Aunt Wilma Died

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Jeannie143
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Date Joined Apr 2004
Total Posts : 6056
   Posted 1/24/2010 7:55 PM (GMT -7)   
Not asking for condolences, just wanted to let you know that for the first time I heard the word fibromyalgia mentioned during a funeral service yesterday. She was married to my hubby's uncle so we weren't super close but she was a neat lady. She was so surprised when she found out that I have fibro because she hadn't heard much about it. For the last few years at every family function and picnic I've given her all the benefit of the things I've learned here and I hope I made her last years a bit more comfortable.

At the service my husband heard the "WORD" said out loud, discussed, used as in "suffering" and "pain" and "coped" and "fought"... and he gently put his arm around me and I could see he was thinking... hard. It isn't written across our foreheads in big green letters... we groan a bit and fight just to get out of a chair at times but mostly we don't complain. It was nice to have someone else mention it, and speak highly of the woman who lived her life to the fullest even though she had this dumb disorder.

Like I said, I don't want condolences or pity for Aunt Wilma (although prayers would be nice!) and I certainly don't want pity for myself, just some understanding sometimes would make it a bit easier to bear this crunchy lifestyle.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/24/2010 8:55 PM (GMT -7)   
Jeannie, I am sorry for your loss, sending gentle hugs and prayers. Jeannie you can feel
good to know that you were able to help ease some of her pain with the advice you were able
to give her. I'm sure Aunt Wilma appreciated your concern and understanding, sometimes
that is what a person needs most.

Hugs, Robin
Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 


Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 1/24/2010 9:36 PM (GMT -7)   
Jeannie...

Thanks for mentioning this wonderful woman and her story. It does give validation to us and something for our loved one to think about. I am sorry for your family's loss but maybe by her remembrance will help others know about fibro.

Hugs,
Chutz
"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


AustenFan
Veteran Member


Date Joined Aug 2008
Total Posts : 1771
   Posted 1/25/2010 7:05 AM (GMT -7)   
I'm sorry for your loss and sending hugs and prayers.

We are a sisterhood of fibromites, and when one of us is validated, understood, taken seriously, comforted, etc. it is a victory for all of us.

Hugs - Austen

I had to edit this to include all of our "brothers" out there. You are part of this crazy fibro family too.
"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
 
 
 
 
 
 


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/25/2010 7:20 AM (GMT -7)   
Jeannie, I just want to say how very well written your words were. Understanding is all I am hoping for too. This makes me feel we are becoming more recognized for our daily battles.

Thank you for the post.

Patsie

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/25/2010 8:11 AM (GMT -7)   
Prayers for the family.
 
I do believe if fibro was talked about at a funeral like that it would get a lot of family member's attention.
 
I like to watch the TV show "Hoarders". I have an interest in any mental illness. Last week one of the hoarders had fibro.
 
There are reality shows about everything else maybe we need one to show what life with fibro is really like.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40601
   Posted 1/25/2010 8:23 AM (GMT -7)   
Jeannie,

I just want to say that I am sorry for your loss. But it sounds like Aunt Wilma was a wonderful lady. And I am glad that you were able to be with her and help her with this disorder. You are a wonderful person.

Prayers are going out to you.

Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/25/2010 11:34 AM (GMT -7)   
I am sorry about Aunt Wilma but your story was wonderful.  I do think people are starting to understand a little about this illness.  Most people hadn't heard of it but now quite a few do.
 
There is a new commercial done by a fibro group that seems excellent.  I don't understand what it is saying, but the people with fibro are real fibro patients.  They aren't hopping around like the Lyrica commercial.  One woman has tears in her eyes as she talks about her pain.  So, the message is finally getting out and that should help all of us.
 
Jeannie, thanks for sharing this touching story.  I know I will remember this and I will offer up some prayers, too.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/25/2010 11:52 AM (GMT -7)   
I have seen that commercial too Sherrine and was surprised that it showed what fibro is really like. I'm thinking it had something to do with fibro centers, I don't think it had anything to do with meds.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 1/25/2010 12:10 PM (GMT -7)   
You are right, Marlee.  That's why I said it was a fibro group that produced it and I do think it is fibro centers.  I just couldn't remember the name.  Hmmm....I wonder why?  mad
 
No, the medication  commercials make fibro look like a walk in the park to have fibro if you take their medications...that's if you can get over your dizzy spells and lose enough weight to be able to walk again!  devil
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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