TMJ - Yet another health problem?

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SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 12/30/2009 3:43 PM (GMT -7)   
So I was just diagnosed with TMJ today. It's nice to have some answers to this immense pain I've been in. The pain has been horrible, to the point where I can't even function. And it's been setting off the trigeminal neuralgia. So between the two, I've been suffering really badly.

I can't believe I have yet another medical problem though. It's SO frustrating.

My doctor has put me on short term Prednisone to hopefully calm it down some.

Who here has TMJ and what do you do for it? Tips? Suggestions? Advice?
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B12, Vitamin D, Vitamin C, Ginseng


Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 5882
   Posted 12/30/2009 4:29 PM (GMT -7)   
I have had it since I was a kid. I have an abnormally small mouth, and my jaw pops.

When having severe pain, I heat a pan of water, dip in washcloths, take them out with tongs, and then wring them out lightly as soon as I can touch them. Then, I lay them on the joints. The wet heat helps relax the muscles.

Also, breathing exercises can be a huge help. Let the jaw drop open loosely, and concentrate on pulling air in through your nose and out your mouth. As you breathe out, focus on the air massaging the jaw, warming it. Light yawning can also help release the pressure.

SarahBear9708
Regular Member


Date Joined Jun 2009
Total Posts : 286
   Posted 12/31/2009 4:31 PM (GMT -7)   
Thanks so much for the advice...I really need it! lol. I've been in a horrible flare of it for over a week now, and I'm going absolutely crazy. It keeps spasming and freaking out, for what seems like no apparent reason. It just seems random. The pain has been so bad that I've been unable to function on many occasions. I hope it gets better soon!
"Anyone can give up, it’s the easiest thing in the world to do. But to hold it together when everyone else would understand if you fell apart, that’s true strength."

"You were only given this life because you are strong enough to live it."

~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*

Dx: Fibromyalgia, Chronic Fatigue, Trigeminal Neuralgia, TMJ, Migraines, Anxiety, Insomnia, Acid Reflux, RLS, Asthma.

Rx: Celebrex, Buspar, Savella, Lyrica, Requip, Nexium, Symbicort, Compazine, Lunesta.

Supplements: Vitamin B12, Vitamin D, Vitamin C, Ginseng


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 12/31/2009 5:48 PM (GMT -7)   
I have it too, and it seems to just flare out of the blue. It hurts soooo bad. I use a heating pad, and I take NSAIDs and muscle relaxants. I also massage the muscles to help them relax. I've also been told to try not to sleep on the affected joint when it is flaring (easier said than done).

I really don't know what helps the most; it just seems to get better as randomly as it attacks.

I hope you feel better soon.

Hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/2/2010 8:54 AM (GMT -7)   
Austen! Thank you for that! Now that I think of it I habitually sleep on my TMJ side.

Just wanted to suggest the "tube sock 3/4 full of rice/ put in microwave one minute" heating device. You can put it on your jaw as you fall asleep and not worry about starting a fire or burning yourself by leaving a heating pad on.

Also, my dentist made a bite plane for me and it helped IMMENSELY!!! Good luck with this.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Nicky44
New Member


Date Joined Apr 2005
Total Posts : 17
   Posted 1/2/2010 2:09 PM (GMT -7)   
Hi there
 
TMJ pain is awful.  My jaw joints crack all the time and I get terrific headaches and pain shooting through my ears when I eat, and at best constant nagging face ache.  I am under the care of a maxillo-facial surgeon who tells me that my masseter muscles are hugely over-developed due to clenching and grinding my teeth in the night.  I chewed through 2 regular bite splints in a short space of time.  Now I have an NTI (neuro trigeminal interceptor or something like that!!) splint which fits over my 2 front teeth and effectively stops my teeth from being able to meet.  I am on amitriptyline to help with the pain and sleep.  The next stage my surgeon is offering is botox, injected into the masseters to relax them.  I'm holding off from having this done because I'm scared of it going wrong and my face getting distorted!  Don't know if you're aware or not, but the tension in your jaws can extend to your neck and shoulders.  In my case my neck recently froze up completely so I couldn't turn at all and I had terrific pain all across my right upper back.  I needed 6 weeks of physio to release the muscle knots.
 
On the up side, the physio gave me several exercises to do and really drove home to me the importance of massage.  When I have showered and have a towel on my head, I lie back and spend a good few minutes massaging my face with a good quality facial oil.  It's surprising how much that has helped, and has the added bonus of being relaxing ( I use Decleor oils which smell divine) and very good for your skin.
 
Hope this helps, you have my sympathies!!
 
Nicky (UK)

Depression, anxiety, IBS, Irritable bladder, TMJ, vulvodynia & vestibulitis, chronic candida, not yet diagnosed with FM
Meds: Celexa, Imipramine, Fluconazole, Ibruprofen as necessary


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 1/2/2010 2:35 PM (GMT -7)   
I never had any jaw problems in my entire life........even for the last 15 years with fibro. But several months ago, my jaw began locking in the mornings, and then it increased to all the time. I couldn't only open my mouth about and inch and a half. Maybe I over-reacted, but I went to see a TMJ specialist. She took xrays and now I'm wearing a MORA splint (mandibular orthopedic repositioning splint). It was very expensive and I'm supposed to wear it 24/7 for at least 6 months.
According to my xrays, one TM joint is almost destroyed by osteoarthritis and the other joint got locked because it was overworking for the weak side.
I have no idea if its going to work or not, but I have heard that lots of people are in horrible pain with TMJ disease, because there are so many nerve areas around the joint. What you usually need is a mouth splint that will keep those joints from smashing into their sockets.
Many people get relief from wearing these types of splints. My dentist probably would have given me a much less expensive splint, but I figured that a specialist would know more what to do.
You need a work-up. You need xrays to see how damaged your TM joints are and then they will know what to do for you.
Many people with TMJ disorder grind their teeth at night, and have no idea that they are doing it.
Find a TMJ specialist in your area, and see if a splint helps you.
I was very lucky that I didn't have all those painful symptoms. I only had the locked jaw. I can imagine that the pain is horrible.
Good luck to you.......and get a splint! I've heard that the relief is almost immediate.
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