multiple questions

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EBullins
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 12/28/2009 7:23 AM (GMT -7)   
Hello everyone,
I have multiple questions and need any feedback I can get. I am 45, have had Fibro for 20 yrs. Managed acceptable quality of life until I hit perimenopause hard. Questions...Does anyone have trigger points so bad that you can no longer exercise or stretch? Does anyone else have to use a wheelchair? Did anyone else see massive increase in symptoms with perimenopause? Is anyone else home bound? Thank you all for any input you can offer!

Peace,
Elizabeth
~~~Know Peace Know Power~~~
 
***Let emotions subside then decide***


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/28/2009 9:30 AM (GMT -7)   
Hi Elizabeth!!! All this hit me about the same time as perimenopause so I don't know what was causing what at that time, wasn't a fun time in my life.
 
I manage pretty well I guess compared to many. My upper body is the worse so I do get around on my own but a lot of walking makes my legs and feet hurt. I have been on a gluten free diet, for celiac, since the end of July and have a little more energy than I did now that I'm getting more nutrients, still don't have enough and run out by 3:00 in the afternoon no matter what. A lot of my pain is arthritis in my hands, neck and back. I take a little vicodin which takes the edge off. Lastnight I hurt so bad from fibro and arthritis I wanted to scream but it is a little better this morning but by the time I quit for the day I will be hurting more. That is the way it is everyday I start off with little pain but the more I do the more I hurt.
 
There are a lot of things around the house I can't do but I try to live as normal a life as I can and I'm thankful for that. I'm sorry that things have gotten so bad for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


corky21
Regular Member


Date Joined Sep 2009
Total Posts : 41
   Posted 12/28/2009 10:30 AM (GMT -7)   
This is my story too. I'm 49 and when I was 44 I had entered perimenopause. I didn't have these stiff, achy, pains like I do now, but I had other signs of peri. Then they took an ovary and tube out b/c of a complex cyst that looked cancerous. THank goodness it wasn't. But as soon as that ovary came out, my peri got worse, mood swings, no libido, and the pains started several months later. It seems to me as I got further into it in the last 4 years I have had bad muscle problems.

I started taking bio HRT 1.5 years ago thinking maybe it was the imbalance of those hormones. I wasn't getting hot flashes, but I was getting chill flashes and always cold. I took all three hormones in low doses, but the only thing it helped was getting rid of my rages. So I still take very low doses of estrogen and OTC progesterone cream, but I stopped the testosterone as I felt no libido or energy from taking it.

Then last December I thought maybe these pains and symptoms are low thyroid. Since I was peri and at the right age, and had lost an ovary I started linking that in with adrenal issues and thyroid. It seems the ovaries, adrenals and thyroid all work together. When one or more is off, you can have a myriad of symptoms. Fibro I believe is one of them. But I don't know how to explain fibro in men. It could be adrenal and thyroid only for them.

I was told 20 years ago I had a goiter that went away. I paid no attention. Then last year I thought, how does a goiter go away and a doctor can tell? So I asked for a sonogram of the thyroid. I had complex cysts on all four quadrants, and nodules, and mild enlargement. No antibodies. All doctors said serum levels were normal, but from all that I read on my own, I felt they were wrong. I found a holistic doctor to give me Armour and adrenal hormone and have been doing that all this year. But, I'm still suffering the same symptoms of I believe fibro, but no one will diagnose me with that.

I believe that since I never had any of these symptoms my whole reproductive life, and that it all started since the ovary came out and I was more into peri, then it is the body out of balance. I believe woman have gone through these problems in the past and it was called something else and because they were depressed they took ADs, and anti anxiety medications that can mask over the problem until the body gets over the hormonal shifts.

I also have a hiatus hernia and was on proton pump drugs for a long time and I wonder if that kept nutrients from getting in to the body and then causing the thyroid to get messed up, which then caused me to get ovarian cysts, and then an ovary removed, and then even more hormonal shifts.

So that is my story and theory. I'm still wondering if I have fibro, I think I do, but none of the doctors so far will diagnose that. They sending me to physical therapy and say lose weight and strengthen the stomach. Well two years ago I was down 40lbs and kept it off and exercised pretty often and had worked the stomach muscles and I still had pain then. So they are idiots. It seems to me that whenever I lifted weights on a regular basis I'd never have any real strength or tone . Now I can hardly lift anything. Now since starting thyroid I seem to be more hypo and have the same pains and now I've gained all the weight back in the last year. I'm not in control of my eating as I'm more depressed lately so I eat in between meals more and less activity means more weight. I'm not obese, but I'm about 30lbs overweight again.

And it seems most of my life I've been up and down the same 30lbs, so I think I may have been hypo most of my adult life. I've gotten all kinds of illnesses: endometriosis, shingles at 30, hiatus hernia, cyst removed on one ovary, then a few years later another, then appendicitis, and now this pain syndrome.

Long story, sorry, but I believe the fibro is related to thyroid. I think many women in peri, are in a hormonal shift, when estrogen is dominant it can bind to thyroid hormone making it ineffective or causing the thyroid to reverse the wrong way. Muscle pain is a big low thyroid symptom. When women who are younger get fibro, I think they are also in some type of estrogen dominance. For men, it could be the same, but very few men get fibro. I also had endometriosis which is an estrogen dominance issue too. I still take very low doses of estrogen because I do have low estrogen symptoms, but my E is higher than my progesterone, even though my estrogen is very, very low. It is the whole imbalance regardless of how much you have in the cells.

So again, yes, I think it's all related to peri, and hormonal imbalances with estrogen, progesterone, adrenal and thyroid.

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 12/28/2009 11:58 AM (GMT -7)   

 

I developed fibro right before my 40th birthday and was in full menopause by 47 years old so I guess I could have been perimenopausal.

Doctors think fibromyalgia is a neurological problem.  That's what they are leaning towards and are studying.
 
If you sit or lay too much, you will be far more stiff and have more pain.  You can't let yourself get so you can't stretch or exercise.  My form of exercise is walking and swimming.  With fibro, you have to exercise but it has to be gentle exercises usually.  There is no way I would go to a gym, lift weights, etc.  I would be soooo miserable.
 
I could be homebound but won't allow that to happen.  I have too much life ahead of me to let fibro control what I do and how I live it.  I find ways to work around fibro, pace myself, and keep moving and stretching.  Some days it's extremely difficult but I do it anyway.  I haven't been without pain for 22 years and I really don't expect to be pain-free anytime soon.  But, I accepted this illness and keep going and I've had a full and enjoyable life in spite of fibro.
 
I don't use a wheelchair but I do have a cane.  I use that when I get out of bed because I'm so stiff and sore.  I take it when I travel and use it if needed.
 
Be sure to check out the Fibro 101 thread...the second thread on the forum.  There are links to good info about fibro and some could help you.  Please keep moving and don't let fibro win this battle.  Get ticked off and beat it at it's game
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 12/28/2009 12:01:59 PM (GMT-7)


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 12/28/2009 2:20 PM (GMT -7)   
I had most of my thyroid removed due to a goiter when I was 17 yrs old, that's the way they handled it back then. So I have been on thyroid meds most of my life and have it checked once a year and had no problems with energy or pain til I went through an extremely stressful time which just happened to be about the time I start perimenopause. I chose not to take HRT but let nature take her course.
 
It will be nice when they get to the bottome of what causes fibro so we can all stop guessing.
 
No matter how much exercise I get I can not build up strength in my arms. I was brushing my dogs the other night and had to stop cause my right arm got soooo tired and weak. When I was taking stuff off the Christmas tree, holding my arms out to do so, I had to quit a couple of times and rest cause it was making the muscles over my ribs hurt. I can lift my 20 some pound great grandson once but if I lifted him and put him down and did it over again I probably couldn't do it over twice without my arms giving out. Our muscles are weird.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


EBullins
Regular Member


Date Joined Feb 2009
Total Posts : 63
   Posted 12/29/2009 7:34 AM (GMT -7)   
Thanks to all of you for your input. I really appreciate it!!!

Peace,
Elizabeth
~~~Know Peace Know Power~~~
 
***Let emotions subside then decide***


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 12/30/2009 5:30 AM (GMT -7)   
Hi Elizabeth, normally I walk my dog at least one good walk a day (more than just 5 minutes up and down the street) but for the past 3 weeks I haven't been able to exercise or work because my points are too tender to touch. Some days I have trouble wearing clothes, especially on my neck and back. It stresses me a little (which it never used to) because I had been planning on starting a new, gentle exercise program in the pool at the gym. But I haven't been able to move too much past the mailbox lately. I am 41, almost 42, and have also been wondering if I'm perimenopausal. I had a hysterectomy, everything out except ovaries, but they were never great performers to begin with, so, thanks for raising the question. I think fibromites know their bodies better than people without.
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