I'm done with fibromyalgia!

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thoughtIwasCRaZy!
New Member


Date Joined Nov 2009
Total Posts : 7
   Posted 1/2/2010 7:50 PM (GMT -7)   
I'm just done with it.  It's not taking my time, my life, my spirit.  I'm done.  Tomorrow I will wake up, take a brisk walk and go to church.  I'll make dinner for my family and finish the laundry.  I'll make time to watch my Vikings play football - I'll clap my hands and cheer with both arms flapping.
 
I'm done laying around...feeling sorry for myself...I'm taking control of my life.
 
Happy New Year!
This is a NEW YEAR!
This is the year for me to heal my self with my mind!
Michele

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 1/2/2010 7:54 PM (GMT -7)   
Hi Michele,
 
Good for you!!!  I hope that you keep up this attitude, but go slow.  Give yourself a little room with this resolution.  Maybe say, "I will no longer let fibromyalgia interfere with my life".  I will get healthy, and I will exercise.  But take it slow and don't let fibro get you down.  You can do this.  I know that you can.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


thoughtIwasCRaZy!
New Member


Date Joined Nov 2009
Total Posts : 7
   Posted 1/2/2010 8:30 PM (GMT -7)   
I'm scared. My life is out of control right now and I am scared. My flare up is lasting too long. I hurt. I'm not living right now. I'm just - nothing...

I'm trying to take the advice I have given my kids. Mind over Matter. It's just not working that way for me with this...THING that has a hold on me.

If you could just see me now...I'm lying around in my pj's for the last 2 days. Slipping in and out of naps.

I pray that tomorrow is the day that I can go back to being normal...to being who I was...

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/2/2010 8:55 PM (GMT -7)   
Michelle...I pray the same for you, that tomorrow you can get up, go to church, do laundry, make dinner, etc.

But please go easy on yourself! If you even do ONE of those things, you're making progress, right?

Believe me, I do understand, I've been in my pjs for two days myself. Christmas Day I couldn't stay awake long enough to take all of the pictures I wanted to of the kids unwrapping presents! I fell asleep on the couch....on Christmas Day! I hate fibro flares!! mad

But we have to remember that we are ill....we're not being lazy. And with this illness you have to take each day as it comes and just do the best you can with it. You have to learn to love yourself as you are now....not condemn yourself because you're not "getting things done". There's nothing wrong with wanting to do things, but remember, you may not have the energy to do all of them....can you prioritize your to-do list?

For example, today I did laundry (with hubby's help) and made dinner. I feel good about that. I also worked on bills....in my pjs, LOL! I didn't take the Christmas tree down, as I wanted to, nor did I put Matthew's fire truck together. Maybe I'll get around to those later tonight if I have the energy, or maybe tomorrow.

Which one of those things on your to-do list for tomorrow is the one you want to do MOST? Which is the second one on the list? Try to save up energy to do at least one or two of the things on your list.

You're in my thoughts and prayers,
(((hugs)))
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/2/2010 10:16 PM (GMT -7)   
Michele, I do hope you are able to do what you wish tomorrow. Finding the right balance and
pacing yourself is probably a combination of guesswork, luck and knowing your body when it
comes to fibro. Having a good mindset and attitude does go a long way, I have learned. There
are days too, where I really, really have to work at it.

At the beginning of each day, I try to set goals for myself according to how I am feeling.
Exercise is always on the list because I believe it gives me more energy. It doesn't have to
be strenuous if I am flaring. When you are feeling good it is always tempting to overdo, and I
believe we have all done it and paid for it later. Pace...pace.... and take time for yourself.

The important thing is to realize there are going to be days no matter how much you might
want to do something, you will have to wait for another day. Do what you can, the rest can
wait.

Michele, you are taking control of your life, the first step is believing you can!

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


boo32
Regular Member


Date Joined Jun 2009
Total Posts : 222
   Posted 1/3/2010 2:37 AM (GMT -7)   
hey there,
i hear you load and clear, i'm totally fed up also and just want to get fit again, i skied in Austria feb 08 i was doing so well, now it just hurts to wake up.
I'm heading back to counselling for a couple of sessions to drum it into my brain that this is not my fault and stop beating myself up.....i think our bodies hurt enough without dragging around a truck load of guilt.
So get up and maybe even just get dressed today, before christmas i forced myself to put make up on for work and it helped just to feel better.
I bought a dog last year and it turned out to be a disaster, so instaed of letting it get me down for making a bad decision i'm now getting a little dog to walk that i can handle.
Harness that new found inspiration of yours and do a little at a time, become aware of the vicious circle of doing too much on good days and pace yourself. You'll be in my thoughts today as i walk myself.
For the moment i'm not even exercising.......i'm just going to move my body and take it from there, the biggest step we need to take is the first.
take care and keep us posted.
boo
BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most! But it has its advantages!
Fibro, spinal arthritis and all that goes with it.
GAD


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 1/3/2010 8:07 AM (GMT -7)   
Hi there,

I think depression associated with Fibromyalgia can be the worst. You can feel hopeless and sink further into a pit of mental misery. I do believe full heartedly that prayer and focusing on good things will help get out of that pit. It is hard. But I think if you keep trying day after day to start anew, then things will be okay.

We all go through it and feel helpless with no hope. I have some great scriptures, but I don't think I am supposed to quote bible verses on this forum. If you would like some of those that have helped me, send me your email.

Hugs & blessings. You ARE going to be fine...I promise :-) xo

Susan
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, MFS or MS.  +ANA, MTHFR heterogenous gene A1298C


susan1
Regular Member


Date Joined Dec 2009
Total Posts : 80
   Posted 1/3/2010 8:13 AM (GMT -7)   
Also, I wanted to add that I feel all of your pain. I know it is hard. But it doesn't last indefinitely, we do have days that are better. Focus on that.

None of us are promised tomorrow, so don't worry about tomorrow, tomorrow will take care of itself. Live in HOPE for a brighter future. I pray it comes for each and everyone of us here on the Fibro board and the other boards as well.

Hugs
Susan
41 years old
Married with one child
 
Waiting on diagnoses:  Lupus, Fibromyalgia, MFS or MS.  +ANA, MTHFR heterogenous gene A1298C


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40578
   Posted 1/3/2010 9:03 AM (GMT -7)   
HI Michele,
 
I am just wondering how it went today.  Did you make it to church? 
 
Please remember if you are tired and want to rest, allow yourself that and do not feel guilty about it.  Just go with it. 
 
It does sound like you are suffering from depression too.  It kind of goes hand in hand with the firbo.  Feel free to visit the depression forum.  I moderate over there too.  There are many who are depressed and are suffering with other illnesses too.  So everybody understands. 
 
Let us know how your day went.  I hope that you made it to church.  But if you didn't, do not feel bad about it.  We do what we can , one day at a time.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/3/2010 9:40 AM (GMT -7)   
Michele, when I initially answered your post,I should of mentioned that going through a grieving
period of losing good health is perfectly normal. I cried and asked me why me. I hated feeling like a slug. I think the buildup of anger is what motivated me to try to change my thinking.
I was sick of being sick and although I knew my illnesses were not going to dissapear I had to
find a way to cope. I had to change my mindset. I was never diagnosed with depression but
looking back it was certainly a blue funk period.

I am now taking Savella, it does help with Serotonin levels. Keep believing, there is good life
to be lived.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/3/2010 10:11 AM (GMT -7)   
Michele, you have been given some great advice from many of our family members. Letting go of who I use to be was one of the hardest things I have ever had to do. I was a perfectionist, guess I still am in the back of my mind but the body doesn't allow me to act on it anymore. You have to accept the fact that you have a disorder that has changed your life and find balance or your never going to be happy with who you are. I hate this DD and the lack of energy and pain I have to deal with everyday but til someone comes up with all the answers to fibro this is it. I know I could have a lot worse things than fibro and for that I am thankful.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


thoughtIwasCRaZy!
New Member


Date Joined Nov 2009
Total Posts : 7
   Posted 1/3/2010 11:30 AM (GMT -7)   
Good morning!  Wanted to tell you all THANK YOU ALL for replying to my post. 
 
Nothing new to report.  I feel the same as I did yesterday.  Slept right through church and the entire morning. 
 
I did have a very vivid dream of being in my Grandma's old country church with her.  Maybe that was God's way of telling me that my intentions were good and were noted.
 
I'd better get the laundry going - I see the Vikings game has started without me!
 
Thank you so much.  Your words of kindness and encouragement mean so much to me! I hope to one day "give" instead of just "take" from this site...
 
Michele

mickey1028
Regular Member


Date Joined Jul 2009
Total Posts : 36
   Posted 1/3/2010 12:59 PM (GMT -7)   
hi crazykitty, i saw i ur reply that you take savella. i,ve been on it for about 3 mths. have you had any side affects like a racy heart or light headedness. I,ve been taking 50 mil 2 x,s a day and feel like crap recently. racy heart and just blah feeling . i,ve cut the dosage in half hoping that helps. thanks

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/3/2010 1:32 PM (GMT -7)   
Mickey, I answered your question in the post you startedsmilewinkgrin

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/3/2010 7:01 PM (GMT -7)   
Hi Michele, Saw that the Vikings won today! I am a Packer fan being Green Bay is where I'm
originally from. Brett Favre is really good!

Hope you are doing OK. Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 1/4/2010 3:07 AM (GMT -7)   
Hi Michele, I'm with you - I'm SO sick of this monthlong flare I'm in, and sick of being sick! So I said I was going to get up and finish cleaning the kitchen (leaving the bathroom for tomorrow), do my laundry, shower, and go grocery shopping. I managed to take a shower and do a load of clean clothes, and then was back in my recliner. Ah well. There's always tomorrow. :) Baby steps!
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