Help, does this sound like fibromyalgia?

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singler
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 1/16/2010 1:20 PM (GMT -7)   
Hello folks.  I am brand new to this discussion so please bear with me.  My doctor recently diagnosed me with fibromyalgia.  She is an internist.  These are the symptoms I experience.
 
Pain and stiffness in my shoulders, back and especially my neck.  Tingling and numbing sensations in my hands and feet.  Also my hands and feet get very cold at times as well as the rest of my body.  I get headaches, feel like crying when the pain is most intense.  I sleep pretty well at night but don't feel rested the next day.  I wake up almost every morning with pains in my hips and thighs.  I get frequent spasms in my chest muscles when I am sitting down.  I am very frustrated and my doctor prescribed Naprosyn and Flexeril.  I get some relief with that, but not much at all.  She now has prescribed Lyrica and I haven't taken the first pill yet.  She prescribed 50mg two times per day. 
 
Please, if anyone can relate or share some knowledge with me, I would appreciate it.  This pain is affecting my daily living and overall quality of life.  confused
Thanks

puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 1/16/2010 1:46 PM (GMT -7)   
Welcome Singler, you have come to a wonderful place. 
 
You just described my symptoms.  The numbness and tingling in my hands makes me nuts, but I have had it for so long I don't think too much about it.  I wake up every morning and wait for the feeling to come back into my fingers.  You will find a lot of help at this forum.  I never heard of malic and magnesium until I came here.  That supplement has helped me a lot with the pain I have.  I go to an internist too.  I only take voltaren for pain and amitriptyline which helps me sleep.
 
I'm sure others will be along to welcome you soon.  Be sure to check out fibro 101.
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40602
   Posted 1/16/2010 3:56 PM (GMT -7)   
Hi Singler,
 
Welcome to the HealingWell Fibromyalgia forum.  You have found a good place.  I think that you will like it here.
 
As Puppylover said, do check out the fibro101 thread.  It has all kinds of great information.  You will learn a lot about fibro there and it will verify what you are feeling. 
 
Try to keep moving as much as possible.  And drink a lot of water, this keeps your muscles hydrated.  The malic acid/magnesium supplements work wonders too.  I think it is worth a try.
 
How come you haven't started the Lyrica yet?  Are you looking for other's experiences?  Because it doesn't always work for everybody, the best thing for you to do would be to try it.  That way you would know if it works for you. 
 
I hope that you start feeling better soon.  As you will find out fibro waxes and wanes.  Sometimes you feel good, sometimes you don't.  But it isn't anything any of us can't handle.  We kind of roll with it.  That is all that you can do.
 
Have a wonderful evening.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/16/2010 9:21 PM (GMT -7)   
Hi Singler, welcome to the family. Sometimes finding the right med combo takes time. We
all tolerate meds differantly. Even with the meds most of us are not completely pain free but
you will learn what helps you. Heat is something that generally makes us feel better. Soaking
in a hot bath helps, using bed buddies or heating pads help too.

I take Savella 50 mg 2x daily, and use Flexeril when I'm flaring for my fibro. Stress will
increase your pain so it is important to find ways to help eliminate it. I find walking helps
me and doing relaxation therapy, for me it's deep breathing exercises, listening to music.
It also helps if you have a hobby or something you love to do to distract you from pain.

You will learn to live with fibro. Initially I went through a grieving process, after I accepted
it I began to look for ways to help myself and it does get easier. Take one day at a time.

We are here to help and support one another, Glad you joined us.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


singler
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 1/17/2010 8:15 AM (GMT -7)   
puppylover said...
Welcome Singler, you have come to a wonderful place. 
 
You just described my symptoms.  The numbness and tingling in my hands makes me nuts, but I have had it for so long I don't think too much about it.  I wake up every morning and wait for the feeling to come back into my fingers.  You will find a lot of help at this forum.  I never heard of malic and magnesium until I came here.  That supplement has helped me a lot with the pain I have.  I go to an internist too.  I only take voltaren for pain and amitriptyline which helps me sleep.
 
I'm sure others will be along to welcome you soon.  Be sure to check out fibro 101.

Thank you so much for replying to me.  It means a lot to me to know that what I'm feeling is not unique.  I will try the malic and magnesium.  What is malic? 


singler
New Member


Date Joined Oct 2009
Total Posts : 4
   Posted 1/17/2010 8:19 AM (GMT -7)   
First of all, I accidentally ignored someone who responded to me. I didn't mean to. I didn't know what the symbol meant. I appreciate the support I've gotten already. This is a difficult thing to deal with. I started taking my Lyrica last evening and then again this morning. Right at this moment I'm not in pain and I feel blessed for it. Once again, thanks everyone.

puppylover
Veteran Member


Date Joined Feb 2009
Total Posts : 825
   Posted 1/17/2010 8:45 AM (GMT -7)   
Singler, I buy my malic/magnesium supplement from Puritan's Pride on line.  They always are having sales.  I just bought 2 bottles and got 3 free!  I believe malic acid is from apples.  I learned about it on this forum and then I went to a lecture about fibromyalgia.  The doctor mentioned malic and said it works for some people.   Others on this forum use it also.  It's recommended that you start with just one a day at first because diarrhea can be a problem.  I am now taking two a day with no problems and am ready to add 1 more.
 
 
Puppylover
 
Fibromyalgia, arthritis in spine and hips, IBS, Raynaud's syndrome, hypertension
 
On the eighth day God created Golden Retrievers.

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