Question about sense of direction and fibrofog?

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Finding_the_Light
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Date Joined Oct 2009
Total Posts : 69
   Posted 12/17/2009 2:19 PM (GMT -7)   
Ok i was diagnosed about 12 yrs ago with Add but never really treated for it. Tried staterra made me manic and taking tenex now for restlessness. Well i always attributed my spaciness and lack of memory and sense of direction on ADD. But now being diagnosed and reading more about fibro im wondering whats what? I can go into a store about a hundred times yet still get completely lost. Or i go in for only a few minutes but entirely forget where i have parked. Going into a big building with tons of hallways forget it. I would get so entirely lost i just got used to my drs office which i see 3 drs in same bldg and i have been there a yr this month! I get lost easier in the city ive lived in 23 of my 26 yrs. I completely space out. Like if im looking at something someone would assume i probably knew what i was looking at but i have no idea because im in such a daze. is this all normal fibro stuff? ( mixed with add )
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 12/17/2009 3:20 PM (GMT -7)   
Some days the fog is thicker than others, but yes what you are experiancing sounds
like typical fog to me, just yesterday I wrote a check out with the date Dec.16,1999.

Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/17/2009 3:29 PM (GMT -7)   
Thx for replying hun. As much as it sucks its comforting that for those with fibro its normal. I get into soo many arguments cause some times people dont understand that i just truly do not remember things. :( my ex used to think i was just plain stupid! She (yes im a girl and yes im with a man now lol) used to actually put me down every single day. Oh how i thank GOD i am out of that situation and that my bf does understand and tries to!
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


confused Okie
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Date Joined Apr 2009
Total Posts : 164
   Posted 12/17/2009 7:51 PM (GMT -7)   
I think people do think it is on purpose, but because sometimes I can remember and sometimesI can't. I lost my job because of the FOG and yes I get turned around and forget where I parked. I also forget I did or did not do something, go into a room and not remember why, drive for 10 miles and not remember going down a road or thinking how did I get here. SOmetimes I thin I shouldn't be allowed to leave the house. Pain does some strange things to your brain........google pain and brain and you will see..........
If you think you can, you can. If you think you can't, you won't.
I may not do things like other people, but I get things done in my own way, in my own time.


Irish Babe
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Date Joined May 2007
Total Posts : 1371
   Posted 12/18/2009 8:18 AM (GMT -7)   

I used to have a great memory for the tiniest things. I could give you a conversation verbatim, tell you what someone wore, the whole nine yds. I was very proud of my sense of direction, since a young child. Some days I can find my way w/o a problem, other days, it's a nightmare. I try to picture the route in my head, what sts. to turn on. Sometimes, I get confused at the end of my block. I write down directions for most any place I travel to.

Several yrs ago, my DH was driving and we had been out for awhile. I sort of stared off into the air, only to look at this building and get so confused, b/c I didn't know where I was. I went into a complete panic. We were crossing the bridge I took everyday to go to and from work. I didn't recognize anything of where I was, my DH thought I was kidding - then he looked at my face and realized I was joking. He tried to calm me down.

It is one of the hardest aspects of FMS to deal w/, ppl think you are kidding or stupid. I'm neither. Stress does make it worse, if that is possible. lol. So many things to love about FMS. Now I'm kidding.

God bless.  Alice.


Snue
Regular Member


Date Joined Feb 2005
Total Posts : 194
   Posted 12/21/2009 2:23 PM (GMT -7)   
I am someone who always had a great sense of direction and was really good with maps and getting places.  Well one day I was mixing up my left and right and my east and west!!!  I knew something was wrong!  That's fibro fog for you!
 
After our big snow storm yesterday, 2 ft. of snow, my neighbor was talking about using his snow blower.  I was saying how I didn't think a snow blower would work on this and he should use his plow.  Later I realized in my head I was thinking of a leaf blower and wondering how on earth he was going to blow 2 feet of snow with a leaf blower!  That's fibro fog for you!  I felt like an idiot when I realized I had mixed them up.

 

I have a pad I keep in my pocket book for bad fibro fog days.  I try to write down where I have to be.  For parking if you have that new iphone, they have that ap that will get you back to your parked car.  Would be great for all of us with fibro fog!

hang in there.wink

Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/22/2009 12:31 PM (GMT -7)   
:::raises hand::: i did that one day when my mom asked me to go to the pharmacy for her. Id JUST woken up was tired and cranky looked like hell and was just like uhh whatever. So i grab my keys get to the pharmacy go inside come out keys are NO WHERE 2 be found until i look in the car they were in the ignition thankfully it wasnt running and i was only about 15 20 min walk from my house if that so my bf came and met me and brought the other set of keys. Best part? it was raining as well and id started walking some of the way home so now im wet already cranky before leaving house so even more so now. And having my leg fatigue from walking. So ya now i make sure i always have MY keys in my purse and i grab my moms and use those so i have a 2nd set on me. (just hope i dont lock them both in there since we only have one other key n its my stepdads lol.) I read a thread on another site that had a list of fibrofog moments in a laughter is the best medicine topic. And some of the stories tho im sure at the time seem frustrating but were defn funny later. Since then i just try laughing at myself! :)
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


Finding_the_Light
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 12/22/2009 12:36 PM (GMT -7)   
snue i just read ur post. Thanks for sharing ur stories hun! and i love the leaf blower thing i could totally see myself doing it. Heck when i was writing that post above this one i just wrote i almost wrote medicine is the best laughter instead of laughter is the best medicine lol ;)
Probable diagnosis of fibromyalgia. Along with: Bipolar,OCD, Borderline Personality Disorder, PTSD, anxiety, gastroparesis,pcos,add Meds: Neurontin, Lyrica, OMEGA 3 Fish oil and vit d3, tenex wellbutrin i stopped taking.


Littleneck
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Date Joined Mar 2009
Total Posts : 599
   Posted 12/24/2009 5:46 AM (GMT -7)   
Like Alice had a super memory - I could remember my sister's boyfriends' birthdays from high school, stuff like that. Now, I have to park in the same lane at the grocery store or I will wander and wander and wander. I started noticing something was wrong with me memory-wise when I worked at our international airport a couple years ago. The employee parking lot was humongous and had bus stops for the buses that took you to the airport because the walk was so long. Each lane was marked by letters, A, B, C, AA, BB, CC etc, 52 lanes altogether, acres and acres, and I had to write the lane I parked in on my hand with a Sharpie each night so I wouldn't forget. And the time it washed off, I did wander and wander and was crying with frustration. THAT's when I noticed. :)

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 12/24/2009 9:14 PM (GMT -7)   
The keys thing... I have an extra set on one of those retractable key rings that is clipped to the inside of my purse so I don't get locked out so often... Unless I forget my purse in the car, too. tongue Some day I'll have to retell you all my sinking boat fog story (sigh!) And my daughter says I now have ADDOS - Attention Deficit Disorder... OOOOOO SHINY!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


shoeless
Regular Member


Date Joined Dec 2009
Total Posts : 130
   Posted 1/2/2010 1:46 PM (GMT -7)   
finding the light-have you put on alot of weight with the lyrica and gaba?I have put on 50 pounds in a year and ahalf,was very fit.the weight doesnt help anything.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40601
   Posted 1/2/2010 6:12 PM (GMT -7)   
tongue 
 
I write everything down.  I have notes all over the place, just have to make sure that I notice them.  It makes it a lot less stressful when you write things down.
 
I have learned a lot about living in the moment.  It keeps the fog at bay a lot.  Try to focus on what you are doing.  I think a lot of us forget things because we have so much on our minds.  We are thinking of one thing and doing another.  No more multitasking for me anymore.  Hard enough to get from one moment to the next. 
 
When I write a shopping list I do in the order that I do things and where things are in the particular store is that I am going to go to.  I get distracted easily so I try to just focus on what I have on the list.  They say it only takes 12 seconds for somebody with fibromyalgia to get distracted.  That isn't a very long period of time.
 
I hope you all have a good day.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/2/2010 6:31 PM (GMT -7)   
Very well put Karebear.
 
I think my medical ins should pay for my GPS, I can honestly get lost going around the block.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/2/2010 10:40 PM (GMT -7)   
getting by said...

I have learned a lot about living in the moment. It keeps the fog at bay a lot. Try to focus on what you are doing. I think a lot of us forget things because we have so much on our minds. We are thinking of one thing and doing another. No more multitasking for me anymore. Hard enough to get from one moment to the next.

When I write a shopping list I do in the order that I do things and where things are in the particular store is that I am going to go to. I get distracted easily so I try to just focus on what I have on the list. They say it only takes 12 seconds for somebody with fibromyalgia to get distracted. That isn't a very long period of time.


Yes! I think this has been the hardest thing for me to accept: no more multi-tasking! I was the queen of multi-tasking....could juggle 7 balls in the air at one time and none of them would ever hit the floor!

Now I'm lucky to be able to finish a task without getting distracted by something else. :(
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com

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