Somebody Please Respond, Im Confused

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IndianSummer48
New Member


Date Joined Aug 2009
Total Posts : 14
   Posted 12/16/2009 5:09 PM (GMT -7)   
ok here's whats going on, I have something because a person don't feel this way and are normal. anyway i was ruled out for MS and Lymes diease and Lupus, now i go to a rumatoligist on the 6th of next month.
i think i almost definitally have Fibro, i have pain in all the extremeties that are familliar with Fibro and was put on prozac,cymbalta,and nurotin and hopefully the meds will somewhat calm my pain down to a small roar.
I have files for disability and got denied so i appealed it and im waiting to hear back from that, i also got an attorney for when i get turned down for my appeal, i can not work any longer with this pain i have and my brain fog is so bad it's to where i get in my car and forget where im going and can't remember what  i did from one day to the next.
it has also affected my eyes, and i can't drive at night time at all because i just can't see, the doctor said i have optic nuritis and it's caused from the fibro. i keep a headach and was put on mierapex also today.
im so tired i cant get out of my own way, and when i do go to bed and wake up im more tired when i get up then before i went to bed, and i can not tolerate heat of any kind so im loving this time of year because its cold.
does this make sence to anybody here? thanks for any advice.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/16/2009 6:26 PM (GMT -7)   
Gosh Summer,
We aren't doctors and we can't diagnose but your pain sounds a bit like fibro. Some of us can't stand the cold, others wilt in the heat. Hope you get some relief soon.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/17/2009 10:21 AM (GMT -7)   
Hi, Summer!  Have you checked out the Fibro 101 thread...the second thread on the forum?  There are links to good information about fibromyalgia, including a list of symptoms.  Start reading and  you might see similarities there. 
 
I don't like heat or cold.  It has to be perfect weather for it not to bother me.  My pain increases when there are barometric pressure changes...like when storms are coming.  Most of us have back, shoulder and neck pain, too.  Of course the fog and the fatigue are part of it, too.  But, if you familiarize yourself with fibro, you will have some good questions to ask your doctor.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 12/18/2009 12:29 PM (GMT -7)   
Hi Summer,

I do hope you find some answers at the rheumatology office. That is often where a doctor will send you when they are considering a fibro diagnosis. If I were you I'd just carry on 'as if' you had fibro because all we do is work on lessening the pain. Except for prescriptions this is a self-help disorder. Getting enough sleep, naps/rests during the day if you can, keep your muscles warm and no shocking the system, and pamper yourself every day.;-) That last one isn't official but it's on MY list. Being good to yourself by not over doing it is right up on top of the Fibro Feel Better list. If you want to see an example of what NOT to do, them come on over and follow me around for a day. I keep trying to live like was was 20 years younger and didn't have fibro, but I'm trying...I really am.

Good luck and keep us posted.
Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

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