does anyone with this stuff EVER feel rested?

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do-over
Regular Member


Date Joined Oct 2003
Total Posts : 162
   Posted 12/27/2009 5:39 AM (GMT -7)   
i wake up tired.  i spend all day tired.  i can't wait to go to bed.  i hurt through all of it. 
 
seriously .. does ANYONE with Fibro ever feel energetic?  or wake up without that "Oh GOD here we go again" feeling? 
 
I keep telling myself that I'm gonna feel better and deal with all the messes that have accumulated around me ... but even though I have had 3 days off from work I STILL feel like I was hit by a truck. 
 
I talked to my husband ... he said that we might have insurance as early as January 14 ... but I can't call to make an appointment before that or else it will flag as a 'pre-existing condition" and insurance won't pay for anything anyway.  in fact, he thinks I should just find a new dr and start all over.  I didn't really like the last one anyway.  i am really kicking myself in the butt for letting this go so long ... (funny image, huh?)
 
Sorry ... I know that I sound fussy ...I'm not trying to be ....  but I'm just trying to get a realistic grip on this beast.  If I'm never gonna feel better, then fine ... I'll accept it ... but it's making me weary to keep hoping for better days and not getting anywhere.  What's realistic to expect? 

FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 12/27/2009 7:53 AM (GMT -7)   
Hi do
Well No I never wake up feeling like I had a great night of sleep and ready to go run a mile. Those days are long gone I believe. Sometimes I can get adequate sleep with help of pain meds and sleep meds but wake up stiff and usually in some amount of pain and normally groggy because of all the meds. But it is better than the nights when I toss and turn and cry because I in so much pain and cannot sleep for the life of me. which happens occasionally.

I am glad you will have insurance soon. A new Doc may give you a fresh start.

Now Do there are times as you may know where it is better and worse and times it may even be it what we call remission where it is barely noticable. I have had all of those times in my 10 yrs with this condition so there are good days and bad days but you make the best of it No Matter What. Gentle Hugs!
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 12/27/2009 9:52 AM (GMT -7)   
Most all of us have that fatigue.  I use malic acid/magnesium supplements and they help with the pain and fatigue for me.  They don't work for everyone but many on this forum have gotten help from them.  And, they aren't that expensive where I get them.  Right now...until December 31, they are running a special of buy 1 get one free or buy 2 and get 3 free!  Now, that's a good deal.  There is a link in Fibro 101 all about these.
 
Also, instead of waking up and thinking "Oh, God, here we go again" try waking up and thanking God that you have another day to enjoy your family and all the blessings you have.  It actually does make a difference as to the attitude you use to face the day.  I have more energy when I do that...looking forward to the day ahead.  I usually set reasonable goals for each day and when I accomplish them that makes me happy and I will get a little burst of energy that way, too. 
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 12/27/2009 10:00:40 AM (GMT-7)


hope4
Regular Member


Date Joined Sep 2007
Total Posts : 306
   Posted 12/27/2009 11:22 AM (GMT -7)   
You don't sound fussy at all! It is so frustrating to wake up tired every day. I know. There are so many things we need to do and want to do, but when we hurt and are exhausted it is just so hard.
The only way I have found to cope is by getting rest whenever I can (easier said than done), delegating jobs whenever possible, and just not trying to do everything. A lot just has to go by the wayside.
Keep trying!

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 12/27/2009 4:02 PM (GMT -7)   
Hi!

I don't feel rested but that is one of the traditional symptoms that define fibro...not getting rested after sleep. One researcher I listened to compared fibro sleep to having someone wake you up about every 15-20 minutes all night long. 'Normal people should give that a try some day and see how awful they feel in the morning. It would give them a taste of what we deal with daily.

And I do agree with hope! You re not being fussy at all. It's here you can feel and say most anything and we all take our turn and understand how you are feeling. Never be afraid to share your thoughts...you're among family!

Chutzie
The three grand essentials of happiness are: something to do, someone to love, and something to hope for. — Alexander Chalmers

(\o/)Co-Moderator Fibromyalgia & Chronic Pain Forums
(/|\)
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 12/27/2009 4:06 PM (GMT -7)   
I know people think I may just be a little crazy but I keep saying it. Since I've been on the "trio"
as I call it, I sleep good, wake up rested and can tackle the day much easier. I use the Super
Cissus RX, Bio-Sil and Malic Acid. Believe it or not but the first dose of Super Cissus and I slept
ALL NIGHT. It had been months and months since I'd gotten anywhere close to it. I know we
go into pain spasms during sleep and it keeps us from going into the REM mode so we can feel
rested. Starting month 10 on this and my kneecap is almost where it belongs. Seeing it was about
an inch and a half from where it belonged after surgery, this stuff is amazing.

Do many of you live in cold climates? I found if I have an electric blanket under me it helps the
body to retain heat and sleep better with less pain. Since the waterbed exploded it's all I have
but it does make a difference.

K9
Regular Member


Date Joined Nov 2008
Total Posts : 263
   Posted 12/27/2009 8:40 PM (GMT -7)   
I'm just popping in today to say hello - and saw this thread and just wanted to contribute that there is light at the end of the tunnel. My rheumatologist diagnosed me with "severe" fibromyalgia last fall and as soon as I got a good treatment plan (2 prescriptions) and began aerobic exercise, I felt better within a few weeks. Then I had a major (14-hour) surgery but bounced back from that ok. I may be on meds for a long time, but I got my energy back and every day I wake up glad to see the dawn.

I pray you will find this too. It's criminal that you live in what's supposed to be the "greatest country in the world" and yet you don't have a decent health care system. I hope your government changes all that soon.
FIBROMYALGIA - that's it!
Dx @ age 50
Lyrica 75 mg 3X/day
Amitriptylene 10 mg
Tramadol 150mg time-released 1X/day


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 12/27/2009 10:20 PM (GMT -7)   
for the most part I swim 5 -6 days a week for an hour or two and no I do not awaken feeling well rested and refreshed.

Each of us is different and not all of us react the same to similar treatments.

I have been down for a couple of weeks due to a cold. It takes me longer to recover from one nowadays. Forget that week to 10 day diagnosis. It has been two weeks and I still have not fully recovered well enough to return to the pool.

I am a pretty cheerful person but fibro is hard to accept.

donnaeil

P.S. You are normal.

do-over
Regular Member


Date Joined Oct 2003
Total Posts : 162
   Posted 12/28/2009 2:13 AM (GMT -7)   
Thanks for all the replies! I am feeling a little inspired today ...

The more I read, the more I am realizing how much I have denied this problem exists in my life. I think I have literally run myself down ... every day thinking "Just do this .. you can do this ... EVERYBODY can make it through a day ... quit thinking about it ... suck it up .... this HAS to get done ...don't let anyone know that you're hurting everywhere ... don't think about it". These have been my mantras. And I have pushed and pushed and pushed until I have pushed tooooo far. Now I have a different perspective.

I think the new mantras is "rest when you can ... rest when you can ... rest when you can" and "let go". I don't like to complain ... I don't like to appear 'weak' ... but the reality is .. I am only hurting myself if I don't admit that I need some help and I need to slow down. I need to let the people around me know that I hurt everywhere ... that I just can't keep pushing this hard anymore ... and that I need them to know that I'm not being lazy ... I'm RESTORING myself.

My 3 beautiful children are 5, 12, and 14. All involved in different schools ... with busy schedules. The youngest has a dairy allergy. Which causes lots of extra work and worry ... we have to pack all of her food, read labels diligently, and be prepared for special events at school when other people bring treats she can't have. (the holiday was particularly tough for her!) She is really struggling with me going back to work ... and cries every day about 'why do i like those other kids more than her ... whey do i want to be with them instead of her .... i already had a job and that was being her mommy" it breaks my heart. The middle is in band, and has severe ADD ... so he stays after school for help 2 days a week. The oldest is a freshman in high school. In band, has a girlfriend, plays baseball, just got a part in the Spring musical, and also struggles academically ... so stays after for tutoring, strength training, and musical practice. My husband owns his own business .. so works just about every weekend. He also has a 'real' job that keeps him busy. We live on a 50 acre farm .. no farm animals now .. thank God .. but will likely have bottle lambs around February or March. and we rent out the land .. so no crops that we are responsible for now either. whew! Both boys have braces and painful adjustments every 4 weeks. We have 3 dogs .. one is 16 and feeble, one is a pit/lab mix, and the other is a 110 pound St. Bernard mix. I have had to go back to work full time in a daycare .... taking care of twenty 4 year olds Mon - Fri, several of these kids have emotional problems and they are EXHAUSTING. I'm also in school .. to acquire my Child Development Associate license. My parents are a mile away, dad in declining heallth .. I worry about him all the time. My marriage is hideous .... and causes me great stress and sadness every day. Our finances are a mess ... so I really do have to work .. but maybe I need a less physical job right now. (It's just so hard to find ANY job right now!) And I hate the idea of 'quitting' my job at the daycare ... it's what I have always been good at ... what I am trained to do ... what used to give me energy ... but I miss my own children so much, and this is a HARD class of kids to work with.

So .. it's no wonder I am exhausted. People without Fibromyalgia think my life is too full. And yet, I can't for the life of me figure out what to let go of. So as of this week, I am going to get the boys back into the habit of doing their own laundry and caring for the dogs. The little one can be in charge of setting the table and feeding her bunny and picking out her own clothes. She can help with packing her lunches and snacks too. Hubby can take over trash duty and helping with carrying the laundry upstairs. (that job kills me!) The boys know how to cook ... I taught them years ago .. and they can help with meals so that the rush when I get home isn't so crazy. I am going to talk to my boss this week and let her know that I can not keep up this pace much longer, and see if she has any suggestions. I'm going to talk to my assistant and tell her what's going on ... I need her to pick up the pace a bit, but I think she'll do it if she knows what's going on. I am going to call that rheumatologist and see about getting an appointment asap. I still have the records from when I saw the other one ... maybe that will be useful information. In the mean time, I am going to call my Primary Care physician .. it's $80 to see him, and I have to miss work to make an appointment, but maybe he can help me sooner than the rheum. appt.

Wow ... just organizing it all seems like a big task .. but the important thing is that today I don't feel like I have to do it all myself. I have raised these kids to be strong and helpful and part of the family. They can help .... I just have to step back and let them. And I have to lower my expectations ... that will be the hardest part.

I do have much to be thankful for. I know that. I do try to focus on it. I'm just so mired in depression and so disgusted by the way I feel and all that I can't do ... it's bogged me down. Looks like it's time for a new perspective though .... one day (or hour .. or even MINUTE) at a time.

Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/28/2009 3:13 AM (GMT -7)   
I have been in a two-day fog since Christmas. I'm thinking of booking myself a night at a local hotel that has really, really nice bathtubs and really, really nice beds, just to pamper myself for a night and a morning.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/28/2009 8:07 AM (GMT -7)   

Just came back from a week's vacation in Florida. Do I feel rested? NO WAY...but I had a great time. I overdid, walked too much, stayed up too late, ate too much junk but it was worth the pain I'm feeling now. There are times I throw caution to the wind and say the heck with it, cause girls just wanna have fun! I have my stereo cranked up and I plan on doing laundry and some housework while dancing and then take a muscle relaxer and soak in a hot bath.turn


FunnyGurl
Regular Member


Date Joined Nov 2009
Total Posts : 173
   Posted 12/28/2009 8:41 AM (GMT -7)   
OMG Doover Just trying to read your last post(still did not get thru it) was tiring and stressful to me!  Yes you need to find a way to Pace yourself, delegate instead of DO and take some time for yourself and your own needs.  That alone may help you alot!!! Best Wishes to You!
Humour is always the Best Medicine!
 
Fibromyalgia, DDD, 2 herniated Lumbar discs, OsteoArthritis Lumbar, Migraine, Dysthmic Disorder, Anxiey, Panic Attacks, OsteoArthritis Knee, Carpal Tunnel both hands, Currently Double Depression


SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 12/28/2009 2:26 PM (GMT -7)   
I am constantly tired. It seems as though it never matters how much sleep I get...I'm still tired. I think its because we don't get the REM sleep. Gotta love it. Not.
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B12, Vitamin D, Vitamin C, Ginseng


mamanan
Veteran Member


Date Joined Jun 2008
Total Posts : 846
   Posted 12/28/2009 2:37 PM (GMT -7)   
No wonder you are tired, just reading your last post exhausted me! But we have to do what we must to make it through, and pray that tomorrow is a better day. Good for you for delegating duties with the children. I'm still tryign to do that. The kids have some chores, but not nearly enough, IMO. But it is very hard to let go and not expect perfection! Can you also cut back just a bit at work? I realize you need the paycheck, but if you can take Wednesdays off (if you work Mon-Fri) or even just a half day in the AM. Just to give you enough time to reenergize and take some time out just for you... NOT to catch up on housework!

Have you read the malic acid/ magnesium link in the fibro 101 thread? I had a lot of trouble with fatigue the first summer I had this, then again this fall. I felt liek I woudl drop on the spot at times. The malic acid really improved my overall fatigue and even the way my muscles react to work. This doesn't help everyone, but many have had success with it.

Good luck, I hope you figure something out. In the meantime, here are some gentle (((hugs))).
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet

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