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Veteran Member

Date Joined May 2006
Total Posts : 1477
   Posted 12/31/2009 7:48 PM (GMT -6)   
Dear Fibro Friends,
I was diagnosed with fibro years ago and even at a rhumatoligist just this past week. Today I got my blood
work back for lyme testing. 25 tubes of blood, 3 different labs. LYME POSITIVE plus co-infections.
I have had this for at least 30 yrs and no memory of a tick bite.
I'm sharing this with you because there could be more out there like me. The trick to lyme is in the testing.
Also with the fibro it's all about the doctor who truely acknowledges it and goes outside the box on the blood work
to find any viral stuff. These forums are so important to finding answers and sharing love and information.

I wish you all the happiest HEALTHIEST NEW YEAR.

Only is Love,
hep c , lyme
Dad has lyme

Regular Member

Date Joined Jul 2009
Total Posts : 236
   Posted 1/1/2010 9:14 AM (GMT -6)   
 Good morning Bucci, smilewinkgrin
I am glad your Doc. "  rheumatologist  " had the knowledge to run the correct test for lyme , so many have no idea what test to run for this. as mine... she ran some test but had no idea what ones to run. and with lyme you really need to do the right ones or it wont show up. .. also my  rheumatologist has no knowledge about Chronic fatigue. , you would think if they are Dxing people with fibro they would educate them self's with the whole picture to helps right. ? But nooo.... not mine.. as you can tell I'm not to happy with my  rheumatologist  . matter of fact I have not had an apt in about 7 months because of this and she does not take good notes.. drives my family doc who is an internonalist crazy ... he really gets upset about Doc's not communicating with each other , as they should be to help us. ..
sorry ,. kinda rambled  there..
but at least now you have this Dx.and can start working on it. that's a good step. please keep us posted to your progress .. do you have any symptoms we should know about .. ? might be that some here will see in your symptoms that they should be checked for this also .please do share
great big soft hugs , and sending you much love .

Spirit ~

Veteran Member

Date Joined May 2006
Total Posts : 1477
   Posted 1/1/2010 3:37 PM (GMT -6)   
It wasn't the rhumatologist that did the RIGHT blood work it was a LYME specialist naturopath doctor. It was the rhumatologist who told me to treat the depression and it would help with the pain of fibro. The funny not so funny thing is this was just the
day before getting the blood results from the naturopath. she took 25 tubes to 3 different labs to make sure to get accurate
diagnosis. I really believe everyone who has fibro should have these tests. It pulled up a lot of information even besides
lyme. If you have a virus in your brain you need treatment. when brain is off is when all the "Unexplainable phantom"
symptoms come up. ie: fibro
hep c , lyme
Dad has lyme

Veteran Member

Date Joined Apr 2004
Total Posts : 6056
   Posted 1/2/2010 9:47 AM (GMT -6)   
Don't want to burst your bubble but you can still have fibro even though you have Lyme. Lyme appears to lead to an onset of fibro in some individuals. If this is the case then the SSRI meds the rhummy wanted you to take would help with the pain.

Question: Is your naturopath also a medical or osteopathic doctor? Are you going to be using antibiotics for your lyme treatment? And finally, what state do you live in? Some states don't license naturopaths and some do... Just curious.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

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