WEANING OFF OF SSRI'S / ANTIDEPRESSANTS

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MT Lady
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Date Joined Jul 2008
Total Posts : 955
   Posted 1/15/2010 8:59 PM (GMT -7)   
I have weaned off of Prozac, which I was on for the past 20 years. Now I'm wondering if that was such a good idea. I am in a really bad flare...could it be from getting off the Prozac? I know some of you have gotten off SSRI's (Donna)...just wondering if you are having more pain, more flares? Honestly, if I know that this increased pain is due to the lack of the Prozac, I may go back on it...thanks so much!!'
gentle hugs,
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 1/15/2010 9:39 PM (GMT -7)   
Hi Miriamtongue ,
 
It could very well be that the prozac was helping some with the pain.  But it could also be what your body is going through due to the withdrawal of the medication.  Did the doctor mention at all that you might have this happen?  I would mention it to him, maybe if you can tough it out for awhile, you can see if the pain would subside as any other side effect from withdrawal would.
 
I highly recommend mentioning this to your doc.  They should know what is going on, you might need a pain medication adjustment made.
 
If you are tense from going off of the meds, that could be playing a part in it too.  Maybe you are a little nervous about it and that is effecting you and causing you more pain.  There are different things  that it could be, so call your doc and mention this to them.
 
Best wishes, I hope that you feel better soon.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


donnaeil
Veteran Member


Date Joined Jun 2006
Total Posts : 1156
   Posted 1/16/2010 1:59 AM (GMT -7)   
Serotonin relieves pain in addtiion to being an anti depressant. YOu may need something else for pain relief.

Donnaeil

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/16/2010 6:11 AM (GMT -7)   
Hi Miriam! When I first got off Lexapro I experienced  headaches (especially the eyes), neck and shoulder pain that I thought was a monster flare and considered going back on the drug for that reason. It was withdrawal and it got better...I actually have had less pain for the past month. (still getting brain zaps).  As you know, I joined an SSRI withdrawal forum that has 1.5 million members.  Most complain of body/headaches aches, the zaps and emotional outbursts.  I learned that weaning should take months and never done cold turkey...which I didn't know...I just stopped at 2.5mgs so I got the mother load of symptoms. I am wondering if you were on Prozac for 20 years at the same dosage if it was even working anymore???  My doctor told me that SSRI's 'poop' out after three years and the dosage has to be increased or you have to switch to another drug.  I wish you good luck...I am inclined to say it could be a withdrawal symptoms but of course...I'm not a doctor...LOL! Oh, magnesium and Omega 3 fish oils seem to be the two things recommended to help with the pain/zaps. 
 
Huggies
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 1/16/2010 6:29 AM (GMT -7)   
I've never done long term anti-depressents but check out the True Calm which works on the
neuro-transmitters like the drugs. It's herbal and I've found it works much better than the
flexoril without side effects.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/16/2010 8:24 AM (GMT -7)   
I don't know Miriam, I tried lowering the amitriptyline by a little bit, guess it will be two years ago this spring, and went into a 2 wk burning flare that you would have to experience to believe. I went back up to 100 mg immediately and have not had that kind of burning since.
 
My doc didn't want me to lower it but I had my doubts about it working after so many years, probably 12 at least. Guess there is only one way to find out if it is withdrawal or if it is helping your pain and that is to see if the flare ends without going back on it.
 
I would call your doc and get his opinion.
 
Feel better soon.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/16/2010 2:31 PM (GMT -7)   
Miriam,
I've been on low doses of Prozac or Zoloft for almost 15 years and have found that the SSRI's really help with my circadian rhythms, mood, pain awareness and depression. I have found nothing else that works like this. I'm curious, did your doctor recommend you stopping?

Going off these med will definitely cause an increase in pain perception as well as sleep problems and mood upsets. Hope you are staying in touch with your doc about this.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 1/16/2010 7:54 PM (GMT -7)   
Hi Jeannie,
No, my doctor did not recommend me stopping the Prozac. I told her I did not want to take it any longer and asked her to give me a weaning schedule. She asked me why I wanted off the drug and I told her. She did not recommend I stay on it or tell me what you just told me, which I very much appreciate. I was originally put on the drug because of MAJOR PMS which they now call something else, like PMDD or something like that. Talk about mood swings and they would come out of nowhere; I even scared myself. When I was first put on Prozac, it had just come out, I had no idea what it was, was just told it would help and boy did it ever. Little did I know about the weight gain and if I had known, I would never have started it. I know I can't blame all my extra weight on drugs, but between being on Prozac, Elavil, Flexeril, Lyrica and Neurontin, at different times, they have all caused weight gain. Lyrica I took for less than a week and gained 7 pounds! I appreciate everything you have told me. I'm so tired of all the medication, so tired of it. I just want to try to get off of some of it, if it is at all possible. I am postmenopausal now, and I'm hoping I'm done with the mood swings. Since I've been off the Prozac, I have noticed I am definitely prone to tearing up, and I can't tolerate my husband chewing anything but other than that, I'm ok!!! LOL

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 1/16/2010 8:47 PM (GMT -7)   
Of the meds you are on the one I would be least likely to stop would be the SSRI. But if you are on the Lyrica you may find that a small increase in that dose will fill in the gap from the Prozac. Lyrica is a selective norepinephrine/serotonin reuptake inhibitor. Strange thing is that Lyrica is just a reformulated form of Neurontin, sort of a new and improved model. I'm seeing some overlap here.

If I were you I'd hike myself down to my local drugstore and ask one of those bright new pharmacists about the meds you are on. Believe it or not they are more knowledgeable about these drugs than the doctors. That is the person you should be talking to. They can give you the inside info on which ones of the different forumulas of the meds you are taking would benefit you the best. Then, armed with that info you can go speak with your doctor. Explain to her your concerns about all the drugs and also tell her you discussed the meds with your pharmacist. She will then see that you are trying to be a partner in your own health care, not just some wacky little ol' lady who is tired of taking pills.

Also, you can read up on your own meds online. Read what they are supposed to do and how they work. Don't read all the side effects junk. They have to put that in there for legal purposes but most of the side effects do not show up in most of the test subjects. Learn how to take them for the best effects and least side effects. Some meds work best taken with food. Some work best on an empty stomach, like your thyroid med. Just takes a little research, and pretty soon you will know lots of stuff about your meds and it won't be such a mystery. Good luck with this.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 1/16/2010 9:17 PM (GMT -7)   
i'm sorry Jeannie, I misspoke. I am NOT on all those drugs. I had tried them, at different times. I am NOT on Lyrica, Neurontin, or Elavil. I had tried them in the past and with each, I gained weight, so I stopped them. Thanks again for taking the time to respond to me. Talking to my pharmacist sounds like a great idea. Thanks again
Miriam

Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/17/2010 4:04 PM (GMT -7)   
Miriam, I'm so sorry you are having to deal with this.  I personally think too many combinations of drugs are given out these days.  I won't take them...at least right now.  My doctor has suggested the SSRI's and Lyrica and Savella, and I sounded like the old drug commercials....Just Say No! 
 
I have been able to manage control of the fibro through over the counter meds, supplements, and vitamins.  I do gentle exercises and lots of stretching exercises, too.  I know that we don't all have the same level of pain but I sure do hurt many times.  But, I just try to stay focused on things.  If I'm having a better day, then I can do more physical type things.  If I'm really sore, that's when I am on the computer, doing genealogy, or paying bills.  That easy type of stuff.
 
I'll be praying for you that you get some control of the pain and are also able to get off medications that might not be helping you.  I do take medications for diseases because I have to.  As Jeannie said, do some reading and try to see what helps you and what doesn't.  And, above all, feel better.
 
Sherrine  
 
  
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


harleybluz
Regular Member


Date Joined Sep 2009
Total Posts : 122
   Posted 1/19/2010 10:03 AM (GMT -7)   
I have just gotten off Lexapro after 3 years and my pain level is the same, which is bad to begin with. I am going to try Pamelor for the pain management of my Fibro and also for depression. I was on TCA's before and didn't feel this pain until I went on the SSRI's. I have to try something because I can't stand this anymore and I cannot afford not to work. TCA's have what some call "more" side effects but being on both I can only say that they have "different" side effects. They are used to treat pain in many cases. I know that getting off SSRI's is difficult and will cause muscle tension honey. Maybe thats what's causing you pain at the moment. I know it takes quite a while for the SSRI to get completely out of your body and brain. I would tell you to just give it some more time but I know the pain is too much to even hear something like that. I wish you all the luck in the world with this. I didn't want to go back on meds for depression but if it will ease the pain, so be it. The pain experienced with Fibro is too much for anyone to handle. This is a terrible thing for anyone to have to have.

This is no Social Crisis... Just another Tricky Day (The Who)

 
FMS, IC, IBS (working on full alphabet) Asthma, Bipolar and now Migraines.  Let's see what else we can throw into my bag of tricks.


Woolrow
Regular Member


Date Joined Jan 2010
Total Posts : 102
   Posted 1/23/2010 10:55 PM (GMT -7)   
HI Everyone, new here.

Vestabula, I am also struggling with the SRRI thing.

Would you mind posting or PMing me the link to the forum you joined.
I would love to have more info and support in order to do this.

I have had Fibro for 12 yrs. now and would like to try it without at this point.

Bestest...

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/24/2010 3:29 PM (GMT -7)   

Woolrow...my e-mail address is in my profile.  Just click on my name and it will bring it up...e-mail me and I will give you the info for the forum that helps deal with SSRI withdrawal.  I don't think you can PM on this fibro forum.

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil

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