Strange reaction to spinal tap.....is it my fibro?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/7/2010 12:04 PM (GMT -7)   
I had a spinal tap on Tuesday and it went well...no problems at the time. I was told to lie flat for 24 hours and I did so. I woke up on Wednesday morning in excruciating pain due to spasms in my core muscles: abdominal + rib cage, etc. The last time this happened to me at this level of severity was when I had my liver biopsy (dx with autoimmune hepatitis).

Does this sound familiar to anyone....i.e. a puncture wound or similar medical procedure triggering muscle spasms? I'm just trying to find out if this is caused by my fibro or if I'm just having a unique reaction that is specific only to me. I asked about it on the lupus and MS forums and no one has (so far) admitted to having a similar reaction.

In other words, am I weird or what? LOL! smilewinkgrin
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/7/2010 12:39 PM (GMT -7)   
Hi Nasalady, I had a spinal tap myelogram that involved an injection of radio opaque dye into
my spinal canal. I was placed on a tilt table after the injection to spread the dye through me.
They had to stop the procedure because of excruciating cramping in both legs. My legs were
massaged but the cramping continued so they kept on. I atrributed the pain as a reaction to the dye. I was told that happen sometimes.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/7/2010 2:10 PM (GMT -7)   
Thanks Robin....sounds like you had a bad time of it too. :(

I didn't actually have any dye injected on Tuesday, it was just a spinal tap to collect CSF for testing. I sent an email to my rheumy asking him if my reaction was due to my fibro (and he's one of the top fibro guys in this area), and he sent back a two-word answer: "Don't know".

So it's a mystery!

I always knew I was weird.... tongue
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


merrygirl
Veteran Member


Date Joined Jun 2007
Total Posts : 702
   Posted 1/7/2010 4:19 PM (GMT -7)   
I had pain for along time after my spinal tap. minw was difficult to get but yes i think I had a hard time after.
Chronic Lyme Disease
Fibromyalgia

Chronic fatigue syndrome

Polycystic Ovarian Syndrome

Sleep Apnea

Hypothyroidism

Adrenal Fatigue

Type 2 Diabetes


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/7/2010 4:21 PM (GMT -7)   
I think we are all a little weird in some way. We all have some craziness going on with
our bodies! tongue
 
Hope your test results are good!
 
Hugs, Robin

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 1/8/2010 8:03 AM (GMT -7)   
I wonder if the spasms are from the position that they had you in during the spinal tap. I have never had one myself but have seen it done a few times and I seem to remember the posture was a bit awkward. Hope you are feeling better today. Lisa
If I can laugh at it, I can live with it.


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/8/2010 10:37 AM (GMT -7)   
Thanks merrygirl, Robin, and Lisa....I do feel better today. My muscles are still very sore from the spasms, but they're not spasming anymore, thank goodness!!

Lisa, they had me lie on my left side during the procedure, I was fairly comfortable in that position. I guess it's a mystery why my body reacts that way to any sort of "puncture"....but the next time anyone suggests a needle biopsy or whatever I'll be prepared for this and take a muscle relaxant BEFORE the procedure!! :)

Take care,
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/8/2010 5:54 PM (GMT -7)   
Could it have been from laying for 24 hrs??? I think we feel more pain from any medical procedure.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/9/2010 1:48 PM (GMT -7)   
Hi Marlee,

Maybe it was exacerbated by having to lie down for so long. I thought it would be easy to do, but it was very hard to stay so flat for such a long time!

Yes, it's true that any medical procedure hurts a fibromite more.....just a blood pressure cuff can be really painful!

(((hugs)))
JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/9/2010 5:18 PM (GMT -7)   
JoAnn, the only way I could lay still for 24 hrs is to be knocked clear out, the thought makes my body hurt.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 2:18 PM (GMT -7)
There are a total of 2,735,482 posts in 301,310 threads.
View Active Threads


Who's Online
This forum has 151413 registered members. Please welcome our newest member, MamaPhoenix.
356 Guest(s), 15 Registered Member(s) are currently online.  Details
PeteZa, robotguy, PantsFace, tickbite666, FearBug, dismissed, Scaredy Cat, AngelsmamaDorseysdaughter, LymieWriter8, Jingles1234, dbwilco, peanut307, Tim Tam, gilly2, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer