Can you contact your old physician and ask him/her to lobby the new doc for you?
By accident i was assigned the wrong doctor...one that was not talked to, I have appointment with that doc on the 21st!!
You could also start a "pain journal" that tracks your pain levels, your home intervention (yoga, ibuprophen, aspirin, tylenol, hot packs, muscle rub cream) and the results. This will give you ammunition for the next doc appointment, regardless of whom you see.
That is a real great idea!! I have soooooooooooo many meds, rubs,pain patches, tens unit, yoga, meditation, music, when days allow, gentle excersise/walking/up and down stairs. Massages especially for the trigger points, heating pads, warm baths, hot water bottle, herbal meds, chiropractor, acupuncture...which is actually real helpful unfortunately for only about
2-3 days!! But that is better than nothing right?? lol
How long ago did you see the pain specialist? If it's been a while they may have changed their understanding of fibro.
here is the funny Jeannie, it was only about
2 yrs ago!! i just started to do some searching to find one that will also accept medicare.
Is there a college with a med school in your state? Sometimes they will be more understanding and then can give you a referral to a local doc who has the same philosophy about
will be checking that out as well!! Good idea!
Also, there are treatments available for fibro that don't involve pain meds. Are you on an SSRI? If not you might want to ask your doc for one. They really help with the pain levels.
I have tried so many and they make me sick one way or the other...swelling, vomiting, dazed, groggy all day, not able to get out of bed, very aggressive where i want to kill someone, heart palpatations, nausea, dizzy, feeling like i am drunk, mental confusion, being in a haze...all on top of fibro fog.
the flexeral i got at the hospital the other nite gave me heart palpitations, sweating...tightness of chest...almost went back to er and then nightmares, confusion when i finally did wake up, drunk feeling when i was able to walk or stay awake, it took about
16 + hours for it to wear off without feeling like im going to fall. I only took half of dose prescribed too! I am supposed to take one at bedtime and one in morning...I can't be expected to live feeling like that am I!!??? lol
I have tried so many, lets see...gabapentin, elavil, baclofan, skelaxin, buspar, ativan, tramadol, ultram, fentanyl patches, and many more, but just can't think of the names .... anti inflamatories i can't take do asprin allergy. i can take only so many percs b4 i get sick to stomach...jeeeesh
Wish I could be more helpful.
R u kidding u had great suggestions, thanks a lot Jeannie!
Daily exercise has also knocked down my pain levels. It helps with the stress and stress
causes more pain. I found by walking daily, my leg achiness has improved greatly.
I try to do that on a daily basis too, it does help sometimes, other times it makes it worse.
I think if i was able to get some sleep it would be a good thing, but even sleep meds don't work for me...on the first night they knock me out but after that it does not work...
thanks for the hugs...and right back atcha!!
She never treated the Fibro just the oppersite to you she handed out tablets like drinks of water almost double what I had been given. Then for some reason she changed her mind suddenly and i was left short even for small doses, in the end I changed Doctors eventully to find one who helped me no end and we worked on finding meds that worked for me.
I think that was with this doc too, she looked like she just became a doctor...and for other issues i had, she would have given me about
ions for those all worse than than the problems.
For me I have found that sleep and stress if I can get enough sleep I can deal with stress.
I CAN'T SLEEP!!! I will be exhausted, like now and can't fall asleep...usually a 1/2 val will relax me enuff to sleep for about
2-3 hours if i am lucky...then its toss and turn for a couple of hours, then sleep for a couple...and on and on.
I notice with sleep if i get some...meaning about
4 hours without waking up, i can do a little better but those r far and few in between... sheeesh, :)
I took baclofen for a while too, but then I started to get heart palpitations so i had to go off them...
That is such a GREAT tip Kathy, I never even thought of that! Of course, oh my, ask if they have ever treated fibro...and how!!
LoL, how easy is that!!!
I will not give up...just make more trips to the er...
Ladies, thanks so much for your great suggestions and your precious time!