How many of you are on the sleep rollercoaster?

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crazykitty
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Date Joined Jul 2009
Total Posts : 4796
   Posted 1/21/2010 9:16 PM (GMT -7)   
Lately, my sleep schedule is way out of whack. I suffer from insomnia at least 2-3 nights
a week and will sleep 4-6 hours. The other nights I will sleep 10-12 hours although it
is interupted sleep, I will awake from pain or get up to use the bathroom a few times.
I know my stress level has been high lately and have been working at keeping it down.
My pain level has been all over the place too. I'm overly fatigued even after sleeping
10-12 hours. I would like to get back to my average 8 hours.
 
Yesterday, I saw my rheumy and suggested I start taking B-12 5000 mcgs daily. I went
and picked some up, hope they help. Any suggestions? Thanks!
 
Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Bellasplace
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 1/21/2010 9:57 PM (GMT -7)   
I am with you. I cant seem to get any sleep. I really am not sure what to do. I am taking cyclobenzaprine which helps some but not all the time. Let me know if anything works for you and I will do the same. Good luck!

Bella

Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 1/21/2010 9:57 PM (GMT -7)   
Gee, Robin. I'm all ears if you get some answers. Stress lately has been my problem, too, along with the pain thing. If I take something strong to be pain free thru the night then I wake up as stiff as the tin man!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


AustenFan
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Date Joined Aug 2008
Total Posts : 1771
   Posted 1/21/2010 10:54 PM (GMT -7)   
Count me in. It's almost midnight where I live, and here I am writing on this board. :)
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


do-over
Regular Member


Date Joined Oct 2003
Total Posts : 162
   Posted 1/21/2010 11:50 PM (GMT -7)   
yep ... me too.  it's 1:45 here and I am wide awake.  i have tried all the 'tricks' ... warm milk, low lights, even read the presbyterian Book of Order (most boring read on the planet) and STILL .. awake!

luvskermit
Regular Member


Date Joined Jan 2010
Total Posts : 166
   Posted 1/22/2010 9:34 AM (GMT -7)   
I, too, am having difficulty sleeping. Last night I tried opening the window a bit (but not the storm) because maybe the room is too warm.  I was still up at least every two hours.  Now that I'm noticing, it seems to make it worse.  My stress level has been high, also. Guess I need to work harder at lowering that. rolleyes

Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 5876
   Posted 1/22/2010 9:37 AM (GMT -7)   
I am usually up every few hours, even with the sleeping med. I am taking too many naps, maybe?? Usually two hours a day...

I just think my body wants to move to a new position. I notice that when I sleep all the way through the night, I can hardly move the next morning.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/22/2010 10:50 AM (GMT -7)   
Hi, I slept 10 hours again and am not refreshed. In my first post I should have mentioned
I have had insomnia for years, but the other nights I usually get around 8 hours sleep and
felt better than I do with the 10-12 hours i'm getting.

I see that I have company and others are going through the same thing... that didn't surprise
me though. Today is another day and I'm going to get myself back on routine.

Hope we all have a good day, and a good night!

Hugs, Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 1/22/2010 11:07 AM (GMT -7)   
I fall asleep quickly but wake up many times during the night.  My eyes just pop open or I wake up needing to use the bathroom. 
 
I never sleep 10-12 hours a day.  That makes me more tired.  I stick to about 8 1/2 hours a night which isn't bad with all the waking up I do.  I set an alarm, too.  I don't want to oversleep because I do feel worse.
 
I stay on the same schedule and I do fall asleep watching television.  I know they say not to do that but if I don't put on TV, I'll have things running through my mind and I never get to sleep.  But, if I'm watching TV, I usually am asleep in about 15 minutes.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 1/22/2010 12:26 PM (GMT -7)   
Sherrine, I have to do the t.v. thing too. If I just lie down in the dark, I can't turn the old brain off. I guess the t.v. distracts me just enough. Thank goodness for "sleep mode."
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


WhiteChocChip
Regular Member


Date Joined Jun 2009
Total Posts : 439
   Posted 1/22/2010 12:33 PM (GMT -7)   
I totally am riding the sleep rollercoaster. My sleep pattern is so erratic that my roommate keeps asking me if I'm ok.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40573
   Posted 1/22/2010 1:01 PM (GMT -7)   
I have noticed since I am not working that I don't sleep as well. I wake up in the night and early in the morning so I just get up. I take ambien so I fall to sleep okay, but always tossing and turning to get comfortable now.

Hope that you all get a restful sleep tonight.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/22/2010 1:18 PM (GMT -7)   
Gee, if I had known so many of us were up at 2:00 in the morning, I would have thrown a virtual party.  And that was after a valium.  I watched two old Thin Man movies and it was almost daylight before I fell asleep.  I always fall asleep during the day.... I wonder why!
 
I always have the televsion on also...it blocks out the ringing in my ears.  I love fibro.
 
Huggies
Donna
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 1/22/2010 2:46 PM (GMT -7)   
Sleeping, or lack of it, has always been a big problem for me. I have severe insomnia, average about 3 hrs a nite, every nite. I usually go off w/i 10 min of putting out the light, but about 3 hrs later, BOOM! that's it, I'm awake for the rest of the day.
 
Last night, I couldn't go to sleep till almost 2 am, then I was awake by 4 am. I take 1 Tylenol PM before bed, then read for about 15 - 20 min, then turn out the light. Last nite, I did that and nothing. I have felt like the Living Dead all day. Did my household stuff, had to get some things at the store for my mother and go over to the NH. She said she hadn't slept well last nite, either. We spent a bit of the visit yawning at each other - very productive.
 
I have also had a major problem w/ my left leg/hip. I have been awakened by a horrible burning in my leg that makes me fly out of bed to get rid of the pain. I can't fly and it is a sorry sight. The pain lasts for the rest of the day and makes it impossible to return to sleep.
 
I can't deal w/ the light or noise in my room when I'm attempting to sleep. My sons used to play their video games in the evening, complete w/ surround sound. Yeah, that had to go!
 
Donna, let me know when and we can sit up and watch the Thin Man movies, love them! We can sit in our cushy fibro chairs and pretend to focus on the tv. Who needs sleep anyway, highly over rated, I say. Sigh - I wish I could sleep, I wish I could sleep...
 
Robin, let us know how the B-12 works.  I take some now, if increasing the dose works, I'll try it. Good luck!
 
God bless.  Alice.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 1/22/2010 4:44 PM (GMT -7)   
I finally found someone who explained why so many of us are in rough shape. The reason we feel like crap no matter how much we
sleep is because we are not going into the REM mode of sleep. With the fibro and arthritis both the body goes into mini spasms
even when asleep not allowing the body to go all the way under. With the Super Cissus RX having a built in pain killer I got my
first night's sleep in YEARS. Now backing it up with the True Calm I am in even better shape and rarely have a "bad night" unless
I'm getting sick as it breaks down the system. If it helps try putting an electric blanket under your sheet (as my waterbed broke
this is my only alternative). The heat goes into the body and works on loosening up the muscles while you sleep. Even in the
summer I kept the waterbed on 98 to keep the heat in my bones.

Vesta...if you're not sleeping tonight I heard they're doing paranormal research at the Quick Mart in the Village. I'd love to go
but I don't know if you have to be part of the group to get in.

crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/22/2010 5:03 PM (GMT -7)   
Nana, I wish I could go herbal natural. I know the Methotrexate I take must be super toxic
but supposedly it is helping slow down the progression of my MCTD and I'm scared to mix
with herbals... I love watching those paranormal shows.

Donna, I love your virtual party idea!

Good rest to all of us!
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


JustTina
Regular Member


Date Joined Dec 2008
Total Posts : 23
   Posted 1/22/2010 6:43 PM (GMT -7)   
Nana Monster said...
If it helps try putting an electric blanket under your sheet (as my waterbed broke
this is my only alternative). The heat goes into the body and works on loosening up the muscles while you sleep. Even in the
summer I kept the waterbed on 98 to keep the heat in my bones.


Really? I didn't know that. DH & I were just talking about it tonight. He asked if it helped with my muscles & after thinking about it I guess it does. I just thought it was hopping in a cozy warm bed that I found so comforting. Either way it has really helped me.

Pain has been keeping me up past few days. I just took some valerian, I hope it works. I tried it a month or so ago & it helped but I wasn't in as much pain then.

Have you tried pasta, potatoes or anything else loaded with carbs? I know a big bowl of pasta knocks me flat on my back.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 1/22/2010 6:47 PM (GMT -7)   
Kitty.....If you go onto the Super Cissus RX site it's a single plant from India (not a blend like True Calm) and has NO reported
side effects. The site is designed for body builders who are prone to tearing their muscles, tissues and ligaments from lifting. It
seems to work well for me with the arthritis and fibro.

I love the paranormal as it's a large part of my life...I don't even charge for the readings I do. I figure God gave us all gifts
it's just in how you use them.

Nana Monster
Veteran Member


Date Joined Jul 2009
Total Posts : 952
   Posted 1/22/2010 6:56 PM (GMT -7)   
Tina....Check into the True Calm. It's a mixture of Niacin, B-6, Magnesium, GABA, Glycine, Taurine, Inositol and Valarian Root.
Together they work on the Neurotransmitters and calm the nerve endings which helps you to sleep. I got a bottle for my
best friend and she took it a couple of days ago and said it was the first time in years that she's got a good nights sleep.

I love my carbs and fortunately I've had no side effects other than being chunky.

JustTina
Regular Member


Date Joined Dec 2008
Total Posts : 23
   Posted 1/22/2010 8:16 PM (GMT -7)   
I love my carbs too but they make me sleepy & chunky too! Have cut back on them + a few other things & have lost 15 pounds recently. Think I'm putting the dieting on hold for now. They called me back for the second time on my mammo, they found another calcium cluster. 1 in 5 chance it's cancer. So worst case scenerio & I do have to have chemo I want to have plenty of padding on me!

I see you're in NY, I was wondering when you said something about the Village. My son & I were up there 4 years ago for my birthday to see a show (blue man group) in Astro Place. I loved it there but have to say Times Square was my favorite. I can't wait to go back one day.

When I'm not in such a funk I'll have to go through all your old posts Nana to see what you've recommended for different things. I really would like to treat whatever it is I have as naturally as possible. I see the Rheumie on Wednesday to see what my actual dx is. They've found all kinds of things but still no explanation for the pain & exhaustion.

vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/22/2010 8:22 PM (GMT -7)   

Alice...the hip/ leg pain is what keeps me up all night too.  I keep switching sides, changing positions, moving from the bed, the the recliner to the couch.  I don't know if it's sciatica, arthritis or just part of fibro but so many of us complain of pain in that particular area.  No wonder one of the main symptoms of fibro is fatigue...none of us get any sleep.

Paranormal...I'm very interested in that also.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/22/2010 9:23 PM (GMT -7)   
Donna and Alice, the combination of Mobic (meloxicam) and Flexeril (cyclobenzaprine)
has helped my hip/leg pain. It is difficult to find a comfy sleeping position. I try to sleep on
my side with a pillow between my legs, but I can't stay in one position too long.

Tina. I'm loading up on carbs as I type. Do potato chips count? I've eaten quite a few.
Hope everything goes well concerning your mammo. I had a breast biopsy a year ago and
it turned out OK. it was a fibro adenoma.

Nana, will check into the Super Cissus. I plan to talk to both mt rheumy and D.O. Thanks

Hugs,Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Myself 09
Veteran Member


Date Joined Dec 2009
Total Posts : 5876
   Posted 1/22/2010 9:29 PM (GMT -7)   
I remember taking valerian after my divorce years ago, and it helped put me to sleep then.
Fibromyalgia DX 2005. Ulcerative Colitis, arthritis, TMJ. Family History of Fibro--2 out of 3 siblings diagnosed.

There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot.


Littleneck
Veteran Member


Date Joined Mar 2009
Total Posts : 599
   Posted 1/23/2010 2:03 AM (GMT -7)   
I am definitely on the sleep roller coaster. Usually I am up til at least midnight but the past week or so I've been up to 4am or later - after drinking warm milk, eating some turkey and everything you're supposed to do for good sleep hygiene. The other night I slept for 3 hours, and last night I slept for 12 hours with only one wakeup. It is all I can do to keep my eyes open today. My pain is OK, so maybe my body is just collapsing in fatigue once the muscles relax a bit.
"You must imagine your life, and then it happens." - John Updike, The Witches of Eastwick


Irish Babe
Veteran Member


Date Joined May 2007
Total Posts : 1371
   Posted 1/23/2010 8:23 AM (GMT -7)   
Hi Donna and Robin,
 
In HS I fell off the balance beam and landed on my patootie. I went to several drs who couldn't find anything, had x-rays, the whole thing. Of course, this was about the time of the invention of the wheel, ya know, 1970. Shortly after that, I was in my house, ready to take my dog out when my leg just gave out under me. I again landed on the floor and couldn't move. My leg was on fire. We finally found a dr who checked me and said it was my sciatic nerve. Both my parents had this, but only my mother was dx w/ it. They never had their legs give out on them, either.  They never thought someone sooo young could have this. Wrongo, my friend!
 
Since I hurt my right arm/shoulder so badly last yr, I can't lay on that side. I can not go to sleep on my back (altho I do end up there later) I can only lay on my left side to go off to sleep. Laying on my back is usually the position that sends me flying out of bed. I have used a pillow between my legs for yrs, since I had my gallbladder out in '92. I hate the idea of meds, but I'm about at my breaking point.
 
I also have OA, DDD, and lest I forget, DJD.  It makes sleeping a real challange. I had my usual 3 hrs last night, my DS and I did the groceries at the crack of dawn today. Now I'm tired and I can't sleep Story of my life.
 
Wishing us all a good night's rest, starting tonight!
 
God bless.  Alice.
 
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