I've done so many things.  I've traveled to many countries, I've stood on a glacier, parasailed, etc. all with fibro!  I just walked through DisneyWorld last week!  I'm no spring chicken, either!  (Don't you dare, Marlee!)  You will learn how  your body reacts and work from there.
 
Instead of projecting yourself in the future, live one day at a time.  Look at all the blessing you have, too.  That will put a smile on your face!  Look forward to each day with anticipation and set resonable goals for yourself.  Find good hobbies.  I love genealogy and when I'm working on that, the pain fades in the background.
 
We are here to help you.  Don't be frightened or depressed because you have your whole life ahead of you and there will be a lot of wonderful times and events in your life, in spite of fibro.  There sure are worse things out there that you could have!  Ask questions and we will help you learn how to have a very successful life with fibro.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/8/2009 5:36 PM (GMT -7)   
Your right Sherrine, your not a spring chicken, more like a fall chicken. devil
 
Finding, I wasn't dx'd with fibro til my early 50s and I can't imagine getting this at your age when I had three little boys to take care of so I'm not even going to say I understand how you feel. But regardless of the age we are dx'd with fibro we all seem to go through the same mourning process before we get to the acceptance stage and go from depression to determination on how we can live the best life we can with fibro.
 
As the others have said it takes time to figure out what works best for us. We will give you a ton of ideas and you can try what works best.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/8/2009 7:58 PM (GMT -7)   
Marlee, I Like what you said about going thru a mourning process. One of my sisters (the one who has had fibro for 14 years) is warning me about making plans to move to a warmer climate because she thinks that I am currently going thru this mourning process as I learn how to live with the diagnosis. A mourning process is very valid. I think that we all do go thru a mourning process. I think we are forced to look at ourselves and, for some aspects, life a little differently. My sister's mourning stage was long. Mine, I think has been fairly short. I wanted to let her know that one of my ways of learning how to live with it is by getting to a more temperate place!

In the meantime, I am so glad to have found this place. It's been about a year that I've been lurking and several months after that since I began posting. There is definitely great idea sharing on here.

Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/9/2009 7:21 AM (GMT -7)   
you are all so welcoming and understanding i love it. Thank you all! And its funny you said it that way marlee because as i wrote that thats all i could think about saying but didnt think it would make sense! Im glad to know im not the only one whos felt this way after hearing it. and im even happier to know i will get past it :) Marlee i notice you too have gastroparesis? I was wondering how well you cope with both? i cant take reglan cus i get one of the less common side effects that i couldnt live with and nothing else has helped me so it makes it difficult to make it to physical therapy.
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/9/2009 8:52 AM (GMT -7)   
Marlee! If you don't behave I'm gonna send you to your room! Stop peckin' at Sherrine! Honestly, you two! nono

Light,
I'm sorry you had to go thru this whole thing. I've had symptoms of fibro for my entire life, as long as I can remember at age three, and I always thought that everyone felt this pain all the time. Imagine my surprise when I learned that some people don't live in pain! I mean, I remember some of my better days as a child, pain free, happy, playing with my dolls under a tree, blue skies with fluffy clouds, and I used to think that this must be what heaven was like because everything was so perfect. I looked on those brief intervals as gifts. Don't get them anymore...

Anyway, I've married, had three children, started two businesses and am right now running a licensed wedding cake bakery out of my home. Because I'm the boss I can take breaks when I need to and still get the job done. Somehow I kept going because there was no alternative. You can do this, too. Pace yourself, love yourself and take care of you because if you don't no one else will. Remember to keep moving or you will become a bedbound cripple. Get angry at the disorder and keep fighting. You can do this. We will help.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/9/2009 9:23 AM (GMT -7)   
Thanks, Jeannie.  I know I'd rather be a fall chicken than a dumb cluck! devil   I wuv you, Marlee!
 
Light, you are going to be just fine.  Just stick with us crazy fibromites and we will help you along.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/9/2009 10:12 AM (GMT -7)   
you guys brought tears to my eyes Thank you!! :) i have always felt pain since at least my teen yrs but i never knew why but this pain is just plain horrible. I read somewhere that someone once felt horrible pain after a tender point test and this pain started shortly after that appointment mon. But id have thought the pain would be gone by now? but i did also walk around and shop for about 5 hrs fri (b4 the probable diagnosis) and held my 2 yr old nephew for a little bit and i was sore after that but not like this. i honestly thought about calling my pcp but i feel thats going behind my pain drs back and she would want to see me and we have 8 inches of snow right and more and its only slightly possible i could even get to the pharmacy down the road a ways nevermind the drs office ive thought last night about the er cus i didnt know how to handle the pain.
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


fmmom
New Member


Date Joined Nov 2009
Total Posts : 9
   Posted 12/9/2009 11:24 AM (GMT -7)   
Light,
     I just recently found this site and I am finding a lot of help here.  I went through many mis dx's before the docs finally came to fibro.  I was in my early twenty's when the whole process started so I can understand where you are coming from.  I still get overwhelmed with it all and it is 20 years later.  Finding what works for you is a long process.  Hang in there and you will learn how to get through by trial and error.  Keep up with the latest info because my orignal research was out dated and I am finding out new things that make sense. 
 
 
 
Fmmom
 
 
 

Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/9/2009 1:14 PM (GMT -7)   
I'm still hoping it's something else. My bf says im in denial. But I dont know maybe I am. I keep thinking maybe she will say well try sleeping this way or maybe its just your posture. But then I come back here and look at how much I can relate to people and it makes me realize thats probably not going to happen. I seriously don't know why this is so hard since I did always think I sounded like I fit the criteria. Why is it so shocking to my system? Maybe because this is the worst pain i've felt from this? Sorry I just feel so lost. I think once I know for sure if she is diagnosing me as that like I think she will or if it's just possible? I dont know do I sond like im in denial/
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.

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