Just Diagnosed with Fibromyalgia

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New Member

Date Joined Dec 2009
Total Posts : 5
   Posted 12/15/2009 7:55 PM (GMT -6)   
Hi, In the last two weeks I have been told I have Fibromyalgia and nerve damage.  It all started with Numbness and hot pins and needles in my face.  But I have many other symptoms that I didnt put out there to the dr.  After reading more about this diagnosis I understand why I have pains and feelings. 
One question to the other women....  Do very painful almost back labor feeling belong in the symptoms?  I have the worst pain Ive had surgery to explore and a very small amount of endometriosis and a cyst.  But pain doesnt even go away.  I hate it.
I get so frustrated with my kids 6 & 2.  I feel so bad sometimes cause I yell then they cry. 
Well right now the Dr. has me on Gabapentin 300mg 1 in am 2 an pm.   Any suggestions are greatly appreciated!  Thank you I hope to learn more about what is happening to me

Regular Member

Date Joined Jul 2009
Total Posts : 28
   Posted 12/15/2009 11:57 PM (GMT -6)   
Hi Crystal,

I was just diagnosed with Fibro in July of this year so I am very new to it and still coming to terms with my diagnosis. I too have endometriosis and I get recurrent ovarian cysts so I know how painful those can be.

I don't get the pain real bad in my back that you speak of. My worst pain is always in my legs and my arms.

You will find this forum to be of tremendous help and everyone here is very willing to share. I don't post much but keep up to date with the reading here all the time.

Good luck to you!
Diagnosed with Fibro in July 09.

Cymbalta, Xanax, Ambien, Prevacid

Fibro, IBS, anxiety, depression, agoraphobia, allergies, recurrent urinary tract infections and ovarian cysts, endometriosis, asthma, heart murmur, acid reflux, thyroid goiter.

Veteran Member

Date Joined Jan 2005
Total Posts : 9090
   Posted 12/16/2009 1:38 AM (GMT -6)   
Hi Crystal!

And welcome to our Fibro Family. And as you will soon find out, this truly is a family. I do understand your back pain and it's awful. My worst is shoulder/neck/arms area, then my back comes a close second followed by my legs, feet and the top of my head!...lol Ya, some days brushing my hair gently brings tears from pain.

And yes, I too hate this darn disorder...BUT, we can and WILL have a wonderful life in spite of the pain. There are ways to manage it and get your pain under better control but it does take time to figure out what works best for you.

One of the first things many doctors offer are antidepressants, but in very small doses. They raise the seratonin levels which can help with pain relief. Some of us take a full dose daily for the fibro and for depression. For me, a sign that my antidepressants aren't working is when I find I'm crying all the time, irritated with people and things when normally I wouldn't be. When you commented on your children and how sometimes you snap at them and end in tears I immediately thought of how I've been in the past. Sounds very similar. You might talk to your doctor about it. I'm not saying you are depressed, although who wouldn't be if you have fibro, but we have some wiring or some substances in our bodies that is out of whack. It's no surprise that our emotional state would be shaky at times. It sounds like you dearly love your children and this mom who snaps at them and then cries is not the woman you are nor want to be. Please talk to your doc about it. If she's good at fibro she will totally understand..K?

As for other suggestions, if I were you I'd keep a pain diary for a few months. If you read the Fibro 101 thread at the top of page one's listings. In there is information on pain journals and a link to a free journal page to download. Here's the link so you don't have to search right now. www.painfoundation.org/learn/publications/files/TargetDailyLog.pdf This is posted for free by the American Pain Foundation. Print one page for each day and fill it out the best you can. All questions won't apply to you but what will help is noting the level of pain you have during the day, what you may have taken or done to alleviate it, how your pain level was afterwords, activities, etc. As you slowly build up a journal by doing one page each day you will soon see a pattern to your pain, what makes it worse, and hopefully things you can do to help reduce it.

But the best part, in my opinion, is how much help it will be to your doctor(s). Take your journal with you to every doctor appointment and ask him/her to review it while you wait. This way your doc will get a quick and thorough view of just what you life it like each and every minute of the day...day after day. From this very specific information he can better suggest treatments/medications for you to try. Then after you have tried whatever he suggested you will be able to see the results, or lack of, very clearly and quickly. It makes getting control of the pain much quicker and more precise. The only way a doctor can know if he has given you the correct dose of a certain medication is to look at how you react to it. That's hard to describe when he asks, "how's your pain been". But when it's in your journal in black and white it's much easier for everyone.

Plus having a doctor whom you trust and who trusts you is the most vital part of treatment. If the doctor tells you "it's all in your head" or "you just are too tired and stressed"...then turn and never go back. WE know our bodies and we also know when something is wrong.

As usual I've babbled on way too long but we're here to offer our experiences and thoughts. Always feel free to ask any question you want. It's why we are all here. And before long when some frightened newbie comes to join us you will be the one greeting them and offering ideas and thought to help them live a great life in spite of fibro.

Warm hugs,
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Veteran Member

Date Joined Aug 2007
Total Posts : 6067
   Posted 12/16/2009 9:54 AM (GMT -6)   
Hi Crystal and welcome. Fibro seems to like certain parts of our bodies and it's not the same parts for everyone. I have an old back injury and arthritis in my lower back so I can't tell what is fibro and that. I had back labor with my oldest son so I can relate to that.
Hope it all gets better soon.
luv and hugs
Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
Vit D/calcium

Veteran Member

Date Joined Apr 2009
Total Posts : 673
   Posted 12/16/2009 11:08 AM (GMT -6)   
Welcome to the family. You will find great information and support here. You can learn a lot just by talking to the wonderful people on here. I know how it feels to be frustrated because you have young kids. I have a 2 year-old as well, and it can get frustrating. You don't mean to yell, but it just comes out, and then you feel bad because you made your kids cry. I understand this. Sometimes I am in a lot of pain and my kid just wants to play and follow me around like a lost puppy and I just lash out without meaning to. When I do this, I pick my son up, no matter how much it hurts, and I just hold him and tell him I am sorry. I know what you are going through.
I would suggest looking at the Fibro 101 forum. There are a lot of helpful links there.
Welcome to the family. I hope you find as much help and support as I have. Good luck to you.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss

New Member

Date Joined Dec 2009
Total Posts : 5
   Posted 12/16/2009 3:09 PM (GMT -6)   
The pain in my back is when I am on my period, instead of stomach cramps to me it feels like back labor contarctions.  OBGYN can never figure out why.

Forum Moderator

Date Joined Apr 2005
Total Posts : 17057
   Posted 12/16/2009 3:32 PM (GMT -6)   
Hi, Crystal, and welcome!  I'm glad you found us and joined in.  I sure don't know what is causing the back pain.  I never had that problem but it does sound like you have been thoroughly checked out so I wouldn't worry about it.  Use a Bed Buddy on your back during that time.  You can get these at Walgreen's or other places or you can make your own by taking a tube sock, filling it 2/3's full of long grain raw rice, and tying a knot at the end.  Pop it in the microwave and it gives off moist heat due to the moisture in the rice.  That should really feel good to you.
Be sure to check out the Fibro 101 thread...the second thread on the forum.  You will find links to good info about fibro and that will help you cope. 
Don't hesitate to ask questions.  We are here to help you.  I am looking forward to getting to know you a little better.  I hope to hear more from you soon.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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