OMG... my blood test results came back...

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fitlissa76
Regular Member


Date Joined Jan 2010
Total Posts : 51
   Posted 1/25/2010 10:45 AM (GMT -7)   
He thinks I have Lupus.
 
I am freaking right out.
 
My Dr. said he didn't think I had it, but ran a test for it anyway along with a panel for a bunch of other autoimmune disorders. I thought my RF factor would come back high, maybe arthritis or something, but that was fine. It was the Lupus test (ANA) that was high. I'm glad he ran that test just to be sure.
 
Gawd, now I have to learn all about that.
 
I should be sleeping right now, I have to work 3rd shift tonight. I can't sleep, though......

Post Edited (fitlissa76) : 1/25/2010 11:00:27 AM (GMT-7)


Libby08
Regular Member


Date Joined Oct 2009
Total Posts : 434
   Posted 1/25/2010 11:12 AM (GMT -7)   
I was tested for Lupus also and mine was high.  I was tested twice after and was normal.  Sometimes it can be a false positive.......

Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17095
   Posted 1/25/2010 11:23 AM (GMT 0)   
Libby is absolutely correct.  My friend's daughter was diagnosed with Lupus and had the high ANA results.  She, too, freaked out but then she was tested again and is fine.  She has been fine for over 12 years, too.  So, don't get upset.  That won't help anything. 
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


crazykitty
Veteran Member


Date Joined Jul 2009
Total Posts : 4796
   Posted 1/25/2010 11:31 AM (GMT -7)   
Melissa, A high ANA does not always indicate lupus or other autoimmune disease. Your
doctor will have to run other antibody tests to confirm what you may have. Each disease
has specific antibodies. It may take sometime to get a diagnosis. I know it is scary.

Melissa, I understand your concern and know what you might be feeling. I have an
autoimmune disease MCTD(lupus, scleroderma,RA). It takes sometime to fully accept it.
You do learn to live with it by taking one day at a time. I was frightened when I was
diagnosed. There are drugs, immunosuppressants that can help.

Hugs, Robin


Fibromyalgia, MCTD (Lupus, Scleroderma & RA) Raynaud's, Osteoporosis,
Osteoarthritis, Degenerative Disc Disease, Migraines, and Hypertension
Prescription Meds: Savella, Cyclobenzaprine, Methotrexate, Diltiazem, Boniva,
Folic Acid.  OTC Meds: Multi-vitamin. Vit, D, Vitamin B12 & calciim supplements
 
 

Post Edited (crazykitty) : 1/25/2010 11:34:27 AM (GMT-7)


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 1/25/2010 11:58 AM (GMT -7)   
I hope your able to calm down after reading the post that it can be a false positive and sleep.
 
I did not know that either and a friend of my son's was just dxd with lupus and fibro. I think I will have him talk to her about it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium, Osteoarthritis and Celiac
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches, Carafate and Prilosec
 
Vit D/calcium


vestabula
Veteran Member


Date Joined Nov 2008
Total Posts : 2855
   Posted 1/25/2010 12:44 PM (GMT -7)   

Hi...I can only reiterate what the others have said.  I have posted this before, but my son tests blood and he says ANA's are the most unreliable tests that he runs and patients come back two or three times to have it retested.  All you need is an infected  scratch or some other low grade infection that you may not even notice to have an abnormal reading.  Before settling on Lupus, I would have it retested, but that's just my opinion.

Huggies

Donna


fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: valium Advil


patsie
Regular Member


Date Joined Dec 2008
Total Posts : 478
   Posted 1/25/2010 1:07 PM (GMT -7)   
Hi,

Just wanted to say I am thinking about you and know how scary all this stuff can be. I'm with everyone, don't borrow trouble yet. WE seem to have many false positives, interesting. I tested positive twice for RA and never developed and now test negative. Go figure.

Rest, Patsie

LeilaLee
New Member


Date Joined Jan 2010
Total Posts : 17
   Posted 1/25/2010 1:14 PM (GMT -7)   
Hi... My good friend had a positive ANA and freaked out. She went to my Rheumatologist and he said that she did not have lupus. Lots of people get a false positive on this particular test. If you haven't seen a rheumatologist, it might be a good idea. Take care and try not to worry!

fitlissa76
Regular Member


Date Joined Jan 2010
Total Posts : 51
   Posted 1/25/2010 4:52 PM (GMT -7)   
Ok, I've calmed down & did get some sleep. I didn't know ANA's were so unreliable.

Kimber
Veteran Member


Date Joined Jun 2005
Total Posts : 1852
   Posted 1/25/2010 7:48 PM (GMT -7)   
Hi Lissa,

Consider the ANA a screening test and by itself doesn't mean anything is wrong it just means there might be. If its high then they usually run other blood tests to determine the cause and sometimes they don't find anything else. I remember first going and getting this test done many years ago and my pcp rushed my rheumy appointment because of how high it was. Nothing else was found tho and I've been tested many times since and it doesnt go down much. Hang in there.
 

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