STUPID, NO GOOD, ROTTEN, STINKIN' PAIN and FIBRO and I'm taking numbers and kickin' BUTT!

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Chutz
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Date Joined Jan 2005
Total Posts : 9090
   Posted 12/9/2009 5:38 PM (GMT -7)   
I HATE fibro and I HATE pain! mad I HATE being tired and I HATE having no energy. sad STUPID fibro stops me from doing just normal things like working on a sewing project for an hour. confused No matter if I stand or sit I hurt like crazy. My ribs, back, neck..OK, my entire body including my toenails and the hair on the inside of my nose!!! shakehead I'm just trying to prepare for Christmas and making gifts for the grandkids and what I used to do in an afternoon I literally take 3-4 days to do and then I'm exhausted and in horrid pain. cry Is it too much to ask to just keep the house a bit tidy without sitting in a puddle of tears??? Can't I have a life where I can plan more than 10 minutes ahead???

I can't remember what I came into this room for only 12 seconds ago; don't know what I had for breakfast and there is no way I can fill out disability forms since I have NO idea what year or what doctors I have been too in the past 10 years. Not even the YEAR!!! YES, I'm screaming!! This way it only hurts my fingers and the arthritis has set up camp there and taken over on days when fibro isn't stabbing every muscles in my hand. Then there's the costs! DON'T even get met started. I can't work so it really makes sense to up my doc visit copays 250%. I have to go once a month so that's more money I love to toss down a rat hole.

Anyone who comes over has to find the path from the door to wherever they want to go. They can find us by voice most days and by GPS on others. Have you seen my windows??? No wonder because they look like brown painted walls since I can't remember which year I washed them either! I'm not sure which walls have them and which don't.

Whoever came up with this freakin' disorder should sell it to the military. If they flung it on the enemy we would win every time. And YES, I DO wish it on my worst enemy...my EX! At least he has cluster headaches!! They combine nicely with pathological lying...lol tongue

OK, so I maybe exaggerated a bit...maybe on the window deal..but I needed a place to yell and scream and I never learned how to yell out loud...really! So I came here cause you guys are at a far enough distance to be safe. It may or may not do any good but at least I had my say.

Does anyone want to join me??? Maybe we can yell this Dang Disease to death!!! Just keep in clean, OK??? nono

Chutzie smilewinkgrin
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 12/9/2009 5:48 PM (GMT -7)   
Heh Chutz
You just throw some towels at that dirty window and tell it to clean itself up!
Take the rest of the evening and chill.  No Christmas presents need to be made today.  Your love and caring will not be in it.  Wait.
House smouse who cares.  Houses never caved in because they were unkempt.
Call a friend neighbor girl down the street. Barter for a little help with the heavy stuff.
You are stressing yourself out big time breathe breath breathe breathe breathe breathe now do it again breathe breathe breathe breathe breathe breathe.  Think of a time like a walk in a lovely park, tipping your toes in a pond, seeing the beach for the first time.
So beautiful so peaceful.  The waves splashing rythmically on shore woosh woosh woosh sea birds flying over head, diving into the surf looking for there supper.  The beach is all yours and it is wonderful.  No pain here only serenity only warmth only freedom.  Now lay back in your chair forget about the other stuff that means nothing tonight.  You are all that matters right now.  Relax cover up with your blankie and close your eyes.
 
Good night chutzie good night
 
Rhonda <3
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/9/2009 6:11 PM (GMT -7)   
OKAY CHUTZIE, take some deep breaths, breathe in deeply and let it out slowly and repeat several times. Fix a hot cup of tea, coffee or hot chocolate and sit back and enjoy it, you deserve to take a little break. Make a list of priorities that have to be done before Christmas, mine was shopping for grandkids so Santa would at least have gifts for the little ones in his bag. Second was putting up the tree, can't have Christmas without a tree. Actually, it took me about 4 days to do a little decorating but I quit this afternoon. Next will be making some homemade treats and then I will worry about cleaning. Our Christmas starts on the 18th. At least I hope so, I am so afraid someone will get sick or the weather will get bad and we have to postpone it til the 2nd of Jan. and then it will be me screaming my head off on here.
 
I will have 4 boys between the ages of 6 and 13 running through my house plus the 12 and 8 yr old girls. Oh yeah, can't forget the three dogs, one son and DIL bring their dog and my girls are not use to him, this could get interesting. Shayne will be the only one that stays put this year. His mother will drive us all crazy cause this is a baby that is not allowed to be anywhere near the nasty dogs or any kind of germs. I'm sure your house is going to be just as crazy and no one is going to be able to see what the house looked like five minutes after they arrive.
 
If this perfectionist can relax this time of year anyone can. Okay, I lied, I'm not the least bit relaxed but I'm trying very hard to. smilewinkgrin
 
No, this isn't fair and then you through in  the arthritis we both have and it sucks but the odds of us both being here for Christmas is greater than for many, many mothers and grandmothers.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/9/2009 6:27 PM (GMT -7)   
Chutzie, That was one good vent! I will join you but I am foggy. Hope you feel better!

Fibro can really do a number on us. I hate how it can come out of nowhere and turn my brain into mush. I never know what day it is until I check the computer. When I go shopping I have
to park in the same row all the time or I lose my car. I space out in the shower and forget if
I washed my hair, no wonder I go through shampoo so quickly. It does take more time to
do simple tasks. My friends think I'm funny and I'm just trying to be normal.

The pain is another thing. I'm used to the regular everyday type, but the flaring kind is so
excruciating. The pain I had this morning made me sick to my stomach. Those Fibro
commercials should show a person having a real flare, but then again people who see the
commercial aren't feeling the pain. The pain is unpredictable so it interferes with plans made
weeks in advance. Fibro tests the patience of everyone living with it, over and over again.

Having Fibro makes me appreciate my good days and I am thankful that I have some!

Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


confused Okie
Regular Member


Date Joined Apr 2009
Total Posts : 164
   Posted 12/9/2009 8:57 PM (GMT -7)   
I want to scream too!!!I go shopping and only get in one store and i'm done. Then I go out and walk to the car (parked in the same row also) and barely remember the drive home. 2 days on the tree and all I can say is its in the corner and upright. Maybe lights tomorrow....should be ready by christmas eve...I hope. My ribs hurt and everything else and I don't want to do anything. The laundry is piled, toys all over th eliving room and I don't care. Yes i do, just trying to convince myself I don't. I wouldn't let anyone in here to help me. Maybe I can just move.....no that won't work, I lost my job. I can remember loving the holidays, now I just dread them and despise winter. How many days left????
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 12/9/2009 10:21 PM (GMT -7)   
Winter??? Let's see, the longest night of the year is the 20th or 21st, somewhere in there and then we start getting longer days. BUT, that's just when real winter sets in up north and look out below! Oh ya, shopping! I decided we don't need to shop. Easy as that. I give hubby short lists and he gets what we need either during his lunch hour or on his way home from work. I'm like you Okie...one store and I'm miserable! It's quite a drive to go shopping so I'd at least like to take care of 2 or 3 stops but if I do I know the consequences!!

We are taking all of the grandkids to get our Christmas tree on Sunday. Oh dear!!! What was I thinking shocked Seven or 8 kids running through the tree farm ... ya, but they have a blast and it's so fun to watch them run and laugh. OK, the softie in me is sneaking out the cracks in my head...lol No, I don't like the pain all over the body, the 4 day headaches, neck that won't turn without breaking, and on and on..you all know and more! But once in a while it does good to have a place to yell and scream and ask 'WHY ME?' Why not? Do I deserve this? Probably not nor you either. But are there worse things that could happen in our lives?...likely. Imagine what our ancestors did when fibro hit them. They were just "crazy". Plus, they didn't have a wonderful group of friends who would understand even if we go off the deep end now and then...lol

Does anyone else fall asleep while typing?? Type words backwards and inside out?? I scramble the letters in my own name. Then try reading whey you typed? (see what I mean ...whey should be when... but I just left it. Now there's a laugh if you ever need one.

See!! Isn't this fun??? It's theraputic, cleansing and just darn fun...lmbo Who else wants to complain??? Come join the rant! turn smilewinkgrin

Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted 12/9/2009 10:53 PM (GMT -7)   
Ok, Mom. I am going to tell you what I tell my grandma. You need to pay attention to your limits. You are doing too much. You need to take time to rest. I know that this season is a busy one, but you won't even be able to enjoy it if you are so worn down and in so much agony because you didn't take the time you needed to to rest. So, take some deep breaths and relax. Take a day or two off. If you must do something, then do something light. Take it easy on yourself. Your family knows you have this condition. They know you have limitations yourself a break. You're not superwoman. You can't take it all on at once. So just listen to your daughter on this one. Take it easy for a day or two, then start by doing something light. And DON'T beat yourself up about it. Ok? If you need someone to vent to, you can always e-mail me. If I lived near you, then I would come over and give you a hand. As hubby to help with something. There has got to be a few things that he can do to help you. That is what he is there for. I expect to hear that you are taking it easy, or I will find a way to fly or drive there and tie you to the bed or a comfy chair so you can rest.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 12/9/2009 11:21 PM (GMT -7)   
Yes Ma'am. <hanging head>...lol Seriously, I do over-do things...always. It's how I was born. Trying to learn how to relax is something I've failed miserable at.

I posted all of this because I am frustrated and hurt but also to give others a chance to join me in just letting off some steam, venting to people who care and to complain about how miserable fibro is. I don't often complain but this really can drag us down...all of us. I seriously do have a problem learning how to rest and relax. Hubby has been telling me that since before we got married. It's still hard to sit and do something fun when I can see so much that needs to be done me. But I am working on it. Some day I may get it right.

Thanks for the caring comments. I appreciate those who took the time to help me up today. You are treasures in my heart!

Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted Yesterday 5:31 AM (GMT -7)   
I'm feeling the Christmas fibro big time, too.  I have done ffaaarrrr to much this past month.  Everythiing hurts but my ear lobes.  I usually start in January getting things for the following Christmas and I usually have everything bought, wrapped and my Christmas cards waiting to be mailed by Thanksgiving but I didn't do that this year.  I was really "down" because of the economy and didn't have the motivation.  I finally snapped out of it but it was too late.  Now I'm trying to get things done.  And, as Chutz said, it takes us ten times longer.  That's why I always paced myself throughout the year.  I could always sit back and enjoy Christmas and remember WHY we are celebrating in the first place, but not this year.  I hate this and I won't do this again.
 
But, fellow fibromites, we will get through this and can sit back and heal shortly.  The rush is in the backstretch now.  Your perseverence will pay off big time for the smiles you will receive from  your loved ones.
 
Sherrine   
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted Yesterday 7:16 AM (GMT -7)   
I think we all need a nice cleansing temper tantrum over fibro once in awhile Chutz. Right now things are going as scheduled for me but like I said last night if anything happens and we can't do Christmas on the 19th and 20th I will be kicking and screaming. I live in fear that I will go into a bad flare before then and won't get everything done or won't feel like enjoying having the family here but............yesterday the wind was howling and it was snowing, this morning it is 4 degrees and all I can think about is those that don't have a home or don't have heat to stay warm. I have the heat up to 74 and my little heater right next to me but I know there are people here in our little town that don't have that. In this economy people that do have heat are afraid to turn it up very high cause they can't afford the bills. I guess I keep thinking how blessed I am and that keeps me going.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted Yesterday 7:37 AM (GMT -7)   
Ditto, ditto, ditto, ditto. I haven't been around much lately because I've been feeling so bad, but I just wanted to pop in and commiserate with the miserable.

I'm sorry you are feeling so bad Chutz (and everyone else who responded). I definitely understand.....

Soft, warm, gentle hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted Yesterday 7:46 AM (GMT -7)   
(((Chutz)))
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

SassyMyKitty
Veteran Member


Date Joined Apr 2009
Total Posts : 673
   Posted Yesterday 12:04 PM (GMT -7)   
Lately, I have been having a lot of problems with my knees and back. I suppose the weather could be part of the problem. I HATE having fibro. I wish I could have a normal life. It hurts me to get down and scrub the bathroom and kitchen floors. It hurts me to stand and do dishes for too long. It hurts me to get down on my knees on the floor to change my son's diaper or to play with him. It hurts me to get off the couch. I HATE HATE HATE it! I just wish that pain would go away so I can play with my son and do the cleaning and take care of all the things I need to take care of. I used to be able to do all of that, but now I can't. It is soooo frustrating.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss
 


upbeat
Regular Member


Date Joined May 2009
Total Posts : 240
   Posted Yesterday 12:43 PM (GMT -7)   
Chutzie, great vent - I hear ya! I should be done decorating in time to take it all down! Walking around with this stupid heavy boot on my foot is making everything take three times as long - as opposed to only twice as long normally.

In between decorating, my dog has decided to eat a bag of candy, wrappers and all, and today a golf glove! She needs a walk desperately - I will have to get the kids to take her.

I haven't even taken a picture for xmas cards - this might be the first xmas I don't send them. Oh well, it is not like everyone will die if they don't have a picture of my kids!

Hope everyone can get some rest and enjoy the holiday!
Fibro dx 2004, RLS, raynauds


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted Yesterday 1:23 PM (GMT -7)   
I agree with Chutzie, this sucks.

I have felt so miserable this month. Of course, I was trying to clean my home.
The other day I went into a store to holiday shop. I felt so miserable I could not bear to do it and left quickly to go home. The only thing I purchased wasa pair of fleece gloves to wear immeadiately (30 degrees ourtside).

I do not have grandchildren yet, only 3 young adult ones. so, I am buying most of the gifts online. However, even that is exhausting.

donnaeil

mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted Yesterday 1:29 PM (GMT -7)   
Aaaw Chutz, I'm so sorry you are feelign miserable :( Let it all out, we don't mind one bit. I have wide shoulders, you can yell at me some more.

I hoep you are goign to start feeling better soon so you can enjoy this time with your family. And please, don't over do it anymore, ok?
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet

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