Fibro is a part of who we are now

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Veteran Member

Date Joined Jul 2009
Total Posts : 4796
   Posted 12/29/2009 1:18 PM (GMT -6)   
Fibro is a part of who we are now and learning to live with it is the tricky part. When
we accept the fact that Fibro isn't going anywhere we eventually learn to live with it.
We can have a good life but we have to believe we can. Psyching ourselves up takes
practice. There are days I find myself in tears wondering why me. I'm sure you all can
relate. If I interrupt my negative thoughts and replace it with something positive like,
I am going to make the best of my life as I can because it's the only one I got, it is
easier for me to stop obsessing on how awful it is. Somedays I really obsess.
There is also a need to grieve the loss of your good health. I went through a mourning
process and I still grieve sometimes and I believe it is good not to keep all the emotions
all bottled up. Finding the positives through the negative is difficult when we are feeling
pain emotionally and physically. It does take practice and the support of others, that
is why this forum is so valuable.
You all have been a source of inspiration for me and have helped me become a stronger
individual. My hopes for the coming year is that my fibro family has the best life possible.
Happy New Year and gentle hugs to all
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

Veteran Member

Date Joined Apr 2009
Total Posts : 673
   Posted 12/29/2009 1:51 PM (GMT -6)   
I agree with you. There's this saying about how in every cloud there is a silver lining. I think one of the silver linings is that with fibro, we aren't dying. Some days it may feel like we are, but we really aren't. There are silver linings in the clouds of fibro. We just have to look for them. Being positive inspite of all the negative is important for a person's overall health. It may definitely be hard, but it is worth the fight.
Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss

Veteran Member

Date Joined Jul 2008
Total Posts : 1495
   Posted 12/29/2009 2:27 PM (GMT -6)   
Thank you Robin. I go through a lot of the same emotions as you. I am glad to know I am not alone. Usually I accept it and some days I still mourn. I like your silver lining, Sassy. That is so true.

soft hugs,

Regular Member

Date Joined Aug 2009
Total Posts : 159
   Posted 12/29/2009 9:42 PM (GMT -6)   
Me too, me too!  Yes, I go through the obsessing, the talking to myself, the grieving every once in a while still---Yes, all that.  So, you are not alone.  I too thank God for this forum.  It has helped me so many times when I've been down.  Helped me with info and ways to live my life better, physcally and mentally.  I think we all go through these periods when things just seem to be so much harder and the forum really helps.  And I too tell myself yes, I feel crummy but I'm not dying.  There are others in this world who are in far worse condition.

Veteran Member

Date Joined Jun 2008
Total Posts : 846
   Posted 12/30/2009 10:12 AM (GMT -6)   
Thank you for posting this... It is always good to have a reminder that it is ok to grieve the loss of our health. One needs to acknowledge these feelings to move to the next step.

I'll always remember when I first accepted having fibro, and then moving on.
I had been in denial for a long time. I pushed myself, then was always surprised when I went into a flare. Or I thought I was imagining symptoms, that I was just lazy. When I felt bad, I cried a lot. I thought it was the end of my life. After months of seesawing back and forth, I finally got angry. I would be darned if this stupid decease was goign to get the best of me! I stopped denying, and started taking care of myself. When I didn't feel great, I pushed a bit, which in the long run made me stronger. When I felt awful, I knew it wasn't the end of the world, and I would eventually get better. My outluck, and my health drastically improved. I still falter, but we are only human. I think it is normal to still go through the grieving stages over and over when you have a chronic illness.

And yes, there are far worse things to have than fibro, even if it doesn't seem like it sometimes.
I have a web friend, also with 4 kids (one of whom is autistic). She has a chronic, progressive illness that makes her muscles weak. She needs a brace on both legs just to be able to walk. She lost her license b/c of seizures, and she will eventually be in a wheelchair. But she is so strong and has a great outlook. She is my inspiration.
fibromyalgia and possible trigeminal neuralgia
50 mgs amitriptyline daily, T3s for facial pain (really not appropriate med) and now tramacet

Regular Member

Date Joined Oct 2008
Total Posts : 376
   Posted 12/30/2009 7:57 PM (GMT -6)   
HEHEHEHEHE...I'm usually wishing God would just strike me dead with a thunderbolt about the 20th time I end up on the potty. The Crohns gets aggrivated by the who the frig knows and then the fibro decides " turn to drive her nuts" and gets on with it on their own.

I've been doing the same thing though. Learning to live with the diseases I've got and wondering what the heck the statistics are for suicides based on chronic pain sufferers. I get pretty blue during this season so I'm just taking a breath every morning I wake up and wishing it all away.
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin

Veteran Member

Date Joined Jun 2005
Total Posts : 1852
   Posted 12/30/2009 9:54 PM (GMT -6)   
Grieving is absolutely normal, we all need to remember that. Even those that have been dealing with fibro or other long term illnesses can relapse from time to time. Goodness knows there are times I am in tears from the pain or get upset because I can't stay awake for more than an hour but I find some way to make it to tomorrow. You never know with fibro, tomorrow I might feel better, or at least hurt less or in a different area its a suprise!! :) And yes, there are always people out there worse off.

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