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shanbr
Regular Member


Date Joined Dec 2009
Total Posts : 103
   Posted 12/10/2009 11:58 PM (GMT -7)   
A little about me....
 
6yrs ago i got very sick, couldn't walk, hold a spoon, sit up or roll over in bed without my husband pushing me etc.  EXTREMELY bad.
 
I went to a doc who said i had a rhuematoid factor and gave me prednisone which helped enough to get to the bathroom and back.
 
6yrs later and a million doctors later, i walked into an office and the doctor took one look at me and said that it wasn't RA, it was fibro.
 
I have been on 3 different antidepressent drugs including lyrica and have to say wow, just WOW!
 
I am still an 8 on the pain scale instead of what i called a 15 (beyond pain).
 
I can walk without a walker, but need to lean on a grocery cart the whole time i shop.  I can hit the mall, but have to take breaks again and again within an hour, but i can still go to the mall which is another wow for me.
 
I have made dinner 3 nights this week on my own (a wow for me) and i am only on a low dose lyrica and hope i will get better.
 
Sure, i hurt a TON still, but i can move, and i don't ache anymore when i'm not moving.
 
6yrs of heck, but thank god i finally am being helped the right way.
 
Thanks for listening and hope to get involved in chats soon.

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 12/11/2009 5:23 AM (GMT -7)   
Shanbr...

welcome to our fibro family ... Iam gald you finally know whats up .. that helps in its self...
I am sorry you have to live this life with Fibro..

Look forward to geting to know you ...

sorry can't do more of a post right now.. today is a bad day over here .. but did want to welcome you .

Take care .
Spirit ~


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 12/11/2009 7:33 AM (GMT -7)   
Welcome.  Glad to hear you are getting around better.  I am still farely new here but have found this place so helpful.  Read the Fibro 101 thread, lots of good info. there.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/11/2009 8:08 AM (GMT -7)   
Hi shanbr, and welcome to the forum. If you haven't already, make sure you check out
Fibro 101, the second post on page1...great info for a fibromite.

Has your doctor run all the necessary bloodwork to eliminate all the connective tissue
diseases? It isn't uncommon for people with fibro to see more than one doctor before they
get a diagnosis. The main symptoms of fibro overlap with many other conditions. Usually
eliminating the CTD's through bloodwork is the first step. Did the RA factor show up in
previous bloodwork? It is not uncommon to have a CTD along with Fibro.

A tender point exam is usually done to dx fibro. There are 18 tender points that are checked.

I am sorry that you are hurting. I take Savella and Flexeril.


Exercise is important. Gentle stretching is good to start off with if you haven't been doing
any form of exercise. If you don't move, you hurt all the more. Soaking in a hot bath or
using any form of heat will help with the pain.

Glad you have found us and joined our family. Keep us posted!

Hugs

Robin


MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Post Edited (crazykitty) : 12/11/2009 8:11:06 AM (GMT-7)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 12/11/2009 9:00 AM (GMT -7)   
HI Shanbr,
 
I would also like to welcome you to the fibromyalgia forum.  I see that you have already been directed to fibro101.  There is a wealth of information on that thread.  I hope that you read it.
 
As was mentioned above, generally they do a tenderpoint test to tell if you have fibromyalgia.  But maybe your doc was convinced without doing it. 
 
I can handle the pain, but not the fatigue.  Do you have fatigue too?  It is the pitts.  So exhausted and weak.  I take adderall for that and norco for pain.   I am now working after seven years of not being able to.  So I am really proud of myself.   It is only part time, but I don't nkow if I could hanle full time.  Probably not.  And I might have to quit during the winter, as it is really cold here.  But my boss said that she would give me a leave of absence and that helps me to feel better about things, I can go back in the spring.  One day at a time though.  And that is what I suggest for you.  That is one thing that I learned from fibromyalgia, as I could only take life one day at a time.  It really helps to take the anxiety away. 
 
I hope that you feel better soon and I hope that you co keep posting. 
 
Also as mentioned above, gentle stretching, keep moving.  You can do this, we will help to motivate you.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17097
   Posted 12/11/2009 11:43 AM (GMT -7)   

HI, Shanbr, and welcome!  The symptoms of fibro are very similar to other illnesses so that's why you need to be tested for the others to rule them out.  There is a link on the Fibro 101 thread called What Else Could It Be.  You will see what I mean.

It looks like the Lyrica is helping you and that is wonderful!  Some love it and some hate it.  That's another problem with fibro.  Everyone is different and reacts differently to the medications available.  You usually have to try many things to see what help you.  I'm glad the Lyrica is helping you that much.

It is important to keep moving.  If you sit or lay too long, you will be stiff as a board.  When you hurt, you don't want to move but you need to.  There are some great stretching exercises on Fibro 101 that really do help.  Exercising is important so walking is my forum of exercise.  I do swim, also.  Both are excellent for fibro.  Even if you only walk a little, every day you should see that you can go a little further.  If you are in a cold climate, there are some great walking in place videos out there.  I use one by Leslie Sansone.

I'm so glad you found us and joined in!  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/11/2009 12:03 PM (GMT -7)   
welcome. Im new here as well. Just 'officially' diagnosed Monday and having a hard time coping with it. But i have found many helpful people here. :)
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


shanbr
Regular Member


Date Joined Dec 2009
Total Posts : 103
   Posted 12/11/2009 1:41 PM (GMT -7)   
Thanks everyone. I will read the post you talked about.

I did have horrible fatigue and took naps all the time, since lyrica, i am slightly sleepy due to how it causes it, but no more exhaustion. I have had exhaustion my entire life since a child, so this is nice to be awake and alert.

I can't get in a tub yet with my legs so bad, but I do have a large garden tub just waiting. We bought the house when i got sick, so i have hated looking at the tub all these years not being able to use it lol.

Thanks againf or the welcome. I wish you all well.
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