Hi, new and really could use some help!

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Bellasplace
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/21/2010 3:56 AM (GMT -7)   
Hi Everyone,
My name is Bella. I am a Alabama girl but currently in Alaska for awhile. I am 33 and just was diagnosed having fibromyalgia. I am very new to this and in a lot of pain. I burn and feel like something is gnawing at me on every inch of my body. My doctor referred me to see a pain clinic and all they did was give me meds called Savella and Lyrica. Either is working. I am taking the lyrica 3x a day and the Savella 2x a day. The doctor did give me demerol but it did not work. I called after the weekend was over and asked for something else for the pain and they pretty much said, I was going to have to take the meds and get over it. I ended up going to the emergency room and getting a small dose of some IV pain meds, which helped but woke up the next morning with the pain coming back.
I have begged, pleaded, and cried over someone to help me. No one will give me anything for the pain. I do not have a history of drug abuse. I do not have a record of anything so I am not sure why they would not. Would love to know if any of you have the same problem in getting help with the fibro?
Thanks for reading my vent. But I am really hurting and I have not slept in 2 days. Thanks in advance!

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40568
   Posted 1/21/2010 8:02 AM (GMT -7)   
Hi Bella,
 
And welcome to the fibromyalgia forum.  You have come to a good site.  If you get a chance, check out fibro101, it is a wonderful thread.
 
It is hard to get pain meds these days, due to the abuse of them.   Doctors are reluctant to prescribe them.  Give the other meds a good six weeks to reach their full effect.  These meds take time.  They do not work over night, as some are antidepressants and they have to build up in your system.  So be patient. 
 
I take norco, which is a low scale pain killer.  But it does help.  Though I still have pain, it is not as bad as it could be and I can tolerate that.  Keeping your mind busy helps.  It puts the pain in the background and you don't notice it as much.
 
Keep moving, that helps too.  If you don't , you will be in worse pain and be as stiff as a board.  I also take muscle relaxers and that helps.  There are other ways to help with the pain that don' t require medications, and they are all in fibro101.  So please check it out.
 
I hope that you feel better soon.  Walking is another good thing to do, also GENTLE stretching.  Going to physical therapy also helps, and swimming.  So please try to be patient, it takes time, and a little work by yourself to get through this.  You will get there.  You will never be pain free, but you can get it under control so that you can tolerate it.
 
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/21/2010 8:04 AM (GMT -7)   
Hi Bella and welcome. Sorry you have fibro and are in such horrible pain. I don't take a lot of meds for fibro, personal choice. I do have vicodin but found it was really adding to my anxiety so will only take it when I can't stand the pain any longer. I use heat in any form bath, massage shower, heating pad, a little heater and some use bed buddies which you can make yourself out of a long tube sock filled with uncooked rice with the end tied and microwaved for a few minutes. I make sure I stretch often no matter how I am feeling. If you don't move it only makes the pain worse. I distract myself by watching TV, playing some game that needs concentration anything to help take your mind off the pain.
 
Read the fibro 101 thread, second on the page, it contains a lot of great info about fibro. This is a great group of people that really care about each other and do everything we can to help each other through the bad times.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 1/21/2010 8:18 AM (GMT -7)   
Hi Bellasplace, and welcome. I'm sorry you are in so much pain right now. It is a tough diagnosis to deal with.

I know it is so hard and frustrating to be in pain. Our natural instinct (of course) is to want it to go away, completely, right now. One of the things about fibro is that although the pain can sometimes be severe, it usually doesn't stay at that level forever. It typically waxes and wanes. Most people have some level of pain most of the time, but the severe pain does tend to come and go.

I know you feel overwhelmed right now, but you will learn to cope with and adjust to dealing with the pain. Many doctors don't like to prescribe narcotics for fibro long term because the available research doesn't definitively support it. If that is the route you choose to go, you may have to try several doctors.

There are lots of other things you can do to help too. First, take a deep breath, take a step back, and try to relax (easier said than done, I know). :) Motrin, Tylenol, hot showers, heating pads, muscle relaxants, massage, meditation, can all help. Also, a lot of us find that the cold really makes things worse. Living in Alaska, you might need to be aware of trying to keep your muscles warm.

There is a great thread at the top of this forum called "Fibro 101." You will find some great info. there.

I hope you are feeling better soon.

Soft hugs - Austen
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 1/21/2010 9:16 AM (GMT -7)   

Hi, Bella!  I just wanted to pop in and say Hi to you.  You have gotten excellent advice already so I really don't have much to add.

Do keep moving, though.  Sitting or laying too long will make you stiff as a board.  There are some good stretching exercises on Fibro 101 that really do help.  Also, find a gentle exercise that you can do daily.  For me, it's walking.  I also swim.  Both of these are wonderful for fibro and really do help with the pain.

Don't hesitate to ask questions because we are here to help you.  Many of us have had fibro for many years and have learned how to work around it and to live a full and enjoyable life in spite of fibro.

I'm so glad you found us and joined in!  I'm looking forward to getting to know you and I hope to hear more from  you soon.

Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Bellasplace
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/21/2010 9:25 AM (GMT -7)   
Thank you all for the advice. I am truly at a loss at how to handle this. I have such a low tolerance for pain that I am and will admit to being a baby with this. lol! However, last night I did find tylenol having a muscle and pain medication and it helped a little last night. I was very grateful for the pills. I finally got in about 3 hours of sleep which helped but still tired.
I am glad to have found you guys and will be around often but promise not to whine to much..hehe!!

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/21/2010 9:28 AM (GMT -7)   
Hi Bella, welcome to our fibro family. You have already recieved some wonderful advice.
One of the things I do to help with the pain and stress is relaxation therapy. I relax in a hot
bath and do deep breathing exercises. Take deep slow breaths through the nose and exhale
slowly through the mouth. If you feel yourself getting stressed during the day, you can just
sit for five minutes and do the breathing.

Stress can cause and worsen pain. Our nervous system goes into overdrive and the adrenal gland starts pumping out adrenaline and cortisol into our bloodstream. Our muscles get less
blood going to them and tighten up and cause pain. The more you can reduce stress the
better.

I take Savella 50 mgs 2x daily. It took 7 weeks before it kicked in and started helping.
I also take Flexeril (cyclobenzaprine), a muscle relaxer when I'm flaring.

Many fibromites have a vitamin D deficiency and that can cause pain. Have your doctor
check your level.

Take one day at a time, Bella. I hope you find relief soon. Sending gentle hugs.

Hugs, Robin
MCTD, Fibromyalgia, Raynauds, Osteoarthritis, Osteoporosis, Degenerative 
 Disc Disease, Hypertension, Migraines and Pseudothrombocytopenia MEDS: Methotrexate, Savella,Flexeril,Diltiazem, Boniva, Vitamins 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 1/21/2010 9:31 AM (GMT -7)   
Bella, I use ibuprofen with food and extra strength Tylenol.  I alternate them and I don't wait until I'm absolutely miserable before taking them either because it takes longer for them to kick in.
 
I also take malic acid/magnesium supplements and vitamin D3 supplements.  There are links all about these in Fibro 101. 
 
But, be sure to ask your doctor before you try anything.  I did and this is what has worked for me for decades.  I have not been without pain but I am in control of the pain and can live a full and enjoyable life with it.  You need to accept the situation and then look to find what works best for you to keep the pain under control.
 
We are here to help you so don't hesitate to ask questions.
 
Sherrine 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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