The end of a decade...

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pattipanda
Veteran Member


Date Joined Jan 2009
Total Posts : 1014
   Posted 12/31/2009 8:53 AM (GMT -7)   
Greetings all....
 
Well its the end of another decade.  Hard to believe isn't it?  But this is another decade that has come and gone with no answers, no cure and many that have no one in their lives' that have acceptance or understanding of their fibromyalgia.
 
My wishes and prayers for the new decade is: more advocates, warriors, medical professionals, researchers and $$$ for - answers - a cure - to get our lives back.
 
Too many of us are faced with poverty because we can no longer work and with that comes no health care and more pain, fatigue and fog.  Too many of us have lost friends and family due to lack of understanding or acceptance.  And FAR too many of us suffer needlessly because there is little to nothing being done to educate our medical professionals on FMS so they continue to consider fibro to be "all in our heads".
 
We need our voices heard for millions just like you and me.  We need to stand up for ourselves and no longer accept things as they are.  Only WE fibromites can make this a better world a better place for us and no longer accept one more person suffer as we have. 
 
Write to the AMA (American Medical Association), your Congressman, the Surgeon General.. anyone that you can think of that can lobby for us. 
 
We might not be strong alone.. but we can be strong together.  Let's let the world know ... we're mad as hell and we're not gonna take it anymore!!!!
 
Its a new decade.. the medical industry needs to make it a priority to help us help ourselves.
 
Love to all.. and Happy New Year!!!
Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety DisorderDyslexia, Degenerative Disc Disease, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Meloxacam, XanaxLipitor, Talwin 
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 12/31/2009 10:23 AM (GMT -7)   
As it stands right now , there is no known antibodies for Fibromyalgia. There are some
researchers who believe it may be an autoimmune disease. Personally,I agree and would put it in the category of a connective tissue disease. I also have MCTD.

Basic research is needed to find a cause. Even with known antibodies with the differant
connective tissue diseases, treatment is trial and error.

In the past year, I have had two bone marrow biopsies, a skin biopsy and countless blood
draws and testing to determine my treatment.

I know that there are others who have Fibromyalgia along with other health issues, it
complicates things. Research is our Hope and I hope and pray we there will be cures for
everyone someday.

My hope is that those who are suffering are given pain treatment with or without a diagnosis.
No one should have to suffer needlessly.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 

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