Just a quick answer survey...PLEASE RESPOND

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

megatired
New Member


Date Joined Sep 2009
Total Posts : 13
   Posted 1/9/2010 2:36 PM (GMT -7)   
How many of us out there have had to drop their hours from full time to part time because of fibro?  I have worked 40 hours a week for 29 years and since fibro became a part of my life I struggle to work 24 hours a week.  I am female with a fairly physical job.  I provide support to people with physical and mental disabilities.  Please give a quick answer if you can...my employer doesn't understand why I need to reduce my hours when i "look aright".
Thanks you soooo much to all who respond.  I'm hoping that if it turns out to be fairly common that I can show him this thread.

cat8201
Regular Member


Date Joined Nov 2009
Total Posts : 135
   Posted 1/9/2010 3:41 PM (GMT -7)   
I don't quite know what your question is, but I am 27 and I cannot even hold down a part time job right now. I cannot handle the daily job of running my home. But day by day, (I worked 40-50 hours before I became ill but I still would have migraine's and trouble).
27 yrs old-Fibromyalgia; PCOS; Surgery induced Menopause; Classic Migraines with Aura; Neuropathy; Ankylosing Spondylitis w/ narrowing around the spinal cord; Spinal Stenosis of the Cervical & Lumbar Spine; other little things
 
Medications for pain: Oxycontin; Soma **will update when change meds for sleep, etc.
 
Other treatment: Aquatic Therapy (still have to start); Sleep Study (need a sitter)


nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 1/9/2010 4:03 PM (GMT -7)   
I have been working more than full-time for many years now. I have a regular full-time job (staff scientist at a major research university) and a part-time job (math instructor at a local community college).

I have decided I have to drop my part-time job.....I REALLY hate to do so, because I need the money plus I love to teach! But I can't handle it anymore. I can barely handle the full-time job.

OK....truth is I can't even handle the full-time job. My employers are being super-duper nice to me and are allowing me to work from home much of the time. I am EXTREMELY grateful for this because otherwise I would be applying for disability right now.

I'm very lucky to have such great bosses.

JoAnn
Autoimmune hepatitis, Hashimoto's thyroiditis, lupus, fibromyalgia, rheumatoid arthritis, celiac disease, asthma, psoriasis, Raynaud's syndrome, hypertension, osteopenia, sleep apnea, restless leg syndrome, GERD.

PENDING DX: Lyme disease?? Lyme ELISA positive!

Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Darvon, Levothyroxine, Atenolol, Cozaar, Mirapex, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


autoimmunediseasesgfliving.blogspot.com


Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 5876
   Posted 1/9/2010 4:49 PM (GMT -7)   
I work full-time (teach in a college). It is only possible because it is 1.) relatively sedentary, 2.) mentally challenging, 3.)limited 'real-time' hours in front of a class, 4.) research can be done at my own pace AND only involves me, myself, and I.

However, I take a lot of meds, I sleep a lot, I try to eat well, and NO MATTER how busy I might be, I get to the gym regularly for water aerobics.


Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.

Post Edited (Myself 09) : 1/9/2010 4:56:55 PM (GMT-7)


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 1/9/2010 5:20 PM (GMT -7)   
I'm one of the lucky ones. I discovered my herbals and can maintain my very physical full time job.
I have days when I hurt but most of it I can live with. Right now I'm out of True Calm and running
low on the rest so I've been babying them and am paying for it by aching. With all the shoveling both
before and after work and push mowing 2 acres in the summer I remain on top of it by using the
herbals a couple of times a day. I know I used to take so many dr drugs that I couldn't sleep right,
would go to work so groggy and out of it I was barely functional on many occasions. It got to the
point when I could take 4 darvacet and 3 flexoril and it wouldn't even touch the pain. I'm glad to
have gotten off of them.

Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/9/2010 6:55 PM (GMT -7)   
I own my own home based bakery so I can stop and sleep when I want to. I wouldn't last 2 days at a full time job outside my home. I've also had to give up teaching Sunday school, choir and even babysitting my grandchildren sometimes because of the pain and fatigue.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Jadensmommy
Regular Member


Date Joined Nov 2009
Total Posts : 104
   Posted 1/9/2010 6:59 PM (GMT -7)   
I had to quit my full time job as a Home Health Aide 2 years ago due to the pain I was having. I wasn't Dx with Fibro until Nov 2009, but I'm sure I had it then. I have a 2 year old little boy here at home that I take care of full time now and it's still difficult. This is the invisible illness and my bosses didn't understand why I needed to leave due to the pain. Can you get a doctor's note stating that you need reduced hours?

Good luck!
Fibromyalgia Dx November 20, 2009

Pain issues: Pain in neck and upper/lower back, chest/ribcage pain, Degenerative joint disease in both knees, migraine headaches, very painful menstrual cramping, pelvic pain.

Meds: Neurontin 300mg.

First PM appt on February 5th!


Tammy <3


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 1/9/2010 7:57 PM (GMT -7)   
I not only had to cut my hours, I had to change my career. I work about 32 hours/week for about 1/5 of what I used to make.

grumpydogze76
Regular Member


Date Joined Dec 2009
Total Posts : 44
   Posted 1/9/2010 10:54 PM (GMT -7)   
well mega im 33 years old and cant get out of bed most days until noon.......i use to build beautiful houses for wonderful people.....i had to stop all that about 7 years ago as the pain was really starting to get to me.....i didnt work at all in 2003.....in 2004 i tried my hand at running a paving roller for a paving company.......as the job was seasonal and i would be able to collect unemployment in the winter.....i almost made the season but finally the pain caught up to me with about a month to go and i didnt get any unemployment......a friend of mine was heading to florida to do some hurricane repair work......i thought hell that might just be the thing i need to get rid of my winter pain..........WRONG.....at this point i didnt know i had fibromyalgia.....i had never even heard of fibromyalgia.....so we got to florida january 12, 2005........i worked for maybe two and half months (in extreme pain)................then in march of 2005 i called it quits and came home to maine.....i have tried to do less physical thing but the fog gets to my brain and i cant consontrate
..............so now my career is fighting with the ssa to try and get a meager 12000 dollars a year.....i used to make in excess of 50k a year after taxes.......and they think i want their 12k.....anyway be thankful that you can still do anything at all i wish i could....oh ya by the way i dont look like i have anything wrong with me either......i have gained a lot of weight since i have been less physically active.....but besides that i look like a 33 year old man....so tell your boss to give me a call and ill tell him to put his testicles in a vice and tighten it up and that is what FIBROMYALGIA feels like.....and that is why you need to lessen your work load...... best wishes john
Fibromyalgia DX June of 07 December of 08 i got to have a vacation in the hospital with blood clots in my legs and abdomin meds I have tried them all the only thing that even remotely helps me is oxycodone 15 mg and thats all i take i hate meds trying to get disability since June of 05


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 1/10/2010 1:01 AM (GMT -7)   
Hi John,
I work full time and commute 2-3 hours every day. I work at a large university and park in the disabled spots that are 8 minutes from my office. (The disabled spots allow me to avoid climbing stairs.) I usually skip my lunch and take a few short breaks during the day because 11 hours is long enough to be gone from home. But my job does not require any physical labor. the commute is extremely difficult on me.

I volunteered for a wildlife refuge a few months back and a few hours of working would require a few hours of rest in bed. I used to work out in the yard for hours at a time and walk long distances and climb stairs for the enjoyment of it. I could not do any of those things now.

FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 1/11/2010 5:58 AM (GMT -7)   
 had to give up my assistant supervisor position. and work from home. I work a split shift now // 4 hrs on 2 off and then 4 more . I do have to admit. after a year and a half of this.. I am thinking I may have to file for Disability .. can't decide.
 
best of luck... one thing to remember . if you start working part time and have to file for ssd. they will go off your part time wages. I do believe.

Spirit ~
 
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 1/11/2010 12:59 PM (GMT -7)   
I am 36 and for now am still working 40 plus hours a week.  But, I have a desk job thankfully.  If I had the job I had 10 years ago there would be now way I could do it.  I worked with patients doing light physical therapy at a nursing home- no way I could do that now.  Between working full time and trying to keep up with house work at home I can barely do it anymore and most days come straight home from work do what little I can at home and lay down for the evening.  On the weekends I have to spend all weekend catching up on things and it seems like little by little I can't stay caught up anymore.  My plan was to drop at least a day a week from my job at the beginning of this year, but financially that just isn't going to work out.  If we can get some of our finances in order I plan on dropping a day off my work week or more, that is if my job will permit this.  I would love to be able to work from home but haven't had any luck finding anything to do at home.  Best wishes to you!

Juvenile FMS
New Member


Date Joined Dec 2009
Total Posts : 16
   Posted 1/11/2010 9:54 PM (GMT -7)   
I am 16, and not working yet, but I have had to cut back my hours at school. I went from a rigorous program with six classes, to a very light weight schedule with only four classes. My rhuemotologist actually suggested this because I was missing so much school because of my fibro flare-ups. It has reduced a lot of the physical strain on my body, as well as the stress, which has helped me manage my symptoms better. I am also struggling with teachers and administration because I look well, and fibromyalgia isn't a disease that is visible to the untrained eye.
Diagnosed with Fibromyalgia in June 2009

currently taking melatonin (3mg) to assist with sleep


MrsCavbar
Regular Member


Date Joined Mar 2009
Total Posts : 285
   Posted 1/11/2010 11:37 PM (GMT -7)   
I have been unable to work full time since my 2nd heart attack 6 yrs ago. When I was DX'd 2 yrs ago I was a full time college student and working part time. Along with the DX came a 5lbs weight limit, no lifting, pushing, or pulling anything over 5lbs, because of arthritis around my sternum and spine. My dr told me that I needed to quit work and school "for a little while" and because I've been in state funded programs for both, I now need a medical release to work or go back to school. 3 dr's later, and not a dad-gummed one of em willing to reverse the first dr's limitations or sign a work release. So now, I'm looking into taking my previous credits and putting them towards a certificate for transcriptioning to work from home, but that would have to come from my own pocket.
Lola

Any idiot can face a crisis - it's day to day living that wears you out.
Anton Chekhov

My train of thought derailed long ago, now I take the bus, few more stops, but I eventually get there.
Lola

FM, costocontritis, wide spread arthritis, fibroid tumors, PTSD, 2 heart attacks at 22, PID


Buspar 10mg, Acetometaphen 500mg, Zantac 150mg, B-complex, Tramadol 150mg


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/12/2010 1:06 AM (GMT -7)   
Hi Megatired!

Looks like you have your answer. I too was teaching at a college and it kept getting harder and harder to keep going. Nearly 2 years ago my doctor said it was time to quit and I know he was right. Not only was the pain awful but I kept getting ill and missing work which I had never done before. Fibro takes it toll, unfortunately. We can still lead a good, happy and productive life, just not in the same context as we used to.

Your boss needs education is all. One of the classic statements to those with fibro is..But you don't LOOK sick! Below are a couple of links that should help you get across to your boss. Print off some information and take it to him. Offer to sit and explain if he cares to listen. It's hard to understand for those of us who have it...but for onlookers it's every harder. I hope we all have helped!

Chutz

This first link is a lecture that I first saw on the Research Channel. Here's a link to the podcast. It's great information on what fibro IS and some of the research the Stanford Pain Center is doing. There is hope...

www.researchchannel.org/prog/displayevent.aspx?rid=28078&fid=813


One is these links is from the National Institute of Health and the others are from Stanford University Pain center who does a tremendous amount of research and works with/for fibro folks.

health.nih.gov/topic/Fibromyalgia
www.lpch.org/DiseaseHealthInfo/HealthLibrary/arthritis/fibromya.html
www.shlnews.org/?p=58
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


FMsaddenedspirit
Regular Member


Date Joined Jul 2009
Total Posts : 236
   Posted 1/12/2010 5:31 AM (GMT -7)   
have an update our company is going through changes.. so I get a call last night ... in order to work from home now.. I can not take the resolutions calls from home. they want all Resolutions in office so that lets me out. I have to work from home and barley mange that... I had been thinking of getting out of this type of call anyway to much follow up and I cant keep track anymore. starting to make mistakes and its a matter of time before it catches up. so taking a another $1.00 pay cut...
now they want to change my schedule from a split 4 am to 8 am 2 hours of and then from 10 am to 2 pm.. was my shift I have worked since being dx with Fibro .. mind you I barley can do this... so now they want me to work nights... I did get them to add in a 1 hr lunch so that helps some.. but I used to nap during my break in order to make it through the 2nd part of my shift. so . wow..
I think its time to get back with my doc's and find a lawyer to file SSD. and I have disability with work I can use. short and long term. so thinking its almost time to quit .
question.. did any of you go through a disability lawyer ? if so who... I see those ones on TV. advertising .
Spirit ~
 
Fibro, Chronic Fatigue ,Anxiety ,( arthritis,, hands, feet, knees, back , neck )  , disk disease in neck with bulging disk , adhesions , Migraines, High blood pressure ,Gerd, IBS , Sever sleep apnea
Med's ,,,  fentanyl patch, Perc, Soma, anxiety meds, Ect.


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 1/12/2010 7:23 AM (GMT -7)   
I used to work at a well paying job, w. as another writer said; mentally and emotionally challenged children and adolescents. Some of the clients were violent and had to be restrained to protect them and others. I had to let it all go as I had no confidence that my body could remain rigid and that I, with another worker, could restrain clients requiring sometimes up to an hour or more of standing in one position. I was worried I wouldn't be able to "hold on" for the duration and someone would get hurt. Then I tried much lower paying jobs, nothing worked out for me. I could not do a full days' work. So, now I am on permanent disability.

CrystalMarie
New Member


Date Joined Dec 2009
Total Posts : 5
   Posted 1/12/2010 4:34 PM (GMT -7)   
I actually work in the same field as you! I greatly enjoy it and since being diagnosed with Fibro I dont have the strength and stamina I used to. I love my job though I only work 20-30 hours a week 4 days at 4 hours and every other weekend 8 hours a day. Is hard. They understand what I am going through and allow me to use things that help me complete daily tasks. use foot stools to sit on instead of kneeling take breaks. I hope things work out for you. For all of us really. This is all new to me right now too. Now I have a name for my pains. I am afraid to take meds and go to work as I dont want to feel the effects and have to drive my ladies. I have a new sleeping pill that I am afraid to take since I need to be up at 445 a I dont know what its going to do yet.

Carnissa
Regular Member


Date Joined Jun 2008
Total Posts : 289
   Posted 1/12/2010 5:36 PM (GMT -7)   
I work 40 hours a week and occassionally bartend on weekends.. i probably shouldn't be working the 40 hours a week.. but unfortunately i have to work full time. it is a struggle.. but i am only 30 there are the days that i can hardly get out of bed without tears but i force myself so that i can keep moving.. i do have a desk job now that doesn't require the more physical aspect but it can be just as draining as physical labour. some days for me
Diagnosed - fibromyalgia 2001
Meds amitryptilene 30mg/day
Lyrica 75mg/day


porkysgal
Regular Member


Date Joined Jan 2008
Total Posts : 94
   Posted 1/12/2010 7:05 PM (GMT -7)   
I have a desk job at Electrica Contractors and have always worked 40 hrs. but in Sept due to the economy a couple of us were cut to 32 hrs, i love the 3 day weekend but a 20% pay cut hurts as my husband is permanently disabled and we are raising our 5 yr old grandaughter, i guess some days i am thankful i have a job.  My husband thinks i am ready to go disabled between this and my Crohns but I just have a hard time letting it go, I am 50 and honestly dont know if I could handle being home with him all day, love him to death but ya know.
 Deb
Crohns, Fibro

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 11:46 PM (GMT -7)
There are a total of 2,731,975 posts in 300,977 threads.
View Active Threads


Who's Online
This forum has 151141 registered members. Please welcome our newest member, LydiaLoftis.
202 Guest(s), 2 Registered Member(s) are currently online.  Details
LydiaLoftis, celebrate life


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer